Cystic Fibrosis Forum (EXP)

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  1. K

    Cheyenne is in Club Med

    Awww man - I am so sorry to hear this! I hope they figure it all out and get her to where she feels better. Pronto. You guys need a longer and better break from all of this nonsense. I hate CF. Many Hugs and Prayers being sent your way.
  2. K

    Cheyenne is in Club Med

    Awww man - I am so sorry to hear this! I hope they figure it all out and get her to where she feels better. Pronto. You guys need a longer and better break from all of this nonsense. I hate CF. Many Hugs and Prayers being sent your way.
  3. K

    Cheyenne is in Club Med

    Awww man - I am so sorry to hear this! I hope they figure it all out and get her to where she feels better. Pronto. You guys need a longer and better break from all of this nonsense. I hate CF. Many Hugs and Prayers being sent your way.
  4. K

    Cheyenne is in Club Med

    Awww man - I am so sorry to hear this! I hope they figure it all out and get her to where she feels better. Pronto. You guys need a longer and better break from all of this nonsense. I hate CF. Many Hugs and Prayers being sent your way.
  5. K

    Cheyenne is in Club Med

    Awww man - I am so sorry to hear this! I hope they figure it all out and get her to where she feels better. Pronto. You guys need a longer and better break from all of this nonsense. I hate CF. Many Hugs and Prayers being sent your way.
  6. K

    Being tested for CF...

    Our daughter presented only with GI issues but her growth chart percentiles were <i>falling</i>, not maintaining at a steady (albeit low) percentile. There is a difference. Also, she was constantly hungry and her BM's were bulky and greasy (sorry TMI) and lots of tummy distension, pain. All...
  7. K

    Being tested for CF...

    Our daughter presented only with GI issues but her growth chart percentiles were <i>falling</i>, not maintaining at a steady (albeit low) percentile. There is a difference. Also, she was constantly hungry and her BM's were bulky and greasy (sorry TMI) and lots of tummy distension, pain. All...
  8. K

    Being tested for CF...

    Our daughter presented only with GI issues but her growth chart percentiles were <i>falling</i>, not maintaining at a steady (albeit low) percentile. There is a difference. Also, she was constantly hungry and her BM's were bulky and greasy (sorry TMI) and lots of tummy distension, pain. All...
  9. K

    Being tested for CF...

    Our daughter presented only with GI issues but her growth chart percentiles were <i>falling</i>, not maintaining at a steady (albeit low) percentile. There is a difference. Also, she was constantly hungry and her BM's were bulky and greasy (sorry TMI) and lots of tummy distension, pain. All...
  10. K

    Being tested for CF...

    Our daughter presented only with GI issues but her growth chart percentiles were <i>falling</i>, not maintaining at a steady (albeit low) percentile. There is a difference. Also, she was constantly hungry and her BM's were bulky and greasy (sorry TMI) and lots of tummy distension, pain. All...
  11. K

    Q's (Paul's) passing

    This is such sad news but now he is free from pain. I am glad I saved a couple of bits of his incredible writing, wish I'd saved more. Peace Q.
  12. K

    Q's (Paul's) passing

    This is such sad news but now he is free from pain. I am glad I saved a couple of bits of his incredible writing, wish I'd saved more. Peace Q.
  13. K

    Q's (Paul's) passing

    This is such sad news but now he is free from pain. I am glad I saved a couple of bits of his incredible writing, wish I'd saved more. Peace Q.
  14. K

    Q's (Paul's) passing

    This is such sad news but now he is free from pain. I am glad I saved a couple of bits of his incredible writing, wish I'd saved more. Peace Q.
  15. K

    Q's (Paul's) passing

    This is such sad news but now he is free from pain. I am glad I saved a couple of bits of his incredible writing, wish I'd saved more. Peace Q.
  16. K

    Non-formulary Drug - Update at the end

    Non-formulary Drug Hey Liza - Katy took 3 ml of 50 mg/ml Urso so I think that's the same dose as your DS but its early. Over the summer the doc switched her to a 250 mg tablet. She is right at 50 pounds. Of all the meds she is on, the Urso gave us the most problem because of the need for...
  17. K

    Non-formulary Drug - Update at the end

    Non-formulary Drug Hey Liza - Katy took 3 ml of 50 mg/ml Urso so I think that's the same dose as your DS but its early. Over the summer the doc switched her to a 250 mg tablet. She is right at 50 pounds. Of all the meds she is on, the Urso gave us the most problem because of the need for...
  18. K

    Non-formulary Drug - Update at the end

    Non-formulary Drug Hey Liza - Katy took 3 ml of 50 mg/ml Urso so I think that's the same dose as your DS but its early. Over the summer the doc switched her to a 250 mg tablet. She is right at 50 pounds. Of all the meds she is on, the Urso gave us the most problem because of the need for...
  19. K

    Non-formulary Drug - Update at the end

    Non-formulary Drug Hey Liza - Katy took 3 ml of 50 mg/ml Urso so I think that's the same dose as your DS but its early. Over the summer the doc switched her to a 250 mg tablet. She is right at 50 pounds. Of all the meds she is on, the Urso gave us the most problem because of the need for...
  20. K

    Non-formulary Drug - Update at the end

    Non-formulary Drug Hey Liza - Katy took 3 ml of 50 mg/ml Urso so I think that's the same dose as your DS but its early. Over the summer the doc switched her to a 250 mg tablet. She is right at 50 pounds. <br /> <br />Of all the meds she is on, the Urso gave us the most problem because of the...
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