Search results

I AM VERY SIMILAR TO YOU I AM 20 AND I STILL LIVVE AT HOMWE WITH MY PARENTS I NEARLY MOVED OUT A COUPLE OF YEARS AGO BUT I FEEL MORE SECURE BEING AT HOME COS WHEN I DO GET ILL MY MUM IS THERE TO CARE FOR ME . I DO HAVE ALOT OF FRIENDS THOUGH THEY ALWAYS VISIT ME IN HOSPITAL AND BRING ME LOTS...

I CULTURE PSDEUMONAS ALOT AND PNEUMONIA AND STAFACOCASLAS (EXCUSE THE SPELLING)I GET PNEUMONIA ALOT AT THE MOMENT IT IS REALLY HORRIBLE FROM JO W/CF

HIYA I AM JO I AM 20 WITH CF . IT IS SAID TO BE QUIET COMMON WITH CF TO HUNCH OVER I SOMETIMES DO IT WHEN MY CHEST IS BAD AND MY MUM WILL JUST LET ME KNOW I AM DOING IT IT TAKES STRAIN OFF YOUR CHEST SO I HAVE BEEN TOLD . BUT DUE TO ALL THE MEDICATION US CFERS TAKE IT CAN CAUSE ALOT OF BONE...

HIYA MY NAME IS JO I AM 20 WITH CF I LIVE IN THE UK . RECENTLY I HAVE STARTED TO FEEL REALLY DOWN . TO BE HONEST IT HAS NEVER REALLY HIT ME HOW SERIOUS CF IS AS I HAVE ONLY BEEN IN HOSPITAL FOUR TIMES IN MY LIFE AND NOW I CAN NOT WORK I AM UNDER WEIGHT AND GET A CHEST INFECTION NEARLY EVERY...

DO ANY OF YOU OTHER REGISTERED PEEPS USE THE CHATROOM COS IT WPULD BE NICE IF IT WAS USED COS I WOULD LOVE TO CHAT TO OTHER CFERS FROM JO <img src="i/expressions/heart.gif" border="0">

HELLO MY NAME IS JO AND I AM 20 AND HAVE CF . MY MUM THOUGHT I RESENTED HER TO . BUT AS I EXPLAINED TO HER IT WAS NOT HER FAULT FOR MY ILLNESS IT CAN NOT REALLY BE HELPED . AT YOUR DAUGHTERS AGE I WAS OBLIVIOUS TO MY ILLNESS IT NEVER BOTHERED ME UNTIL I GOT HOLDER AND STARTED TO REALISE THAT I...

HI ANNA MY NAME IS JO I AM 20 AND HAVE CF. I WAS LUCKY AND DIAGNOSED AT 2 WEEKS OLD . I SUFFER MORE WITH CHEST PROBLEMS THAN I DO WITH BOWELS . YOUR HUSBAND CAN HAVE A SIMPLE SWEAT TEST TO FIND OUT IF HE HAS CF AS PEOPLE WITH CF HAVE MORE SALT THAN NORMAL ALL THE BEST FROM JO

I AM 5FT 8INS TALL AND ABOUT THE WEIGHT YOU SAID AND I AGREE ABOUT THE HOSPITAL FOOD I DONT TOUCH IT WHEN I AM IN HOSPITAL .FROM JO

HIYA I AM 20 AND HAVE CF AND AM BEING TESTED FOR CFRD I HAVE TO ADMIT I WAS ALOT LIKE YOUR SON BUT I HAVE COME TO REALISE HOW IMPORTANT IT IS TO DO ALL MY MEDS AND MY PHYSIO AS IT CAN HELP YOU TO STAY HEALTHY LONGER BUT IF HE DOESNT TAKE HIS MEDS HE WILL GET VERY ILL AND THEN THEY WILL ADMIT HIM...

HI SOPHIE CF AND DIABETES IS KNOW AS CFRD CYSTIC FIBROSIS RELATED DIABETES I MIGHT HAVE IT I HAVE TO CHECK MY GLUCOSE LEVELS EVERYDAY BY PRICKING MY FINGER AND PUTTING SOME BLOOD ON AND A MACHINE IT IS NOT PAINFUL THANK GOD (A BABY WHEN IT COMES TO NEEDLES) IF YOU ARE WORRIED THEN GET TESTED BUT...

HI I ORIGINALLY POSTED THE MESSAGE I AM 20 AND WEIGH 7STONE 4 IT IS GOING UP BUT I DO STRUGGLE WITH MY APPETITE SOMETIMES I AM HUNGRY AND SOMETIMES I AM NOT IT IS ANNOYING .FROM JO

HI SARA I DO TRAMPOLINING IT IS REALLY GOOD FOR GETTING MUCUS UP FROM YOUR LUNGS PLUS IT IS FUN TO DO <img src="i/expressions/rose.gif" border="0"> BEST WISHES FROM JO W/CF 20

hello i am 20 and do not have a port it has been mentioned but i dont really want one but i was wondeering what one is <img src="i/expressions/rose.gif" border="0"> from JOXXXXXXXXXX

I SO USED TO HAVE THE SAME PROBLEM AS YOU I HAD FRINEDS WHO WOULD NOT UNDERSTAND WHY I COUGHED ALL THE TIME WHY I WAS SO THIN . BUT NOW I AM VERY BLESSED WITH MY FRIENDS NOW THEY ARE AMAZING THEY LOOK AFTER ME WHEN I GO OUT AND ONE OF MY FRIENDS WAS STUDYING CF AT COLLEGE AND SHE WOULD COME TO...

i dont mean to sound funny but why anti bacterial gel and why do you need to be conntacted if another child is ill its just when i started pre school none of this was done with me and i was fine .but one thing i will stress dont let your sons teacher treat him any different from the other kids...

DEAR SARA I FIND THAT IN SOME WAY OR ANOTHER EVERYONE IS DIFFERENT AND YOU KNOW WOT IT IS NOT SOMETHING THAT ANYONE SHOULD BE A SHAMED OF I HAVE STRUGGLED WITH FINDING FRIENDS THAT WILL EXCEPT ME AND MY ILLNESS AND I HAVE SOME FANTASTIC FRIENDS NOW THEY ALWAYS LOOK AFTER ME WHEN WE GO OUT THEY...

I HAVE ALWAYS WONDERED IF YOU HAVE CF AND THEN HAVE A BABY DOES THE BABY GET IT AS WELL IT IS SOMETHING THAT I HAVE BEEN THINKING ABOUT FOR AGES

I WAS SO TOUCHED BY YOUR MESSAGE JAIME I HAVE CF AND IT IS SO HORRIBLE THE OLDER I GET THE MORE I FIND IT HARD TO COPE I AM SCARED AT THE THOUGHT OF DYING I WANT TO GET MARRIED AND HAVE A BABY BUT I DONT WANT TO HAVE A BABY AND NOT SHE THEM GROW UP THAT SCARES ME I KNOW MY PARENTS WOULDNT COPE...