Cystic Fibrosis Forum (EXP)

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  1. P

    Help for my mom and I

    Okay It has been forever since I have been on here or posted. We have been through the usual life of a cf'er, Brandon is now one as of June 6. He was in and out of the office all winter long with what was thought to be a cold.I know that Psudamonas usually starts with a cold of some sort. He...
  2. P

    Help for my mom and I

    Okay It has been forever since I have been on here or posted. We have been through the usual life of a cf'er, Brandon is now one as of June 6. He was in and out of the office all winter long with what was thought to be a cold.I know that Psudamonas usually starts with a cold of some sort. He...
  3. P

    Help for my mom and I

    Okay It has been forever since I have been on here or posted. We have been through the usual life of a cf'er, Brandon is now one as of June 6. He was in and out of the office all winter long with what was thought to be a cold.I know that Psudamonas usually starts with a cold of some sort. He...
  4. P

    Help for my mom and I

    Okay It has been forever since I have been on here or posted. We have been through the usual life of a cf'er, Brandon is now one as of June 6. He was in and out of the office all winter long with what was thought to be a cold.I know that Psudamonas usually starts with a cold of some sort. He...
  5. P

    Help for my mom and I

    Okay It has been forever since I have been on here or posted. We have been through the usual life of a cf'er, Brandon is now one as of June 6. He was in and out of the office all winter long with what was thought to be a cold.I know that Psudamonas usually starts with a cold of some sort. He...
  6. P

    How to help a family who has lost a child???

    When I lost my brother I was 15 he was 17 ( non CF) it was hard and alot of things you didn't think about or care about at that time... I remember the best thing people did was not to ask and just showed up with food... we weren't going to be cooking or paying attention to eating really so it...
  7. P

    How to help a family who has lost a child???

    When I lost my brother I was 15 he was 17 ( non CF) it was hard and alot of things you didn't think about or care about at that time... I remember the best thing people did was not to ask and just showed up with food... we weren't going to be cooking or paying attention to eating really so it...
  8. P

    How to help a family who has lost a child???

    When I lost my brother I was 15 he was 17 ( non CF) it was hard and alot of things you didn't think about or care about at that time... I remember the best thing people did was not to ask and just showed up with food... we weren't going to be cooking or paying attention to eating really so it...
  9. P

    How to help a family who has lost a child???

    When I lost my brother I was 15 he was 17 ( non CF) it was hard and alot of things you didn't think about or care about at that time... I remember the best thing people did was not to ask and just showed up with food... we weren't going to be cooking or paying attention to eating really so it...
  10. P

    How to help a family who has lost a child???

    When I lost my brother I was 15 he was 17 ( non CF) it was hard and alot of things you didn't think about or care about at that time... I remember the best thing people did was not to ask and just showed up with food... we weren't going to be cooking or paying attention to eating really so it...
  11. P

    Dealing with the Holidays

    It is sad how people really don't get it and it seems like you want family to know more and understand. We went to our last minute Thanksgiving/ Christmas becasue they planned Christmas at a smokers house ( unknowingly to us) They just realized this would be an issue after dh went off on his...
  12. P

    Dealing with the Holidays

    It is sad how people really don't get it and it seems like you want family to know more and understand. We went to our last minute Thanksgiving/ Christmas becasue they planned Christmas at a smokers house ( unknowingly to us) They just realized this would be an issue after dh went off on his...
  13. P

    Dealing with the Holidays

    It is sad how people really don't get it and it seems like you want family to know more and understand. We went to our last minute Thanksgiving/ Christmas becasue they planned Christmas at a smokers house ( unknowingly to us) They just realized this would be an issue after dh went off on his...
  14. P

    Dealing with the Holidays

    It is sad how people really don't get it and it seems like you want family to know more and understand. We went to our last minute Thanksgiving/ Christmas becasue they planned Christmas at a smokers house ( unknowingly to us) They just realized this would be an issue after dh went off on his...
  15. P

    Dealing with the Holidays

    It is sad how people really don't get it and it seems like you want family to know more and understand. <br />We went to our last minute Thanksgiving/ Christmas becasue they planned Christmas at a smokers house ( unknowingly to us) They just realized this would be an issue after dh went off on...
  16. P

    The Mauli Ola Foundation

    my cousin is 27 with cf and lives in California, I passed your message her way this sounds so fun, I think its a great idea. when we were in Florida and my son started to get flare up from inconsiderate smokers we took him to the beach and he started to drain everything out that night it helped...
  17. P

    The Mauli Ola Foundation

    my cousin is 27 with cf and lives in California, I passed your message her way this sounds so fun, I think its a great idea. when we were in Florida and my son started to get flare up from inconsiderate smokers we took him to the beach and he started to drain everything out that night it helped...
  18. P

    The Mauli Ola Foundation

    my cousin is 27 with cf and lives in California, I passed your message her way this sounds so fun, I think its a great idea. when we were in Florida and my son started to get flare up from inconsiderate smokers we took him to the beach and he started to drain everything out that night it helped...
  19. P

    The Mauli Ola Foundation

    my cousin is 27 with cf and lives in California, I passed your message her way this sounds so fun, I think its a great idea. when we were in Florida and my son started to get flare up from inconsiderate smokers we took him to the beach and he started to drain everything out that night it helped...
  20. P

    The Mauli Ola Foundation

    my cousin is 27 with cf and lives in California, I passed your message her way this sounds so fun, I think its a great idea. <br />when we were in Florida and my son started to get flare up from inconsiderate smokers we took him to the beach and he started to drain everything out that night it...
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