Cystic Fibrosis Forum (EXP)

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  1. P

    What to do

    I am sorry to hear what you are going through. My son is 9 and just diagnosed at 8 by sweat tests. We dealt with ENT division at Children's Hospital for 8 years before referred for a sweat test. His symptoms were ear glue, tubes, sinus infections, tonsillectomy, adnoidectomy and sinus cysts. His...
  2. P

    What to do

    I am sorry to hear what you are going through. My son is 9 and just diagnosed at 8 by sweat tests. We dealt with ENT division at Children's Hospital for 8 years before referred for a sweat test. His symptoms were ear glue, tubes, sinus infections, tonsillectomy, adnoidectomy and sinus cysts. <br...
  3. P

    Help!!! Cystic Fibrosis or Not

    yes all 3 were at children's hospital the 1st and 3rd by same ladie and 2nd by someone different
  4. P

    Help!!! Cystic Fibrosis or Not

    yes all 3 were at children's hospital the 1st and 3rd by same ladie and 2nd by someone different
  5. P

    Help!!! Cystic Fibrosis or Not

    yes all 3 were at children's hospital the 1st and 3rd by same ladie and 2nd by someone different
  6. P

    Help!!! Cystic Fibrosis or Not

    Thank you I will. I am also planning to get a copy of ALL his medical records.
  7. P

    Help!!! Cystic Fibrosis or Not

    Thank you I will. I am also planning to get a copy of ALL his medical records.
  8. P

    Help!!! Cystic Fibrosis or Not

    Thank you I will. I am also planning to get a copy of ALL his medical records.
  9. P

    Help!!! Cystic Fibrosis or Not

    To be honest I am not sure what genetic test was done I just know it took about 7 weeks to get the results and Luke's doctor told me that it came back with all unknown mutations.This past year has been so overwhelming to me. His sweat test results were 1st time 48 and 64 2nd time 68 and 64...
  10. P

    Help!!! Cystic Fibrosis or Not

    To be honest I am not sure what genetic test was done I just know it took about 7 weeks to get the results and Luke's doctor told me that it came back with all unknown mutations.This past year has been so overwhelming to me. His sweat test results were 1st time 48 and 64 2nd time 68 and 64...
  11. P

    Help!!! Cystic Fibrosis or Not

    To be honest I am not sure what genetic test was done I just know it took about 7 weeks to get the results and Luke's doctor told me that it came back with all unknown mutations.This past year has been so overwhelming to me. <br />His sweat test results were <br />1st time 48 and 64 <br />2nd...
  12. P

    Help!!! Cystic Fibrosis or Not

    <img src="i/expressions/face-icon-small-confused.gif" border="0"> My son is 8yrs old and in Jan 2010 after dealing with constant ENT issues adnoids and tonsils removed, several tubes, ear glue, sinus cysts and constant cough our doctor sent him for sweat test to rule out CF. I received a call...
  13. P

    Help!!! Cystic Fibrosis or Not

    <img src="i/expressions/face-icon-small-confused.gif" border="0"> My son is 8yrs old and in Jan 2010 after dealing with constant ENT issues adnoids and tonsils removed, several tubes, ear glue, sinus cysts and constant cough our doctor sent him for sweat test to rule out CF. I received a call...
  14. P

    Help!!! Cystic Fibrosis or Not

    <img src="i/expressions/face-icon-small-confused.gif" border="0"> <br />My son is 8yrs old and in Jan 2010 after dealing with constant ENT issues adnoids and tonsils removed, several tubes, ear glue, sinus cysts and constant cough our doctor sent him for sweat test to rule out CF. I received a...
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