Cystic Fibrosis Forum (EXP)

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  1. D

    Alex saw endo today.. CFRD?

    No, cfrd is different to type 1. Type 1 is caused by an immune response where your body attacks and destroys the beta cells which make insulin in the pancreas. Type 1 are insulin dependent from onset. Cfrd is caused by steroids like pregnisone, the pancreas not working properly and being sick...
  2. D

    Alex saw endo today.. CFRD?

    No, cfrd is different to type 1. Type 1 is caused by an immune response where your body attacks and destroys the beta cells which make insulin in the pancreas. Type 1 are insulin dependent from onset. Cfrd is caused by steroids like pregnisone, the pancreas not working properly and being sick...
  3. D

    Alex saw endo today.. CFRD?

    No, cfrd is different to type 1. Type 1 is caused by an immune response where your body attacks and destroys the beta cells which make insulin in the pancreas. Type 1 are insulin dependent from onset. Cfrd is caused by steroids like pregnisone, the pancreas not working properly and being sick...
  4. D

    Alex saw endo today.. CFRD?

    No, cfrd is different to type 1. Type 1 is caused by an immune response where your body attacks and destroys the beta cells which make insulin in the pancreas. Type 1 are insulin dependent from onset. <br /> <br />Cfrd is caused by steroids like pregnisone, the pancreas not working properly and...
  5. D

    Gene Mutations?

    Yeh, so double Df508 means that the individual has two copies of the df508 gene, as opposed to my kids who have df508 + G551D. If you know you have df508 I would be assuming you may have two copies of that gene. I think that approx. 70% (could be wrong) of pwcf have the df508, it's the most...
  6. D

    Gene Mutations?

    Yeh, so double Df508 means that the individual has two copies of the df508 gene, as opposed to my kids who have df508 + G551D. If you know you have df508 I would be assuming you may have two copies of that gene. I think that approx. 70% (could be wrong) of pwcf have the df508, it's the most...
  7. D

    Gene Mutations?

    Yeh, so double Df508 means that the individual has two copies of the df508 gene, as opposed to my kids who have df508 + G551D. If you know you have df508 I would be assuming you may have two copies of that gene. I think that approx. 70% (could be wrong) of pwcf have the df508, it's the most...
  8. D

    Gene Mutations?

    Yeh, so double Df508 means that the individual has two copies of the df508 gene, as opposed to my kids who have df508 + G551D. If you know you have df508 I would be assuming you may have two copies of that gene. I think that approx. 70% (could be wrong) of pwcf have the df508, it's the most...
  9. D

    Gene Mutations?

    Yeh, so double Df508 means that the individual has two copies of the df508 gene, as opposed to my kids who have df508 + G551D. <br /> <br />If you know you have df508 I would be assuming you may have two copies of that gene. I think that approx. 70% (could be wrong) of pwcf have the df508, it's...
  10. D

    3 in 1...Gallstones, pen pals and telling your child the outcome

    Hi Mechelle I dont have any info on gallstones, but as far as the outcomes of cf and talking about them goes: Firstly, I would never use the term 'terminal', but use the term 'chronic'. Cf is not terminal in the way cancer and such can be. You do not know the outcome for your child, and you...
  11. D

    3 in 1...Gallstones, pen pals and telling your child the outcome

    Hi Mechelle I dont have any info on gallstones, but as far as the outcomes of cf and talking about them goes: Firstly, I would never use the term 'terminal', but use the term 'chronic'. Cf is not terminal in the way cancer and such can be. You do not know the outcome for your child, and you...
  12. D

    3 in 1...Gallstones, pen pals and telling your child the outcome

    Hi Mechelle I dont have any info on gallstones, but as far as the outcomes of cf and talking about them goes: Firstly, I would never use the term 'terminal', but use the term 'chronic'. Cf is not terminal in the way cancer and such can be. You do not know the outcome for your child, and you...
  13. D

    3 in 1...Gallstones, pen pals and telling your child the outcome

    Hi Mechelle I dont have any info on gallstones, but as far as the outcomes of cf and talking about them goes: Firstly, I would never use the term 'terminal', but use the term 'chronic'. Cf is not terminal in the way cancer and such can be. You do not know the outcome for your child, and you...
  14. D

    3 in 1...Gallstones, pen pals and telling your child the outcome

    Hi Mechelle <br /> <br />I dont have any info on gallstones, but as far as the outcomes of cf and talking about them goes: <br /> <br />Firstly, I would never use the term 'terminal', but use the term 'chronic'. Cf is not terminal in the way cancer and such can be. You do not know the outcome...
  15. D

    I was just diagnosed with B. Cepacia! What is B. Cepacia???

    HI Mary I just cannot believe that you have only just found out that you have cepacia!! That clinic you are in is incompetent! Cepacia is the reason that separation of cf people was instigated world wide approx twenty years ago. Cepacia patients usually visit clinic on separate days and are...
  16. D

    I was just diagnosed with B. Cepacia! What is B. Cepacia???

    HI Mary I just cannot believe that you have only just found out that you have cepacia!! That clinic you are in is incompetent! Cepacia is the reason that separation of cf people was instigated world wide approx twenty years ago. Cepacia patients usually visit clinic on separate days and are...
  17. D

    I was just diagnosed with B. Cepacia! What is B. Cepacia???

    HI Mary I just cannot believe that you have only just found out that you have cepacia!! That clinic you are in is incompetent! Cepacia is the reason that separation of cf people was instigated world wide approx twenty years ago. Cepacia patients usually visit clinic on separate days and are...
  18. D

    I was just diagnosed with B. Cepacia! What is B. Cepacia???

    HI Mary I just cannot believe that you have only just found out that you have cepacia!! That clinic you are in is incompetent! Cepacia is the reason that separation of cf people was instigated world wide approx twenty years ago. Cepacia patients usually visit clinic on separate days and are...
  19. D

    I was just diagnosed with B. Cepacia! What is B. Cepacia???

    HI Mary <br /> <br />I just cannot believe that you have only just found out that you have cepacia!! That clinic you are in is incompetent! Cepacia is the reason that separation of cf people was instigated world wide approx twenty years ago. <br /> <br />Cepacia patients usually visit clinic on...
  20. D

    Latest update

    oh that's all good news Robin <img src="i/expressions/face-icon-small-smile.gif" border="0"> Glad the new year has started off on a positive note for you...hope things keep looking up <img src="i/expressions/face-icon-small-smile.gif" border="0">
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