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My thoughts are with you both. -Michelle

Have you ever done a Great Strides walk? Maybe you could use that as an opportunity to teach your friends and family about CF.

The 4 periods a year pill is Seasonale. While I don't know about any of the issues of CF/bc pill/periods... My experience with Seasonale has been wonderful. I get absolutely horrible cramps - and having them 4 times a year instead of 13 is a miracle. I haven't had any of the break-through...

Here's what I know. Previously, we had a SportNeb (I can't remember if it was a Super or not). It just couldn't handle the volume of nebulization Jeremy requires (if you have to do more than 30 minutes continuous - it's going to have a short life span from overuse). We had two die on us in...

<blockquote>Quote<br><hr><i>Originally posted by: <b>Anonymous</b></i><br>You dont even know the guy for goodness sakes<hr></blockquote> And since he's banned we aren't likely to. You get the same answer as his other friend. Contribute something worthwhile or leave.

I'm sorry, but there is no way to misinterpret what he wrote in a few cases. He backpedalled with 'Oh I didn't mean it THAT way' (not a direct quote, my interpretation). I've said it before and I'll say it again. I have no problem with people being religious and talking about it on the...

Why are you continuing to post? You aren't adding any value to the board by rehashing locked arguements. You aren't adding value to the boards by contributing meaningful content. You aren't using the boards to vent/get support/anything in relation to CF. It appears to me that you are just...

Hehe, Professor Farnsworth.

<blockquote>Quote <hr><i>Originally posted by: <b>ccflewallen</b></i> Listen, as an athiest you obviously didnt even know what I was trying to say, so you had no business trying to interpret it. ANd you have no business suggesting that "not" do something. Negative people do a good job of...

<blockquote>Quote<br><hr><i>Originally posted by: <b>ccflewallen</b></i><br>I am saying however, that I think God could heal him if he did truely believe.<hr></blockquote> That is the most disgusting thing I have ever seen posted on this board. What the heck kind of "God" would punish someone...

Coll - I was talking about the saline that gets mixed for us - it's not in ampules. Your ampules should be fine.

Our pharmacy gives it a 30-day shelf life, and it needs to be kept cold. We had to go around and around with the pharmacy and insurance, since to get ampules was going to be expensive, and it wouldn't cover X% or Y%... blah blah blah. I'd talk to your pharmacy.

It should NOT cost $750 a month. It's salt water. SALT AND WATER. Bullcrap. You need to have words with your pharmacy - or go elsewhere, asap. All I know is that Fairview mixes it up for us, and it's about $11/month for the saline and another $10 for the syringes to draw it out. I think...

<blockquote>Quote<br><hr><i>Originally posted by: <b>Anonymous</b></i><br>we wouldn't be rushed in the Am with treatment and trying to get to school on time. <hr></blockquote> The main concern i have with this line of thought is that when your child grows up and joins the workforce, they're...

Really, I don't think this poster came here looking to have fire and brimstone judgement passed upon her. If she wanted that, she'd be posting on a pro-life board. That said, if none of you have anything supportive to say - DON'T SAY ANYTHING. You may not agree with the poster - THAT DOESN'T...

Everything I've seen about this man screams "Con artist" - Even if he DID promote a "cure" - I wouldn't believe it for a second.

The pharmacy at Fairview Hospital has the IV lab mix ours up for us. We ended up getting the run around trying to find it before they decided to mix it up for us.

I second the advice to get allergy tested first. Cats (and to a lesser extent, dogs) bother my asthma (I'm not a CFer), and Jeremy says he feels worse after spending time with cats. If you aren't allergic - I'd say go for it. I know Jeremy really enjoyed having a dog when he was younger - he...

Just be up front about it. He might not even know what CF is (I didn't know what it was before I met Jeremy), and you can take that opportunity to explain what it is and what it means. Emily is right - if he can't handle it... he isn't worth it. You need someone who is willing to stick by...

There was a <a target=new class=ftalternatingbarlinklarge href="http://forums.cysticfibrosis.com/messageview.cfm?catid=6&threadid=3138&FTVAR_MSGDBTABLE=">huge post</a> about glyconutrients recently. Personally - I wouldn't use them until the company releases a double-blind placebo controlled...