Cystic Fibrosis Forum (EXP)

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  1. E

    Trouble giving vitamins - advice?

    When my daughter was young we would put the vitamin in the vial and then put the vial on the side of mouth and as far back as we could without chocking, and then squirt the vitamin in. It would just slid down the throat. By the way-the same technique works on dogs and cats when you need to...
  2. E

    Trouble giving vitamins - advice?

    When my daughter was young we would put the vitamin in the vial and then put the vial on the side of mouth and as far back as we could without chocking, and then squirt the vitamin in. It would just slid down the throat. By the way-the same technique works on dogs and cats when you need to...
  3. E

    Is it possible that I have CF? What do you think? (please answer) :)

    I would get tested. That way you would know one way or the other. You could rule out CF, or if you have it you could start on your path to better health. Just my thought.
  4. E

    Is it possible that I have CF? What do you think? (please answer) :)

    I would get tested. That way you would know one way or the other. You could rule out CF, or if you have it you could start on your path to better health. Just my thought.
  5. E

    Is it possible that I have CF? What do you think? (please answer) :)

    I would get tested. That way you would know one way or the other. You could rule out CF, or if you have it you could start on your path to better health. Just my thought.
  6. E

    Party City has picked Cystic Fibrosis for this month

    is this a national event?
  7. E

    Party City has picked Cystic Fibrosis for this month

    is this a national event?
  8. E

    Party City has picked Cystic Fibrosis for this month

    is this a national event?
  9. E

    Parents Perspective

    We have a 17yo with cf. Some of the challenges we have had over the years have been the schools, a kindergarten teacher that "forgot" to send her to the office for pills repeatedly. But mostly teachers were helpful because we were up front with her needs. It helps that she has always known...
  10. E

    Parents Perspective

    We have a 17yo with cf. Some of the challenges we have had over the years have been the schools, a kindergarten teacher that "forgot" to send her to the office for pills repeatedly. But mostly teachers were helpful because we were up front with her needs. It helps that she has always known...
  11. E

    Parents Perspective

    We have a 17yo with cf. Some of the challenges we have had over the years have been the schools, a kindergarten teacher that "forgot" to send her to the office for pills repeatedly. But mostly teachers were helpful because we were up front with her needs. It helps that she has always known...
  12. E

    enzymes in hospital

    We always take out own meds. This last time we were in the Pharmacy staff came up, labeled all our meds wrote them down and we took our own and they knew it this time, no hiding them. Our motto- Have Drugs will Travel. It ends up being cheaper, why pay double or triple for the meds when i...
  13. E

    enzymes in hospital

    We always take out own meds. This last time we were in the Pharmacy staff came up, labeled all our meds wrote them down and we took our own and they knew it this time, no hiding them. Our motto- Have Drugs will Travel. It ends up being cheaper, why pay double or triple for the meds when i...
  14. E

    enzymes in hospital

    We always take out own meds. This last time we were in the Pharmacy staff came up, labeled all our meds wrote them down and we took our own and they knew it this time, no hiding them. Our motto- Have Drugs will Travel. It ends up being cheaper, why pay double or triple for the meds when i...
  15. E

    ANOTHER CF CHILD AT MY DAUGHTER'S SCHOOL

    We are dealing with this but on a different level. My daughter and another girl from the same CF clinic will be attending the same college in the fall, and pursing the same career, nursing. It is a small liberal arts school and they will be in the same classroom together for many classes. We...
  16. E

    ANOTHER CF CHILD AT MY DAUGHTER'S SCHOOL

    We are dealing with this but on a different level. My daughter and another girl from the same CF clinic will be attending the same college in the fall, and pursing the same career, nursing. It is a small liberal arts school and they will be in the same classroom together for many classes. We...
  17. E

    ANOTHER CF CHILD AT MY DAUGHTER'S SCHOOL

    We are dealing with this but on a different level. My daughter and another girl from the same CF clinic will be attending the same college in the fall, and pursing the same career, nursing. It is a small liberal arts school and they will be in the same classroom together for many classes. We...
  18. E

    Pseudomomas

    We had been on TOBI for many years, on the 28 days on, 28 days off cycle. My daughter always felt better when she did the TOBI. She is off now as she is doing the Cayston 28 on, 28 off. The only side affect she had on TOBI was that her voice got really raspy, sounded kind of like an old women...
  19. E

    Pseudomomas

    We had been on TOBI for many years, on the 28 days on, 28 days off cycle. My daughter always felt better when she did the TOBI. She is off now as she is doing the Cayston 28 on, 28 off. The only side affect she had on TOBI was that her voice got really raspy, sounded kind of like an old women...
  20. E

    Pseudomomas

    We had been on TOBI for many years, on the 28 days on, 28 days off cycle. My daughter always felt better when she did the TOBI. She is off now as she is doing the Cayston 28 on, 28 off. The only side affect she had on TOBI was that her voice got really raspy, sounded kind of like an old women...
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