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If we plan on running, Jeremy does his vest first - He coughs up more gunk, and he feels better when we're running. If we're hiking - he does an albuterol/atrovent neb first.
When we're walking, climbing or weight lifting - he doesn't have any problems.
After looking at my conference materials, I have to side with Uli... you should call your clinic.
Unexplained weight loss is a symptom of CFRD. Other symptoms are a drop in PFTs, increased thirst and increased urination. The other symptoms they list are ones that apply to growing kids.
If...
Mmmm, coffee. I like mine flavored. I have a few postcards from Montana Coffee Traders in my cube at work - Flathead Cherry, Huckleberry, and Glacier Blend. Nummy.
Dang it! Now I want coffee...
Welcome Coffee!
Your clinic doesn't do the ogtt? Ours includes it in the yearly studies. I think they start testing people when they're 8-14, earlier if they have symptoms.
I would say to ask your clinic at the next visit.
I was just at a CF conference, and I have a list of the symptoms at home.
I know that excessive thirst and urination is one of the more serious symptoms.
When was the last time you had a oral glucose tolerance test? Do you have a glucose meter? If so, what is your fasting blood sugar?
-Michelle
Why not - I'll add mine to the mix.
I had gotten a livejournal account in January 2003. I was just finishing college, and having zero luck in finding a job (I still don't have a good one). I was pretty miserable about the whole life-in-general situation. I made a post in early April...
RE:NEW info for cystic fibrosis .... some help here!
The product is called Sol-U-Guard and is sold through Melaleuca... which depending on where you look is either a multi-level-marketing scam, or the best thing ever. I didn't look enough to give an opinion.
Personally, I'm inclined to call...
Looks like I'm going to herd cats.
I'm about 5'8 with curly (ringlets) brownish hair. Jeremy has long hair (shoulder length).
We'll be all cute and togethery - should make us easier to spot.
-Michelle
<blockquote>Quote
<hr><i>Originally posted by: <b>Anonymous</b></i>
Type O is the universal blood type. Someone with O negative can give blood to anyone.
O+ can give to anyone except O-.<hr></blockquote>
That's not true.
Here's a nice list.
A+ can get blood from A+, A-, O+, O-
B+ can get...
Is he underweight?
Has he had his vitamin levels checked? Is he getting what he needs nutritionally?
Are his doctors (nutritionist included) affiliated with an accredited CF center?
Jess - you ARE doing something. You may not be able to help him physically - but you have done wonders for him mentally. Just by being there for him you are helping him. It may not sound like much - but judging from what Allan's written about you, it means the world to him to have you at his...
I would do it in an instant! Fortunately, I'm type O+ (I'm pretty sure he's a + as well).
My father (and some others in the family) donated blood for my grandfather when he had one of his heart surgeries. I don't think it's that uncommon.
I see one major flaw with this.
Jeremy won't play video games during his vest therapies. The vibration of the vest keeps him from being able to properly control the game. The fine motor control required for most fun games just isn't there when you're shaking.
About the only games that are...
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