Cystic Fibrosis Forum (EXP)

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  1. B

    Infant CPT

    We have been doing CPT's on my 9 month old since she was 2 months. Every night she screams and wrestles with us. I thought eventually she would learn it is part of the evening and be okay with it. NOPE! We have tried singing, listening to music, popsicles, books, stuffed animals, talking...
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    Dylan was doing GREAT then BAM!!

    Avery has a G-tube and is on a drip at night, but she is only 9 months. So I don't think the amount she drips at night would help any...BUT...we have the Joey pump and measure the formula in a bottle first, dump it in, and program the amount we need to end in 10 hours. Every morning we wake up...
  3. B

    Dylan was doing GREAT then BAM!!

    Avery has a G-tube and is on a drip at night, but she is only 9 months. So I don't think the amount she drips at night would help any...BUT...we have the Joey pump and measure the formula in a bottle first, dump it in, and program the amount we need to end in 10 hours. Every morning we wake up...
  4. B

    Dylan was doing GREAT then BAM!!

    Avery has a G-tube and is on a drip at night, but she is only 9 months. So I don't think the amount she drips at night would help any...BUT...we have the Joey pump and measure the formula in a bottle first, dump it in, and program the amount we need to end in 10 hours. Every morning we wake up...
  5. B

    Dylan was doing GREAT then BAM!!

    Avery has a G-tube and is on a drip at night, but she is only 9 months. So I don't think the amount she drips at night would help any...BUT...we have the Joey pump and measure the formula in a bottle first, dump it in, and program the amount we need to end in 10 hours. Every morning we wake up...
  6. B

    Dylan was doing GREAT then BAM!!

    Avery has a G-tube and is on a drip at night, but she is only 9 months. So I don't think the amount she drips at night would help any...BUT...we have the Joey pump and measure the formula in a bottle first, dump it in, and program the amount we need to end in 10 hours. Every morning we wake up...
  7. B

    hospital packing list

    Great idea Robert!
  8. B

    hospital packing list

    Great idea Robert!
  9. B

    hospital packing list

    Great idea Robert!
  10. B

    hospital packing list

    Great idea Robert!
  11. B

    hospital packing list

    Great idea Robert! <br />
  12. B

    Exciting News Today!!!

    Yeah!
  13. B

    Exciting News Today!!!

    Yeah!
  14. B

    Exciting News Today!!!

    Yeah!
  15. B

    Exciting News Today!!!

    Yeah!
  16. B

    Exciting News Today!!!

    Yeah!
  17. B

    Really sore Bum

    We had the same issue. We tried desitin, butt paste, aquaphor, etc. When she does get a sore bottom we use Critic Aid. I had to ask my pharmacist to order it for me. It stays on and doesn't come off with a simple wipe and it heals. I found it on a thread here awhile back. It is for adult...
  18. B

    Really sore Bum

    We had the same issue. We tried desitin, butt paste, aquaphor, etc. When she does get a sore bottom we use Critic Aid. I had to ask my pharmacist to order it for me. It stays on and doesn't come off with a simple wipe and it heals. I found it on a thread here awhile back. It is for adult...
  19. B

    Really sore Bum

    We had the same issue. We tried desitin, butt paste, aquaphor, etc. When she does get a sore bottom we use Critic Aid. I had to ask my pharmacist to order it for me. It stays on and doesn't come off with a simple wipe and it heals. I found it on a thread here awhile back. It is for adult...
  20. B

    Really sore Bum

    We had the same issue. We tried desitin, butt paste, aquaphor, etc. When she does get a sore bottom we use Critic Aid. I had to ask my pharmacist to order it for me. It stays on and doesn't come off with a simple wipe and it heals. I found it on a thread here awhile back. It is for adult...
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