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I have met this family "in real life" and Cheyenne is an absolute doll. She has had a really tough time but you would never know if from her sweet and happy spirit. Take care Debbie and Chey and I will be praying for you. <img src="i/expressions/heart.gif" border="0">

I have met this family "in real life" and Cheyenne is an absolute doll. She has had a really tough time but you would never know if from her sweet and happy spirit. Take care Debbie and Chey and I will be praying for you. <img src="i/expressions/heart.gif" border="0">

I have met this family "in real life" and Cheyenne is an absolute doll. She has had a really tough time but you would never know if from her sweet and happy spirit. Take care Debbie and Chey and I will be praying for you. <img src="i/expressions/heart.gif" border="0">

I have met this family "in real life" and Cheyenne is an absolute doll. She has had a really tough time but you would never know if from her sweet and happy spirit. Take care Debbie and Chey and I will be praying for you. <img src="i/expressions/heart.gif" border="0">

I have met this family "in real life" and Cheyenne is an absolute doll. She has had a really tough time but you would never know if from her sweet and happy spirit. Take care Debbie and Chey and I will be praying for you. <img src="i/expressions/heart.gif" border="0">

Barbara - I responded in the Families section before I saw your post here. We are in the OKC area as well. Dr. Santiago Reyes is fabulous and is a pediatric pulmonologist with LOTS of experience with CF (he is not currently associated with the OKC CF Center but used to be). There is not a...

Barbara - I responded in the Families section before I saw your post here. We are in the OKC area as well. Dr. Santiago Reyes is fabulous and is a pediatric pulmonologist with LOTS of experience with CF (he is not currently associated with the OKC CF Center but used to be). There is not a...

Barbara - I responded in the Families section before I saw your post here. We are in the OKC area as well. Dr. Santiago Reyes is fabulous and is a pediatric pulmonologist with LOTS of experience with CF (he is not currently associated with the OKC CF Center but used to be). There is not a...

Barbara - I responded in the Families section before I saw your post here. We are in the OKC area as well. Dr. Santiago Reyes is fabulous and is a pediatric pulmonologist with LOTS of experience with CF (he is not currently associated with the OKC CF Center but used to be). There is not a...

Barbara - I responded in the Families section before I saw your post here. We are in the OKC area as well. Dr. Santiago Reyes is fabulous and is a pediatric pulmonologist with LOTS of experience with CF (he is not currently associated with the OKC CF Center but used to be). There is not a...

The short version of our dx story is that our daughter had a rectal prolapse in the 5-day period while we were waiting for the results on a sweat test. I'm sorry to say that the research I did at the time indicated that a rectal prolapse (in the "developed" world) very likely means CF. I don't...

The short version of our dx story is that our daughter had a rectal prolapse in the 5-day period while we were waiting for the results on a sweat test. I'm sorry to say that the research I did at the time indicated that a rectal prolapse (in the "developed" world) very likely means CF. I don't...

The short version of our dx story is that our daughter had a rectal prolapse in the 5-day period while we were waiting for the results on a sweat test. I'm sorry to say that the research I did at the time indicated that a rectal prolapse (in the "developed" world) very likely means CF. I don't...

The short version of our dx story is that our daughter had a rectal prolapse in the 5-day period while we were waiting for the results on a sweat test. I'm sorry to say that the research I did at the time indicated that a rectal prolapse (in the "developed" world) very likely means CF. I don't...

The short version of our dx story is that our daughter had a rectal prolapse in the 5-day period while we were waiting for the results on a sweat test. I'm sorry to say that the research I did at the time indicated that a rectal prolapse (in the "developed" world) very likely means CF. <br />...

I have a similar experience as Julie - Katy was diagnosed at age 3 years and 3 months, after an extended battle with her pediatrician. Our state added newborn screening in February of 2006, I believe.

I have a similar experience as Julie - Katy was diagnosed at age 3 years and 3 months, after an extended battle with her pediatrician. Our state added newborn screening in February of 2006, I believe.

I have a similar experience as Julie - Katy was diagnosed at age 3 years and 3 months, after an extended battle with her pediatrician. Our state added newborn screening in February of 2006, I believe.

I have a similar experience as Julie - Katy was diagnosed at age 3 years and 3 months, after an extended battle with her pediatrician. Our state added newborn screening in February of 2006, I believe.

I have a similar experience as Julie - Katy was diagnosed at age 3 years and 3 months, after an extended battle with her pediatrician. Our state added newborn screening in February of 2006, I believe.