Cystic Fibrosis Forum (EXP)

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  1. C

    waiting for results

    Amy, just out of curiosity, have they done testing for a primary immune deficiency? If not, if a full genetic panel w/deletion testing comes back negative for CF, I'd definitely ask for a full immune workup. It consists of multiple blood draws over a few weeks time. Just a thought.
  2. C

    waiting for results

    Amy, just out of curiosity, have they done testing for a primary immune deficiency? If not, if a full genetic panel w/deletion testing comes back negative for CF, I'd definitely ask for a full immune workup. It consists of multiple blood draws over a few weeks time. Just a thought.
  3. C

    waiting for results

    Amy, just out of curiosity, have they done testing for a primary immune deficiency? If not, if a full genetic panel w/deletion testing comes back negative for CF, I'd definitely ask for a full immune workup. It consists of multiple blood draws over a few weeks time. Just a thought.
  4. C

    **Update**New to board with lots of questions.....

    New to board with lots of questions..... Sorry for the double post.
  5. C

    **Update**New to board with lots of questions.....

    New to board with lots of questions..... Sorry for the double post.
  6. C

    **Update**New to board with lots of questions.....

    New to board with lots of questions..... Sorry for the double post.
  7. C

    **Update**New to board with lots of questions.....

    New to board with lots of questions..... Sorry for the double post.
  8. C

    **Update**New to board with lots of questions.....

    New to board with lots of questions..... Sorry for the double post.
  9. C

    **Update**New to board with lots of questions.....

    New to board with lots of questions..... I agree with everyone else, regardless of the sweat test results, I'd push for the full genetic sequencing through Ambry or Quest. (See Ambry's link at the top of this section). To my (limited knowledge) there are a few other groups of people who are...
  10. C

    **Update**New to board with lots of questions.....

    New to board with lots of questions..... I agree with everyone else, regardless of the sweat test results, I'd push for the full genetic sequencing through Ambry or Quest. (See Ambry's link at the top of this section). To my (limited knowledge) there are a few other groups of people who are...
  11. C

    **Update**New to board with lots of questions.....

    New to board with lots of questions..... I agree with everyone else, regardless of the sweat test results, I'd push for the full genetic sequencing through Ambry or Quest. (See Ambry's link at the top of this section). To my (limited knowledge) there are a few other groups of people who are...
  12. C

    **Update**New to board with lots of questions.....

    New to board with lots of questions..... I agree with everyone else, regardless of the sweat test results, I'd push for the full genetic sequencing through Ambry or Quest. (See Ambry's link at the top of this section). To my (limited knowledge) there are a few other groups of people who are...
  13. C

    **Update**New to board with lots of questions.....

    New to board with lots of questions..... I agree with everyone else, regardless of the sweat test results, I'd push for the full genetic sequencing through Ambry or Quest. (See Ambry's link at the top of this section). To my (limited knowledge) there are a few other groups of people who are...
  14. C

    Advair?

    Advair is also available in MDI form (metered dose inhaler like albuterol, etc.) The MDI form is relatively new to the market in the US but has been used in many other countries for quite a while. If you have trouble with dry powder inhalers, just ask your doctor to re-write your RX for the...
  15. C

    Advair?

    Advair is also available in MDI form (metered dose inhaler like albuterol, etc.) The MDI form is relatively new to the market in the US but has been used in many other countries for quite a while. If you have trouble with dry powder inhalers, just ask your doctor to re-write your RX for the...
  16. C

    Advair?

    Advair is also available in MDI form (metered dose inhaler like albuterol, etc.) The MDI form is relatively new to the market in the US but has been used in many other countries for quite a while. If you have trouble with dry powder inhalers, just ask your doctor to re-write your RX for the...
  17. C

    Advair?

    Advair is also available in MDI form (metered dose inhaler like albuterol, etc.) The MDI form is relatively new to the market in the US but has been used in many other countries for quite a while. If you have trouble with dry powder inhalers, just ask your doctor to re-write your RX for the...
  18. C

    Advair?

    Advair is also available in MDI form (metered dose inhaler like albuterol, etc.) The MDI form is relatively new to the market in the US but has been used in many other countries for quite a while. If you have trouble with dry powder inhalers, just ask your doctor to re-write your RX for the...
  19. C

    I need some advice please!!!!!!!!!!!!!!

    I agree with everyone else - find out which test was done. Ambry and Quest Diagnostics are the only two labs that I know of that do the complete gene analysis. Also, both have much less comprehensive tests, too, so it's important to know exactly which test was done. Last thing, there are...
  20. C

    I need some advice please!!!!!!!!!!!!!!

    I agree with everyone else - find out which test was done. Ambry and Quest Diagnostics are the only two labs that I know of that do the complete gene analysis. Also, both have much less comprehensive tests, too, so it's important to know exactly which test was done. Last thing, there are...
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