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Hi Lori,
I don't think the numbers will be filled by then. There's only going to be 5 children where we go to participate in the study and I know they wanted darin to try it. I guess there waiting till March because of scheduling? I'm not sure I talked to the lady in charge of it and that's...
Hi Lori,
I don't think the numbers will be filled by then. There's only going to be 5 children where we go to participate in the study and I know they wanted darin to try it. I guess there waiting till March because of scheduling? I'm not sure I talked to the lady in charge of it and that's...
Hi Lori,
I don't think the numbers will be filled by then. There's only going to be 5 children where we go to participate in the study and I know they wanted darin to try it. I guess there waiting till March because of scheduling? I'm not sure I talked to the lady in charge of it and that's...
Hi Lori, Are you going to get your son in the clinical trial for denufosal? My son Darin who is 9 is going to start in March. We are excited and hope it will be beneficial to him and everyone!! Let me know if your son does, I would be curicious to see how he does.
Laurie
Hi Lori, Are you going to get your son in the clinical trial for denufosal? My son Darin who is 9 is going to start in March. We are excited and hope it will be beneficial to him and everyone!! Let me know if your son does, I would be curicious to see how he does.
Laurie
Hi Lori, Are you going to get your son in the clinical trial for denufosal? My son Darin who is 9 is going to start in March. We are excited and hope it will be beneficial to him and everyone!! Let me know if your son does, I would be curicious to see how he does.
Laurie
Hi Julie, thanks for the no hard feelings. I understand your last post. Thanks for the well wishes.
I told darin that he would be helping himself and many others that have CF if he participates in the clinical trial. So hopefully we can keep encouraging him. Have a great day everyone...
Hi Julie, thanks for the no hard feelings. I understand your last post. Thanks for the well wishes.
I told darin that he would be helping himself and many others that have CF if he participates in the clinical trial. So hopefully we can keep encouraging him. Have a great day everyone...
Hi Julie, thanks for the no hard feelings. I understand your last post. Thanks for the well wishes.
I told darin that he would be helping himself and many others that have CF if he participates in the clinical trial. So hopefully we can keep encouraging him. Have a great day everyone...
It is exciting but my son really doesn't want to do it. So were trying to talk him into it. I think it's because it's more visits to the clinic and more blood work which he should be used too. It will be a year trial. He'll either be on the new med or placebo for the first 24 weeks, we won't...
It is exciting but my son really doesn't want to do it. So were trying to talk him into it. I think it's because it's more visits to the clinic and more blood work which he should be used too. It will be a year trial. He'll either be on the new med or placebo for the first 24 weeks, we won't...
It is exciting but my son really doesn't want to do it. So were trying to talk him into it. I think it's because it's more visits to the clinic and more blood work which he should be used too. It will be a year trial. He'll either be on the new med or placebo for the first 24 weeks, we won't...
O.K. Emily, I think we talked back and forth enough about this. I did have my husband read over the posts to get his opinion and he agrees with both our point of views. Actually, he understands what you meant in your first posting. This is off topic but did you hear about the new potential...
O.K. Emily, I think we talked back and forth enough about this. I did have my husband read over the posts to get his opinion and he agrees with both our point of views. Actually, he understands what you meant in your first posting. This is off topic but did you hear about the new potential...
O.K. Emily, I think we talked back and forth enough about this. I did have my husband read over the posts to get his opinion and he agrees with both our point of views. Actually, he understands what you meant in your first posting. This is off topic but did you hear about the new potential...
I'm sure people with CF do think about dying,but like I said we are all going to of something. My son isn't a teenager yet so maybe I'll go through that with him who knows? But I know he doesn't think about that right now. We'll just have to except our diffrent opinions about it.
Laurie
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