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madison 21 5'2" 106

Liza, Sorry to hear that Anna's pfts were down, I wonder if it's viral or something like APBA. That's what Maddy was dx with when we were looking for a reason why her #'s never improved. I don't know how much you know about ABPA (Allergic Broncho PulmonaryAspergilosis) but a small percentage...

Liza, Sorry to hear that Anna's pfts were down, I wonder if it's viral or something like APBA. That's what Maddy was dx with when we were looking for a reason why her #'s never improved. I don't know how much you know about ABPA (Allergic Broncho PulmonaryAspergilosis) but a small percentage...

Liza, Sorry to hear that Anna's pfts were down, I wonder if it's viral or something like APBA. That's what Maddy was dx with when we were looking for a reason why her #'s never improved. I don't know how much you know about ABPA (Allergic Broncho PulmonaryAspergilosis) but a small percentage...

Michelle, Hi, I'm new too,have only joined in the last month. When our 21 year old daughter was born and dx at 4months, there was no history of CF on either side of our families. 1 in 20 white people are carriers so you can see how easy it would be for your daughter and son inlaw to get...

Michelle, Hi, I'm new too,have only joined in the last month. When our 21 year old daughter was born and dx at 4months, there was no history of CF on either side of our families. 1 in 20 white people are carriers so you can see how easy it would be for your daughter and son inlaw to get...

Michelle, Hi, I'm new too,have only joined in the last month. When our 21 year old daughter was born and dx at 4months, there was no history of CF on either side of our families. 1 in 20 white people are carriers so you can see how easy it would be for your daughter and son inlaw to get...

Liza , Thanks for sharing. It makes sence now. At first, when you said NE I was thinking NewEngland. Madison was born in Vermont and we lived there for 6 yrs. We came to the midwest in '90 for a job change with my husband. I'm a nurse and work for the federal government so I just transfered to a...

Liza , Thanks for sharing. It makes sence now. At first, when you said NE I was thinking NewEngland. Madison was born in Vermont and we lived there for 6 yrs. We came to the midwest in '90 for a job change with my husband. I'm a nurse and work for the federal government so I just transfered to a...

Liza , Thanks for sharing. It makes sence now. At first, when you said NE I was thinking NewEngland. Madison was born in Vermont and we lived there for 6 yrs. We came to the midwest in '90 for a job change with my husband. I'm a nurse and work for the federal government so I just transfered to a...

Liza, The more you write the more our girls seem alike. This living 2weeks on 1-2 off antibiotics has been going on for about the last 6-8 months. We used to get about 3 months off. We also have a pulse ox at home which is a life saver. My daughter went on O2 the 26th of Dec as she was feeling...

Liza, The more you write the more our girls seem alike. This living 2weeks on 1-2 off antibiotics has been going on for about the last 6-8 months. We used to get about 3 months off. We also have a pulse ox at home which is a life saver. My daughter went on O2 the 26th of Dec as she was feeling...

Liza, The more you write the more our girls seem alike. This living 2weeks on 1-2 off antibiotics has been going on for about the last 6-8 months. We used to get about 3 months off. We also have a pulse ox at home which is a life saver. My daughter went on O2 the 26th of Dec as she was feeling...

Joanne, Thankyou also for responding, I REALLY do apprieciate it. I'm sure you can hear my frustration, and it's nice to feel that someone is listening. I'm actually so exausted from the stress of this situation and feeling that we have been somewhat abondoned by or healthcare system. I don't...

Joanne, Thankyou also for responding, I REALLY do apprieciate it. I'm sure you can hear my frustration, and it's nice to feel that someone is listening. I'm actually so exausted from the stress of this situation and feeling that we have been somewhat abondoned by or healthcare system. I don't...

Joanne, Thankyou also for responding, I REALLY do apprieciate it. I'm sure you can hear my frustration, and it's nice to feel that someone is listening. I'm actually so exausted from the stress of this situation and feeling that we have been somewhat abondoned by or healthcare system. I don't...

Risa thanks for responding. to answer your question about the current facility transplanting her, I think the answer is no. I do believe that her pulmonologist is trying to give us sound advice about going to another facility, as I think she feels that the #'s at the childrens hospital are too...

Risa thanks for responding. to answer your question about the current facility transplanting her, I think the answer is no. I do believe that her pulmonologist is trying to give us sound advice about going to another facility, as I think she feels that the #'s at the childrens hospital are too...

Risa thanks for responding. to answer your question about the current facility transplanting her, I think the answer is no. I do believe that her pulmonologist is trying to give us sound advice about going to another facility, as I think she feels that the #'s at the childrens hospital are too...

Dude, Ya Know, I think you hit the nail on the head. CF is not a consistant disease, there are no real ways to guantify/ qualify the effects it will have on your life. Just as there are many...