Cystic Fibrosis Forum (EXP)

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  1. R

    some advice

    Sorry forgot which topic i was in regina/44
  2. R

    some advice

    Sorry forgot which topic i was in regina/44
  3. R

    some advice

    Sorry forgot which topic i was in regina/44
  4. R

    some advice

    Sorry forgot which topic i was in regina/44
  5. R

    some advice

    Sorry forgot which topic i was in <br /> <br /> regina/44
  6. R

    some advice

    I have had the regular flu shot, but not since i got bad with the cepacia . So i am thinking about not getting the vaccine (H1N1). Does it give you a touch of the virus? I don't think my lungs will survive that. The doc said they couldn't give me the meropenum again because the side effects are...
  7. R

    some advice

    I have had the regular flu shot, but not since i got bad with the cepacia . So i am thinking about not getting the vaccine (H1N1). Does it give you a touch of the virus? I don't think my lungs will survive that. The doc said they couldn't give me the meropenum again because the side effects are...
  8. R

    some advice

    I have had the regular flu shot, but not since i got bad with the cepacia . So i am thinking about not getting the vaccine (H1N1). Does it give you a touch of the virus? I don't think my lungs will survive that. The doc said they couldn't give me the meropenum again because the side effects are...
  9. R

    some advice

    I have had the regular flu shot, but not since i got bad with the cepacia . So i am thinking about not getting the vaccine (H1N1). Does it give you a touch of the virus? I don't think my lungs will survive that. The doc said they couldn't give me the meropenum again because the side effects are...
  10. R

    some advice

    I have had the regular flu shot, but not since i got bad with the cepacia . So i am thinking about not getting the vaccine (H1N1). Does it give you a touch of the virus? I don't think my lungs will survive that. The doc said they couldn't give me the meropenum again because the side effects are...
  11. R

    vest sizes

    Do they make portable size vest that you can take on the road . The one my sister had was huge and very heavy. And am i asking too much to say that you can use it on a adapter to a cig lighter in the car ( like for my updraft machine) regina/44/w/cf
  12. R

    vest sizes

    Do they make portable size vest that you can take on the road . The one my sister had was huge and very heavy. And am i asking too much to say that you can use it on a adapter to a cig lighter in the car ( like for my updraft machine) regina/44/w/cf
  13. R

    vest sizes

    Do they make portable size vest that you can take on the road . The one my sister had was huge and very heavy. And am i asking too much to say that you can use it on a adapter to a cig lighter in the car ( like for my updraft machine) regina/44/w/cf
  14. R

    vest sizes

    Do they make portable size vest that you can take on the road . The one my sister had was huge and very heavy. And am i asking too much to say that you can use it on a adapter to a cig lighter in the car ( like for my updraft machine) regina/44/w/cf
  15. R

    vest sizes

    Do they make portable size vest that you can take on the road . The one my sister had was huge and very heavy. And am i asking too much to say that you can use it on a adapter to a cig lighter in the car ( like for my updraft machine) <br /> <br />regina/44/w/cf <br /> <br />
  16. R

    Who are you in a nut shell

    My name is regina I am female and 44 and 5' 4" I live in Searcy, Arkansas I have cf I weigh 129 I had to quit work in jan/2009 I have 2 daughters (23&16) no/cf I have one grandson (2 yrs old) no cf I have 2 brothers ( one is healthy 41 yrs old )( one has m.s. 40 yrs old ) I have a sister died...
  17. R

    Hypertonic Saline tolerance test?

    They didnt make do pft's . I just started using it. I did bleed some at first and every now and then ,but now I think its my throat and not my lungs. It is hard on the throat. I too drink something during to wash it off my throat. But it helps a lot with getting the gunk out...
  18. R

    98,000 deaths a year......

    When I was in the hospital they gave me another cf patients iv bag (meropenum) , by some small miracle it was the same kind just wrong patient. That is really scary. I wanted someone to stay with me I was too sick to watch their every move regina /b cepacia complex /...
  19. R

    98,000 deaths a year......

    When I was in the hospital they gave me another cf patients iv bag (meropenum) , by some small miracle it was the same kind just wrong patient. That is really scary. I wanted someone to stay with me I was too sick to watch their every move regina /b cepacia complex /...
  20. R

    98,000 deaths a year......

    When I was in the hospital they gave me another cf patients iv bag (meropenum) , by some small miracle it was the same kind just wrong patient. That is really scary. I wanted someone to stay with me I was too sick to watch their every move regina /b cepacia complex /...
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