Cystic Fibrosis Forum (EXP)

This is a sample guest message. Register a free account today to become a member! Once signed in, you'll be able to participate on this site by adding your own topics and posts, as well as connect with other members through your own private inbox!

Search results

  1. G

    clinic visit

    Hey Julie. I just wanted to say that I am pretty sure that the reason the doctor wants you to take a month off of the Tobi is so that you will not grow resistance to it as fast. Psuedamonas is a pretty nasty bug and it can grow resistance quickly. Right now I have a strain that is pretty much...
  2. G

    Second Opinion Doc?

    Thanks for all the great advice! I think I might try UNC because I do want to go to a care center that is already well established in adult care. It will be over a five hour drive but if they can give me hope it will be well worth it.
  3. G

    Second Opinion Doc?

    Thanks for all the great advice! I think I might try UNC because I do want to go to a care center that is already well established in adult care. It will be over a five hour drive but if they can give me hope it will be well worth it.
  4. G

    Second Opinion Doc?

    Thanks for all the great advice! I think I might try UNC because I do want to go to a care center that is already well established in adult care. It will be over a five hour drive but if they can give me hope it will be well worth it.
  5. G

    Second Opinion Doc?

    Thanks for all the great advice! I think I might try UNC because I do want to go to a care center that is already well established in adult care. It will be over a five hour drive but if they can give me hope it will be well worth it.
  6. G

    Second Opinion Doc?

    Thanks for all the great advice! I think I might try UNC because I do want to go to a care center that is already well established in adult care. It will be over a five hour drive but if they can give me hope it will be well worth it.
  7. G

    Second Opinion Doc?

    Hey. I was just wondering if anybody could recommend a good CF doctor in Georgia or South Carolina? I have went down pretty fast in the last 2 months and I feel like my doctor does not know what to do. (I do love him to death though--having a little second opinion guilt.). The CF center I go...
  8. G

    Second Opinion Doc?

    Hey. I was just wondering if anybody could recommend a good CF doctor in Georgia or South Carolina? I have went down pretty fast in the last 2 months and I feel like my doctor does not know what to do. (I do love him to death though--having a little second opinion guilt.). The CF center I go...
  9. G

    Second Opinion Doc?

    Hey. I was just wondering if anybody could recommend a good CF doctor in Georgia or South Carolina? I have went down pretty fast in the last 2 months and I feel like my doctor does not know what to do. (I do love him to death though--having a little second opinion guilt.). The CF center I go...
  10. G

    Second Opinion Doc?

    Hey. I was just wondering if anybody could recommend a good CF doctor in Georgia or South Carolina? I have went down pretty fast in the last 2 months and I feel like my doctor does not know what to do. (I do love him to death though--having a little second opinion guilt.). The CF center I go...
  11. G

    Second Opinion Doc?

    Hey. I was just wondering if anybody could recommend a good CF doctor in Georgia or South Carolina? I have went down pretty fast in the last 2 months and I feel like my doctor does not know what to do. (I do love him to death though--having a little second opinion guilt.). The CF center I go...
  12. G

    What next?

    Hey Laura. I am actually going through the exact same thing. At the beginning of May, I started a four week stint on iv abx after an FEV1 drop of over 16%. After the four weeks my pfts have not budged and I am stuck at FEV1 42% after staying between 56-62% the last four years. They quit...
  13. G

    What next?

    Hey Laura. I am actually going through the exact same thing. At the beginning of May, I started a four week stint on iv abx after an FEV1 drop of over 16%. After the four weeks my pfts have not budged and I am stuck at FEV1 42% after staying between 56-62% the last four years. They quit...
  14. G

    What next?

    Hey Laura. I am actually going through the exact same thing. At the beginning of May, I started a four week stint on iv abx after an FEV1 drop of over 16%. After the four weeks my pfts have not budged and I am stuck at FEV1 42% after staying between 56-62% the last four years. They quit...
  15. G

    What next?

    Hey Laura. I am actually going through the exact same thing. At the beginning of May, I started a four week stint on iv abx after an FEV1 drop of over 16%. After the four weeks my pfts have not budged and I am stuck at FEV1 42% after staying between 56-62% the last four years. They quit...
  16. G

    What next?

    Hey Laura. I am actually going through the exact same thing. At the beginning of May, I started a four week stint on iv abx after an FEV1 drop of over 16%. After the four weeks my pfts have not budged and I am stuck at FEV1 42% after staying between 56-62% the last four years. They quit...
  17. G

    Newcomer to forum

    No bronch. My doctor said it could just push me down farther?.. I did have the same problem when I was 16 though and the bronch showed I had Mycobacterium abcessus even though my sputum cultures did not show it. Maybe I should push for the bronch. Thanks for your opinion <img...
  18. G

    Newcomer to forum

    No bronch. My doctor said it could just push me down farther?.. I did have the same problem when I was 16 though and the bronch showed I had Mycobacterium abcessus even though my sputum cultures did not show it. Maybe I should push for the bronch. Thanks for your opinion <img...
  19. G

    Newcomer to forum

    No bronch. My doctor said it could just push me down farther?.. I did have the same problem when I was 16 though and the bronch showed I had Mycobacterium abcessus even though my sputum cultures did not show it. Maybe I should push for the bronch. Thanks for your opinion <img...
  20. G

    Newcomer to forum

    No bronch. My doctor said it could just push me down farther?.. I did have the same problem when I was 16 though and the bronch showed I had Mycobacterium abcessus even though my sputum cultures did not show it. Maybe I should push for the bronch. Thanks for your opinion <img...
Top