Cystic Fibrosis Forum (EXP)

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  1. A

    Does your child wear a mask to clinic?

    Our experience has been, they are made available for the patients - it's up to them whether or not they want to utilize them or not. My daughter started wearing them several years ago. My son has never worn one.
  2. A

    Does your child wear a mask to clinic?

    Our experience has been, they are made available for the patients - it's up to them whether or not they want to utilize them or not. My daughter started wearing them several years ago. My son has never worn one.
  3. A

    Does your child wear a mask to clinic?

    Our experience has been, they are made available for the patients - it's up to them whether or not they want to utilize them or not. My daughter started wearing them several years ago. My son has never worn one.
  4. A

    Does your child wear a mask to clinic?

    Our experience has been, they are made available for the patients - it's up to them whether or not they want to utilize them or not. My daughter started wearing them several years ago. My son has never worn one.
  5. A

    Does your child wear a mask to clinic?

    Our experience has been, they are made available for the patients - it's up to them whether or not they want to utilize them or not. <br /> <br />My daughter started wearing them several years ago. My son has never worn one.
  6. A

    Newly Diagnosed ?

    I'm not sure I fall into the category of who you would like to hear from, since both my kids do have genetically confirmed cases, but I wanted to say hello and let you know we are here for you. My kids sweat tests are 38 and 41 "normal" and just into the borderline area. The one with the score...
  7. A

    Newly Diagnosed ?

    I'm not sure I fall into the category of who you would like to hear from, since both my kids do have genetically confirmed cases, but I wanted to say hello and let you know we are here for you. My kids sweat tests are 38 and 41 "normal" and just into the borderline area. The one with the score...
  8. A

    Newly Diagnosed ?

    I'm not sure I fall into the category of who you would like to hear from, since both my kids do have genetically confirmed cases, but I wanted to say hello and let you know we are here for you. My kids sweat tests are 38 and 41 "normal" and just into the borderline area. The one with the score...
  9. A

    Newly Diagnosed ?

    I'm not sure I fall into the category of who you would like to hear from, since both my kids do have genetically confirmed cases, but I wanted to say hello and let you know we are here for you. My kids sweat tests are 38 and 41 "normal" and just into the borderline area. The one with the score...
  10. A

    Newly Diagnosed ?

    I'm not sure I fall into the category of who you would like to hear from, since both my kids do have genetically confirmed cases, but I wanted to say hello and let you know we are here for you. <br /> <br />My kids sweat tests are 38 and 41 "normal" and just into the borderline area. The one...
  11. A

    Help 9 yr old son very athletic can this be right?

    Unfortunately your story is not all that unfamiliar. Many people with CF are very athletic and show little other symptoms besides sinus problems. My son didn't show any symptoms until 21 years old. Hang in there. Oh, and by the way my kids sweat test numbers are 38 and 41, so again yes someone...
  12. A

    Help 9 yr old son very athletic can this be right?

    Unfortunately your story is not all that unfamiliar. Many people with CF are very athletic and show little other symptoms besides sinus problems. My son didn't show any symptoms until 21 years old. Hang in there. Oh, and by the way my kids sweat test numbers are 38 and 41, so again yes someone...
  13. A

    Help 9 yr old son very athletic can this be right?

    Unfortunately your story is not all that unfamiliar. Many people with CF are very athletic and show little other symptoms besides sinus problems. My son didn't show any symptoms until 21 years old. Hang in there. Oh, and by the way my kids sweat test numbers are 38 and 41, so again yes someone...
  14. A

    Help 9 yr old son very athletic can this be right?

    Unfortunately your story is not all that unfamiliar. Many people with CF are very athletic and show little other symptoms besides sinus problems. My son didn't show any symptoms until 21 years old. Hang in there. Oh, and by the way my kids sweat test numbers are 38 and 41, so again yes someone...
  15. A

    Help 9 yr old son very athletic can this be right?

    Unfortunately your story is not all that unfamiliar. Many people with CF are very athletic and show little other symptoms besides sinus problems. <br /> <br />My son didn't show any symptoms until 21 years old. <br /> <br />Hang in there. Oh, and by the way my kids sweat test numbers are 38 and...
  16. A

    Do you clean the spacer for an inhaler?

    Wow, what a variety of responses! My take on it is, washing and sanitizing once a week is what should be done. Do we do that? No, but we should :-) I cannot imagine washing it every day though like at least one other person said.
  17. A

    Do you clean the spacer for an inhaler?

    Wow, what a variety of responses! My take on it is, washing and sanitizing once a week is what should be done. Do we do that? No, but we should :-) I cannot imagine washing it every day though like at least one other person said.
  18. A

    Do you clean the spacer for an inhaler?

    Wow, what a variety of responses! My take on it is, washing and sanitizing once a week is what should be done. Do we do that? No, but we should :-) I cannot imagine washing it every day though like at least one other person said.
  19. A

    Do you clean the spacer for an inhaler?

    Wow, what a variety of responses! My take on it is, washing and sanitizing once a week is what should be done. Do we do that? No, but we should :-) I cannot imagine washing it every day though like at least one other person said.
  20. A

    Do you clean the spacer for an inhaler?

    Wow, what a variety of responses! <br /> <br />My take on it is, washing and sanitizing once a week is what should be done. Do we do that? No, but we should :-) <br /> <br />I cannot imagine washing it every day though like at least one other person said. <br /> <br />
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