Cystic Fibrosis Forum (EXP)

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  1. C

    Pray for TIN

    Has anyone heard anything today? I am nervous because nothing has been posted on her carepages, and her family has been faithfully posting daily. Ellie has been on my mind and in my prayers all day.
  2. C

    Pray for TIN

    Has anyone heard anything today? I am nervous because nothing has been posted on her carepages, and her family has been faithfully posting daily. Ellie has been on my mind and in my prayers all day.
  3. C

    Pray for TIN

    Has anyone heard anything today? I am nervous because nothing has been posted on her carepages, and her family has been faithfully posting daily. Ellie has been on my mind and in my prayers all day.
  4. C

    Pray for TIN

    Has anyone heard anything today? I am nervous because nothing has been posted on her carepages, and her family has been faithfully posting daily. Ellie has been on my mind and in my prayers all day.
  5. C

    Pray for TIN

    Has anyone heard anything today? I am nervous because nothing has been posted on her carepages, and her family has been faithfully posting daily. Ellie has been on my mind and in my prayers all day.
  6. C

    Which clinical trial are you in?

    I just went through my consent form for the Vertex study -to refresh my memory on what is forbidden to discuss. It does state that we are not to discuss our personal results in any tupe of open forum, or public online place. We are however allowed to discuss it with friends, family and through...
  7. C

    Which clinical trial are you in?

    I just went through my consent form for the Vertex study -to refresh my memory on what is forbidden to discuss. It does state that we are not to discuss our personal results in any tupe of open forum, or public online place. We are however allowed to discuss it with friends, family and through...
  8. C

    Which clinical trial are you in?

    I just went through my consent form for the Vertex study -to refresh my memory on what is forbidden to discuss. It does state that we are not to discuss our personal results in any tupe of open forum, or public online place. We are however allowed to discuss it with friends, family and through...
  9. C

    Which clinical trial are you in?

    I just went through my consent form for the Vertex study -to refresh my memory on what is forbidden to discuss. It does state that we are not to discuss our personal results in any tupe of open forum, or public online place. We are however allowed to discuss it with friends, family and through...
  10. C

    Which clinical trial are you in?

    I just went through my consent form for the Vertex study -to refresh my memory on what is forbidden to discuss. It does state that we are not to discuss our personal results in any tupe of open forum, or public online place. We are however allowed to discuss it with friends, family and through...
  11. C

    SWINE FLU N MRSA

    I haven't worn a mask (yet), but I sure do a TON of hand washing, a TON of Purell, and then a TON more hand washing...all the time. I am also avoiding things like door handles, elevator buttons (use my elbow, or carry tissue with me). I also avoid crowded places.
  12. C

    SWINE FLU N MRSA

    I haven't worn a mask (yet), but I sure do a TON of hand washing, a TON of Purell, and then a TON more hand washing...all the time. I am also avoiding things like door handles, elevator buttons (use my elbow, or carry tissue with me). I also avoid crowded places.
  13. C

    SWINE FLU N MRSA

    I haven't worn a mask (yet), but I sure do a TON of hand washing, a TON of Purell, and then a TON more hand washing...all the time. I am also avoiding things like door handles, elevator buttons (use my elbow, or carry tissue with me). I also avoid crowded places.
  14. C

    SWINE FLU N MRSA

    I haven't worn a mask (yet), but I sure do a TON of hand washing, a TON of Purell, and then a TON more hand washing...all the time. I am also avoiding things like door handles, elevator buttons (use my elbow, or carry tissue with me). I also avoid crowded places.
  15. C

    SWINE FLU N MRSA

    I haven't worn a mask (yet), but I sure do a TON of hand washing, a TON of Purell, and then a TON more hand washing...all the time. I am also avoiding things like door handles, elevator buttons (use my elbow, or carry tissue with me). I also avoid crowded places.
  16. C

    I might lose my job!

    Why would he put that????!!!! We are encouraged so heavily (at least my clinic does) to live a "normal" life. That is a possible way to end you living your "normal" life...and over what? A few lung infections? I thought that most of the bacterias we culture anyways can only be passed between...
  17. C

    I might lose my job!

    Why would he put that????!!!! We are encouraged so heavily (at least my clinic does) to live a "normal" life. That is a possible way to end you living your "normal" life...and over what? A few lung infections? I thought that most of the bacterias we culture anyways can only be passed between...
  18. C

    I might lose my job!

    Why would he put that????!!!! We are encouraged so heavily (at least my clinic does) to live a "normal" life. That is a possible way to end you living your "normal" life...and over what? A few lung infections? I thought that most of the bacterias we culture anyways can only be passed between...
  19. C

    I might lose my job!

    Why would he put that????!!!! We are encouraged so heavily (at least my clinic does) to live a "normal" life. That is a possible way to end you living your "normal" life...and over what? A few lung infections? I thought that most of the bacterias we culture anyways can only be passed between...
  20. C

    I might lose my job!

    Why would he put that????!!!! We are encouraged so heavily (at least my clinic does) to live a "normal" life. That is a possible way to end you living your "normal" life...and over what? A few lung infections? I thought that most of the bacterias we culture anyways can only be passed between...
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