Cystic Fibrosis Forum (EXP)

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  1. P

    extremely frustrated

    so we tell them first thing that we are interested in a vest and we measured his chest already and he is 16 inches( which 2 weeks ago one of the nurses said it had to be at least 13) the nurse today says well thats good I think they have to be 19 or 21 inches and blew it off...grrr then our dr...
  2. P

    extremely frustrated

    so we tell them first thing that we are interested in a vest and we measured his chest already and he is 16 inches( which 2 weeks ago one of the nurses said it had to be at least 13) the nurse today says well thats good I think they have to be 19 or 21 inches and blew it off...grrr then our dr...
  3. P

    extremely frustrated

    so we tell them first thing that we are interested in a vest and we measured his chest already and he is 16 inches( which 2 weeks ago one of the nurses said it had to be at least 13) the nurse today says well thats good I think they have to be 19 or 21 inches and blew it off...grrr then our dr...
  4. P

    extremely frustrated

    so we tell them first thing that we are interested in a vest and we measured his chest already and he is 16 inches( which 2 weeks ago one of the nurses said it had to be at least 13) the nurse today says well thats good I think they have to be 19 or 21 inches and blew it off...grrr then our dr...
  5. P

    extremely frustrated

    so we tell them first thing that we are interested in a vest and we measured his chest already and he is 16 inches( which 2 weeks ago one of the nurses said it had to be at least 13) the nurse today says well thats good I think they have to be 19 or 21 inches and blew it off...grrr <br />then...
  6. P

    Please teach me how you handle road trips?

    If you are planning on getting a bottle sanitizer, I would use that to sanitize nebs too. this is what I do at home anyway. I have the avent brand bottle sanitizer so you fill the bottom with regular water and it steams in the microwave for 5 minutes and wala! this way you can use it for bottles...
  7. P

    Please teach me how you handle road trips?

    If you are planning on getting a bottle sanitizer, I would use that to sanitize nebs too. this is what I do at home anyway. I have the avent brand bottle sanitizer so you fill the bottom with regular water and it steams in the microwave for 5 minutes and wala! this way you can use it for bottles...
  8. P

    Please teach me how you handle road trips?

    If you are planning on getting a bottle sanitizer, I would use that to sanitize nebs too. this is what I do at home anyway. I have the avent brand bottle sanitizer so you fill the bottom with regular water and it steams in the microwave for 5 minutes and wala! this way you can use it for bottles...
  9. P

    Please teach me how you handle road trips?

    If you are planning on getting a bottle sanitizer, I would use that to sanitize nebs too. this is what I do at home anyway. I have the avent brand bottle sanitizer so you fill the bottom with regular water and it steams in the microwave for 5 minutes and wala! this way you can use it for bottles...
  10. P

    Please teach me how you handle road trips?

    If you are planning on getting a bottle sanitizer, I would use that to sanitize nebs too. this is what I do at home anyway. I have the avent brand bottle sanitizer so you fill the bottom with regular water and it steams in the microwave for 5 minutes and wala! this way you can use it for bottles...
  11. P

    Not eating enough?!?!?!

    maybe try adding cereal to all bottles
  12. P

    Not eating enough?!?!?!

    maybe try adding cereal to all bottles
  13. P

    Not eating enough?!?!?!

    maybe try adding cereal to all bottles
  14. P

    Not eating enough?!?!?!

    maybe try adding cereal to all bottles
  15. P

    Not eating enough?!?!?!

    maybe try adding cereal to all bottles
  16. P

    Having a hard time getting my baby to gain weight.

    my son is almost 3 months and is at 13 pounds as of 2 weeks ago. I ended up switching him myself to goats milk and I put brown rice syrup in it to sweeten it and fatten it. we also add a formula size scoop per oz of liquid If you have questions about this message me
  17. P

    Having a hard time getting my baby to gain weight.

    my son is almost 3 months and is at 13 pounds as of 2 weeks ago. I ended up switching him myself to goats milk and I put brown rice syrup in it to sweeten it and fatten it. we also add a formula size scoop per oz of liquid If you have questions about this message me
  18. P

    Having a hard time getting my baby to gain weight.

    my son is almost 3 months and is at 13 pounds as of 2 weeks ago. I ended up switching him myself to goats milk and I put brown rice syrup in it to sweeten it and fatten it. we also add a formula size scoop per oz of liquid If you have questions about this message me
  19. P

    Having a hard time getting my baby to gain weight.

    my son is almost 3 months and is at 13 pounds as of 2 weeks ago. I ended up switching him myself to goats milk and I put brown rice syrup in it to sweeten it and fatten it. we also add a formula size scoop per oz of liquid If you have questions about this message me
  20. P

    Having a hard time getting my baby to gain weight.

    my son is almost 3 months and is at 13 pounds as of 2 weeks ago. I ended up switching him myself to goats milk and I put brown rice syrup in it to sweeten it and fatten it. we also add a formula size scoop per oz of liquid <br />If you have questions about this message me
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