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There are quite a few posters on here that have partners with CF. What did you want to ask about? -Michelle

If I had to use one word to describe Coly... frothy would be it. It has to be mixed prior to use. Our clinic uses sterile water. I find that if you mix it up a bit before having to do the neb, the frothiness in the bottle settles down. Once you get the hang of how to mix it best, it's not...

The order I've heard is... 1. Vest and associated nebs (items to open the airway - albuterol, atrovent. mucus "stuff" - mucomyst, pulmozyme, saline), along with productive coughing. 2. Antibiotics. I'm winging it on the explanation, but it makes sense to do it this way. Open the airways...

Jeremy's anti-pa treatments are: Zithromax 1x daily. Colistmethate, for one month when needed. He was previously doing the tobi/coly monthly dosing and alternation, but he started to get ringing in the ears during the tobi months. So, about September last ear he stopped doing Tobi months...

<blockquote>Quote<br><hr><i>Originally posted by: <b>SeasonsOfLove</b></i><br>Oddly enough, our car died because of an improper oil change by a Jiffy Lube franchise.<hr></blockquote> I trust those places as far as my grandmother can throw them. I was lazy once and didn't want to change oil...

I can give car advice. Financial advice... I'm not so good at. Chevrolet. I'm sure other people are going to say other brands, but in my opinion if you want a car you will be able to rely on... it's chevrolet. I have a '98 S10 pickup truck. I got it when it had 30,000 miles on it, and it...

They may not *hurt* you but they might not help you. In which case, you are spending money on something that doesn't work, while you could be spending that money on something that WOULD. The burden of proof is on the company. They are unwilling to apply for a CFF grant. This is HIGHLY...

Okay, whoever you are. That's enough. I'm really, really sick of people being so condesending to atheists. And yes, calling us "unsaved" is condesending and quite frankly, it's disgusting. I'm not telling you that you're wasting your life believing in some fantasy. Why? Because that...

<blockquote>Quote<br><hr>This thread is about someone feeling down.<hr></blockquote> Actually - it looks like someone feeling down and blaming god for their problem. In all honesty - giving this person the atheist point of view could be helpful. When you blame 'god' and are all "woe is me, god...

I have to side with the 'hot and humid is bad' opinion. It's hard on my asthma. It makes it harder for me to breathe - like I'm suffocating all the time. That's when I'm NOT exercising. If I do that - it's just pure misery. Jeremy's bothered by the heat and humidity as well, to the point...

For the most part I agree with CF Hockey Mom - those of us who don't have CF don't know what it's like to have CF. Big freakin' duh there. However, equally so - you don't know what it's like in our shoes. Big freakin' duh again. So, how about we just take it that we all have different...

Ahhh, where to start. >>He has also patented 150 different products including this one and all of them are well researched and proven to work in a several different cases in treating illness's underlying condition at the cellular level. Ahh, but where is the study on THIS medication for THIS...

<blockquote>Quote<br><hr><i>Originally posted by: <b>lovingBenandCambree</b></i>According to the mother that I talked to there is no toxicity level so that is why it cannot be FDA approved.<hr></blockquote> This is just not true. Everything has a toxicity level. Also, that's not why the FDA...

Hmmm, has he tried running? I know it's not the most fun sport ever (I hate it, but I do it anyway with my bf), but it really seems to help with keeping my bf's lungs clear.Invest in a stopwatch (or two). When we started running last year, we really sucked. In order to keep ourselves...

Melissa - as far as "hype" here's a link to a study on hypertonic saline. (I know there are others, but I must not have bookmarked them). <a target=new class=ftalternatingbarlinklarge href="http://thorax.bmjjournals.com/cgi/reprint/52/10/900...

The pharmacy ended up having the lab at Fairview mix us up an IV bag of 5% saline. It cost $10, plus another $10 for the syringes to draw it out of the bag with. As for making it myself - I know how to make the saline, but I just don't feel comfortable trying to make anything sterile in my...

Anybody using hypertonic saline? What percentage? Where do you get it? Does your insurance cover it? How much does it cost? I'm asking because we're having a heck of a time getting any. Insurance is being irritating about it (what a surprise). They won't cover the 10% solution at all, the...

I second the "it could be diabetes related" statement - blood sugar problems are known to cause vision problems, has he been checked for glucose tolerance lately? Also - it's probably just a good idea to see an eye doctor.

I think the saying is... the more the merrier. Welcome!

I'll think I'll get in on this "Taking offense" bandwagon at this point... Don't judge someone until you've walked in their shoes. Also... Please take note and remember that not everyone thinks abortion is "Playing God" - in my case... atheist. From my point of view - one can't play god when...