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Our doc said he "wants to discuss Hypertonic Saline" at our next appointment, which is coming up next week! I have read everything I can get my hands on. I saw the recent post in the adult section and it reminded me that I needed to ask you guys if any of your kiddos are on it.
I'm all for it...
This is kinda funny, but really more sad, at least to me.
We went out to a highschool football game last night and on the way home drove through Starbucks (mocha frappucino addiction for Mom). The girls each got a cinnamon swirl cookie.
Katy: "Mom, I need an enzyme"
Me: "It's okay sweetie...
They swabbed Katy at her doc visit last Monday and they called today to report that her culture was clear of everything! She had cultured PA in early September and is in the middle of a 3 month solid TOBI regimen (among other things, as you know).
Although my husband and I are very happy, I...
Katy developed a fever Saturday. Clingy, no appetite; no
other symptoms at all but she says her head hurts. We've
complicated our lives by changing pediatricians but that process
isn't complete yet so I called the cf doc's office to try to get an
idea about what to look for or when to be...
My 3-year-old was diagnosed 18 days ago because of GI problems.
Her first throat swab cultured PA (quite a shock, as she had
not exhibited any signs of respiratory symptoms). We are on
Cipro and Zithromax, inhaled Tobi, Pulmozyne, Ursodiol (blood work
revealed high liver enzyme count), Creon...
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