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I couldn't stand it anymore (that's just the kind of girl I am) <img src="i/expressions/face-icon-small-wink.gif" border="0"><img src=""> so I went to Genzyme's website and looked at their description of the "97 Mutation Analysis". <a target=_blank class=ftalternatingbarlinklarge...

I couldn't stand it anymore (that's just the kind of girl I am) <img src="i/expressions/face-icon-small-wink.gif" border="0"><img src=""> so I went to Genzyme's website and looked at their description of the "97 Mutation Analysis". <a target=_blank class=ftalternatingbarlinklarge...

I couldn't stand it anymore (that's just the kind of girl I am) <img src="i/expressions/face-icon-small-wink.gif" border="0"><img src=""> so I went to Genzyme's website and looked at their description of the "97 Mutation Analysis". <a target=_blank class=ftalternatingbarlinklarge...

I couldn't stand it anymore (that's just the kind of girl I am) <img src="i/expressions/face-icon-small-wink.gif" border="0"><img src=""> so I went to Genzyme's website and looked at their description of the "97 Mutation Analysis". <a target=_blank class=ftalternatingbarlinklarge...

I couldn't stand it anymore (that's just the kind of girl I am) <img src="i/expressions/face-icon-small-wink.gif" border="0"><img src=""> so I went to Genzyme's website and looked at their description of the "97 Mutation Analysis". <br /> <br /><a target=_blank class=ftalternatingbarlinklarge...

I am sure you are VERY worried and confused. I am as well, because it is one thing to keep pushing docs that aren't familiar with CF. It seems odd, though, that a pulmo with CF experience would treat you this way. Your doc's answer to the Ambry question is baffling to me. I'm not sure I...

I am sure you are VERY worried and confused. I am as well, because it is one thing to keep pushing docs that aren't familiar with CF. It seems odd, though, that a pulmo with CF experience would treat you this way. Your doc's answer to the Ambry question is baffling to me. I'm not sure I...

I am sure you are VERY worried and confused. I am as well, because it is one thing to keep pushing docs that aren't familiar with CF. It seems odd, though, that a pulmo with CF experience would treat you this way. Your doc's answer to the Ambry question is baffling to me. I'm not sure I...

I am sure you are VERY worried and confused. I am as well, because it is one thing to keep pushing docs that aren't familiar with CF. It seems odd, though, that a pulmo with CF experience would treat you this way. Your doc's answer to the Ambry question is baffling to me. I'm not sure I...

I am sure you are VERY worried and confused. <br /> <br />I am as well, because it is one thing to keep pushing docs that aren't familiar with CF. It seems odd, though, that a pulmo with CF experience would treat you this way. Your doc's answer to the Ambry question is baffling to me. <br />...

Yes, I saw this through Nate's blog. It is completely heartbreaking. Breathe easy Haley. <img src="i/expressions/heart.gif" border="0">

Yes, I saw this through Nate's blog. It is completely heartbreaking. Breathe easy Haley. <img src="i/expressions/heart.gif" border="0">

Yes, I saw this through Nate's blog. It is completely heartbreaking. Breathe easy Haley. <img src="i/expressions/heart.gif" border="0">

Yes, I saw this through Nate's blog. It is completely heartbreaking. Breathe easy Haley. <img src="i/expressions/heart.gif" border="0">

Yes, I saw this through Nate's blog. It is completely heartbreaking. Breathe easy Haley. <img src="i/expressions/heart.gif" border="0">

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>jdprecious</b></i> Jaelyn is currently in the study for Denufosol as well. The first six mos she was on placebo.</end quote></div> Hi Jessica - this is great to hear about Jaelyn. Thanks for posting, because I didn't pay attention...

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>jdprecious</b></i> Jaelyn is currently in the study for Denufosol as well. The first six mos she was on placebo.</end quote></div> Hi Jessica - this is great to hear about Jaelyn. Thanks for posting, because I didn't pay attention...

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>jdprecious</b></i> Jaelyn is currently in the study for Denufosol as well. The first six mos she was on placebo.</end quote></div> Hi Jessica - this is great to hear about Jaelyn. Thanks for posting, because I didn't pay attention...

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>jdprecious</b></i> Jaelyn is currently in the study for Denufosol as well. The first six mos she was on placebo.</end quote> Hi Jessica - this is great to hear about Jaelyn. Thanks for posting, because I didn't pay attention about...

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>jdprecious</b></i> <br /> <br />Jaelyn is currently in the study for Denufosol as well. The first six mos she was on placebo.</end quote> <br /> <br />Hi Jessica - this is great to hear about Jaelyn. Thanks for posting, because I...