Cystic Fibrosis Forum (EXP)

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  1. R

    Burkholderia Cepacia...

    I have b cepacia complex as well. Genomovars I have are Burkholderia/Ralstonia/Pandoraea and I also have Cenocepacia. From what I have read the cenocepacia is among the worst. The three levels of b cepacia are 1. dormant in some cf patients 2. causes deteriation over time 3. cepacia...
  2. R

    Burkholderia Cepacia...

    I have b cepacia complex as well. Genomovars I have are Burkholderia/Ralstonia/Pandoraea and I also have Cenocepacia. From what I have read the cenocepacia is among the worst. The three levels of b cepacia are 1. dormant in some cf patients 2. causes deteriation over time 3. cepacia...
  3. R

    Burkholderia Cepacia...

    I have b cepacia complex as well. Genomovars I have are Burkholderia/Ralstonia/Pandoraea and I also have Cenocepacia. From what I have read the cenocepacia is among the worst. The three levels of b cepacia are 1. dormant in some cf patients 2. causes deteriation over time 3. cepacia...
  4. R

    Burkholderia Cepacia...

    I have b cepacia complex as well. Genomovars I have are Burkholderia/Ralstonia/Pandoraea and I also have Cenocepacia. From what I have read the cenocepacia is among the worst. The three levels of b cepacia are 1. dormant in some cf patients 2. causes deteriation over time 3. cepacia...
  5. R

    Burkholderia Cepacia...

    I have b cepacia complex as well. Genomovars I have are Burkholderia/Ralstonia/Pandoraea and I also have Cenocepacia. From what I have read the cenocepacia is among the worst. The three levels of b cepacia are <br /> <br /> 1. dormant in some cf patients <br /> 2. causes deteriation over...
  6. R

    CF Pharmacy

    I use the cf pharmacy out of San Antonio, Texas. I love it b/c I dont have to get out in the cold or heat and get my meds. The local pharmacy here that I was using didn't have a clue about putting the most expensive ones on my medicaid card letting me pay for the cheap ones. The only thing I...
  7. R

    CF Pharmacy

    I use the cf pharmacy out of San Antonio, Texas. I love it b/c I dont have to get out in the cold or heat and get my meds. The local pharmacy here that I was using didn't have a clue about putting the most expensive ones on my medicaid card letting me pay for the cheap ones. The only thing I...
  8. R

    CF Pharmacy

    I use the cf pharmacy out of San Antonio, Texas. I love it b/c I dont have to get out in the cold or heat and get my meds. The local pharmacy here that I was using didn't have a clue about putting the most expensive ones on my medicaid card letting me pay for the cheap ones. The only thing I...
  9. R

    CF Pharmacy

    I use the cf pharmacy out of San Antonio, Texas. I love it b/c I dont have to get out in the cold or heat and get my meds. The local pharmacy here that I was using didn't have a clue about putting the most expensive ones on my medicaid card letting me pay for the cheap ones. The only thing I...
  10. R

    CF Pharmacy

    I use the cf pharmacy out of San Antonio, Texas. I love it b/c I dont have to get out in the cold or heat and get my meds. The local pharmacy here that I was using didn't have a clue about putting the most expensive ones on my medicaid card letting me pay for the cheap ones. The only thing I...
  11. R

    Turmeric

    I take tumeric 2 -1x a day they are 500 mg. I also take ibuprofen for a constant back pain . And so far I have had no problems with it. I take it b/c of the mrsa. Don't know if it helps but I haven't got any of the sores at all and neither has my husband since we started taking it. I have...
  12. R

    Turmeric

    I take tumeric 2 -1x a day they are 500 mg. I also take ibuprofen for a constant back pain . And so far I have had no problems with it. I take it b/c of the mrsa. Don't know if it helps but I haven't got any of the sores at all and neither has my husband since we started taking it. I have...
  13. R

    Turmeric

    I take tumeric 2 -1x a day they are 500 mg. I also take ibuprofen for a constant back pain . And so far I have had no problems with it. I take it b/c of the mrsa. Don't know if it helps but I haven't got any of the sores at all and neither has my husband since we started taking it. I have...
  14. R

    Turmeric

    I take tumeric 2 -1x a day they are 500 mg. I also take ibuprofen for a constant back pain . And so far I have had no problems with it. I take it b/c of the mrsa. Don't know if it helps but I haven't got any of the sores at all and neither has my husband since we started taking it. I have...
  15. R

    Turmeric

    I take tumeric 2 -1x a day they are 500 mg. I also take ibuprofen for a constant back pain . And so far I have had no problems with it. I take it b/c of the mrsa. Don't know if it helps but I haven't got any of the sores at all and neither has my husband since we started taking it. I have...
  16. R

    doctors never listen

    My local pcp doesn't know a lot about cf . It would be scary to be in the hospital without my cf doctor. regina/44/w/cf
  17. R

    doctors never listen

    My local pcp doesn't know a lot about cf . It would be scary to be in the hospital without my cf doctor. regina/44/w/cf
  18. R

    doctors never listen

    My local pcp doesn't know a lot about cf . It would be scary to be in the hospital without my cf doctor. regina/44/w/cf
  19. R

    doctors never listen

    My local pcp doesn't know a lot about cf . It would be scary to be in the hospital without my cf doctor. regina/44/w/cf
  20. R

    doctors never listen

    My local pcp doesn't know a lot about cf . It would be scary to be in the hospital without my cf doctor. <br /> <br /> <br /> <br /> regina/44/w/cf
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