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They reached a new contract! The U 0f M clinic will continue to be covered! <img src="i/expressions/face-icon-small-happy.gif" border="0">

<b>Before I was a Mom, </b> I never tripped over toys or forgot words to a lullaby. I didn't worry whether or not my plants were poisonous. I never thought about immunizations. <b>Before I was a Mom -</b> I had never been puked on. Pooped on. Chewed on. Peed on. I had complete control...

Are you having trouble getting the ACETYLCYSTEINE Mucomyst®)? Our local pharmacy (Walgreens) says that it is on long term back order. They have been telling us this since May. My daughter uses the 10% solution. They (walgreens) have told us they have the 20% solution available in stock. I...

Are you having trouble getting the ACETYLCYSTEINE Mucomyst®)? Our local pharmacy (Walgreens) says that it is on long term back order. They have been telling us this since May. My daughter uses the 10% solution. They (walgreens) have told us they have the 20% solution available in stock...

The touchy feely post 'To all parents' made me just want to post something about WONDERFUL children. As the mother of an infant, I wish I could bottle up this feeling and sell it because I would be a rich woman. <img src="i/expressions/face-icon-small-tongue.gif" border="0"> Each and every day...

Someone recently posted that their child got a vest a 6 weeks old. I was really suprised by that. It got me wondering when others have gotten their vests.

PTC Therapeutics Announces $25 Million Award From Cystic Fibrosis Foundation Therapeutics for Development of PTC124 Wednesday July 16, 8:00 am ET - Expanded Collaboration Supports Pivotal Phase 2b Clinical Trials of First Potential Therapy to Address an Underlying Cause of Cystic Fibrosis -...

Emma has not learned how to crawl, instead she is rolling. It is funny. She travel around the floor rolling from her back to stomach then stomach to back. <img src=""> I have heard over and over from people that infants put everything in their mouths. Well, this was not such an issue until...

Just wondering who lives in MN. <img src="i/expressions/face-icon-small-smile.gif" border="0">

I know there is at least one mother on this board that was diagnosed with CF after she had a child who was diagnosed with CF. I need some advice on how to ask my doctor to test me for CF (full panel). I am going to see my Primary physician on July 24 and I want to ask him but I fear he is...

Recently someone posted somthing on their child's CaringBridge site. It is a statement in a book Alex....The life of a Child, by Frank Deford. Deford has a statement in his book. He is talking about all of the medications and treatments and so on it takes to take care of people with CF. He...

Recently someone posted somthing on their child's CaringBridge site. It is a statement in a book Alex....The life of a Child, by Frank Deford. Deford has a statement in his book. He is talking about all of the medications and treatments and so on it takes to take care of people with CF. He...

I got an email from a family member today that has me sitting here bawling. While I was pregnant with Emma my cousin made a mural for my daughter on her bedroom wall. In the middle of this 'present' she asked me to promise that I would bring Emma to see our Grandma once a month for a year as...

Emma has one. It is <a target=_blank class=ftalternatingbarlinklarge href="http://www.caringbridge.org/visit/erl">Emma Rose</a>

How is your child's weight? Are you struggling to get them to gain? Does your clinic watch their weight closely? Do you have any tricks for adding in extra calories? Emma is doing well. She is 15 pounds 10 ounces. She is eating baby food and formula. Our clinic watches her weight very...

Emma is still very young and doing well. But I know that CF is progressive. I am curious how many times your children have been in the hospital. Surgeries, tune-ups, etc. What procedures have they had done? Also, what exactly is a tune-up? I know all people with CF are different... so what...

I came across this website and thought that you and your families might be interested. <b>The Littlest Heroes Project </b>is a non-profit based organization made up of professional photographers nationwide that provide free photo sessions to our nations Littlest Heroes. This is their way of...

Today is Father's Day, so we went to my dad's house for a small get togehter. My stepmom's mother and grandmother came too because they have not seen Emma since she was first born and they want to see her. My stepmom's mother knows that Emma has CF. I am not sure what she knows about CF, but...

Today a beautiful 12 year old girl lost her life to CF. I did not know her personally, but I have followed her mother's journals over the last 6 months. From everything I read, Haley was a wonderful, beautiful child on the inside and out. <a target=_blank class=ftalternatingbarlinklarge...

After your child was diagnosed with CF were you genetically tested? Which test did you do? (tested just for the genes your child has, the limited panel, or the full panel test)? Did you insurance pay? Our clinic offered us the option of being tested, but said I would have to contact the...