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Our 10 yr old CF dd508 back in since her last one in March. She lost over 5 lbs and coughing & has been on several rounds of antibiotics but still not well. Today is the second day & This morning work up with a 103 temp, they stopped the antibiotics so they can do a bronch in the morning. They...

We were told by our specialist not to use anything like this for our daughter but then right after that he said no one should use them. they are not sanitized properly and can not be totally sanitized and be safe for anyone.

We have the same problem here. She is 10 also and refuses to spit it out too. It's all about control. That is the one thing she can control. At this age we dont give her an option of doing her meds/shaking or not. She is to do them because it doesent just affect her it affects the entire...

At this age so much is going on. He should not be missing anything for things that he cannot help. Our children with CF gets tired quicker and if my daughter could not finish an assignment and then was punished for it I would be so angry. I want her to not miss out on learning opportunities...

Its getting so close. I am so excited for you all. I will be in constant prayers for you all. Cant wait to read more on the blog and my email is rwhitter2@hotmail.com. to send questions & updates if you have any needs Ronda

Our clinic has an on call Pulmologist to call with questions. I would take my child to the ER if I thought that they were having breathing difficulties, or if they cannot stop coughing at all severely and cannot catch thier breath after being treated with meds or if there is a change in their...

Well she is growing Pseudomonas and MRSA. She just went off of the Cayston the day before culturing her. She has not declined in cough wise but she is still not up to par with her activity level and crankie and mild cough. The nurse is calling the docs to see if they want to do anything else...

We adopted five special needs children and our CFer is almost 10. She was 5 when we brought her to our home. I know one of the most important things you can do to help with attachment is to take the child to a store one who has a lot of stuff animals or our favorite is Build A Bear and let...

They did the culture, X-ray and blood work it will be a few days for results but they placed her on DS Septra that day. I just wish that their lung function wouldn't decline so quickly without warning. What if she didn't have an appointment already like she did. She is colonized with MRSA &...

Anyone else have lung function loss without any major sign of illness? Our 9 yr old had her check up yesterday and she has been really well for a while now meaning like 2 years since a tune up and she dropped to 80 on her lung function test and the only symptoms she has is a mild temp like 99...

Anyone else have lung function loss without any major sign of illness? Our 9 yr old had her check up yesterday and she has been really well for a while now meaning like 2 years since a tune up and she dropped to 80 on her lung function test and the only symptoms she has is a mild temp like 99...

Wet hands and feet and Syncope My daughter has F508 del, G576A & R668C mutations she has always has had severe wet hands and feet and her skin wrinkles quickly too! She also has the lethargic episodes and has been to the heart specialist and after testing found that she has Syncope. There are...