Cystic Fibrosis Forum (EXP)

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  1. F

    Natural Remidies/Cures for CF?? is it out there?

    I heard a really good talk once about health; we have been trained to think there is a silver-bullet out there for disease or we all sit hoping there will be one. Just one substance, one pill we can all take for the sysmtoms experienced. There are obviously some substances known to help a...
  2. F

    Natural Remidies/Cures for CF?? is it out there?

    Alot of what Christian and others have said rings true for us in the care we choose for our son. While I would be careful of anyone tauting a "cure" I do believe with natural support and complimentary care, traditional CF care can be enhanced or greatly improved. This for us includes diet...
  3. F

    Natural Remidies/Cures for CF?? is it out there?

    Alot of what Christian and others have said rings true for us in the care we choose for our son. While I would be careful of anyone tauting a "cure" I do believe with natural support and complimentary care, traditional CF care can be enhanced or greatly improved. This for us includes diet...
  4. F

    Natural Remidies/Cures for CF?? is it out there?

    Alot of what Christian and others have said rings true for us in the care we choose for our son. While I would be careful of anyone tauting a "cure" I do believe with natural support and complimentary care, traditional CF care can be enhanced or greatly improved. This for us includes diet...
  5. F

    Can we get better or there's no way back?

    I understand the point behind the comment above, I just do not like this either or thinking we use in respect to caring for ourselves/children. It is all connected like a huge web - you can not have healthy lungs without healthy digestive system. Sinus health affects the lungs; emotional...
  6. F

    Can we get better or there's no way back?

    I understand the point behind the comment above, I just do not like this either or thinking we use in respect to caring for ourselves/children. It is all connected like a huge web - you can not have healthy lungs without healthy digestive system. Sinus health affects the lungs; emotional...
  7. F

    Can we get better or there's no way back?

    I understand the point behind the comment above, I just do not like this either or thinking we use in respect to caring for ourselves/children. It is all connected like a huge web - you can not have healthy lungs without healthy digestive system. Sinus health affects the lungs; emotional...
  8. F

    Can I really handle all of this?

    Our son Ben is 2 1/2 as well. His first year of life was the hardest time of our lives (3 hospitalizations, home care after 2 of them, doctors which needed to be trained how to treat my family ;-). Too much to bare almost. It affected us very deeply and asked more than I thought I was capable...
  9. F

    Can I really handle all of this?

    Our son Ben is 2 1/2 as well. His first year of life was the hardest time of our lives (3 hospitalizations, home care after 2 of them, doctors which needed to be trained how to treat my family ;-). Too much to bare almost. It affected us very deeply and asked more than I thought I was capable...
  10. F

    Can I really handle all of this?

    Our son Ben is 2 1/2 as well. His first year of life was the hardest time of our lives (3 hospitalizations, home care after 2 of them, doctors which needed to be trained how to treat my family ;-). Too much to bare almost. It affected us very deeply and asked more than I thought I was capable...
  11. F

    Possible new way to fight lung infections

    thanks this is interesting.
  12. F

    Possible new way to fight lung infections

    thanks this is interesting.
  13. F

    Possible new way to fight lung infections

    thanks this is interesting.
  14. F

    gsh and valerie hudson

    They are often complimentary, with some people doing both. I don't see it as an either or thing...one may work fine for someone while someone else may benefit from the other or even both together. As Dr. Warwick says we all must be willing to experiment together. If you have a wonderful doctor...
  15. F

    gsh and valerie hudson

    They are often complimentary, with some people doing both. I don't see it as an either or thing...one may work fine for someone while someone else may benefit from the other or even both together. As Dr. Warwick says we all must be willing to experiment together. If you have a wonderful doctor...
  16. F

    gsh and valerie hudson

    They are often complimentary, with some people doing both. I don't see it as an either or thing...one may work fine for someone while someone else may benefit from the other or even both together. As Dr. Warwick says we all must be willing to experiment together. If you have a wonderful doctor...
  17. F

    gsh and valerie hudson

    I will second many of the observations and experiences that Valerie speaks of in her message. Our son (now 2 1/2) has been on GSH (inhaled 200mg 2x daily) since he was 18 months old. His stools improved, his appetite and weight have continued to climb after being in 5-10% for the first year. His...
  18. F

    gsh and valerie hudson

    I will second many of the observations and experiences that Valerie speaks of in her message. Our son (now 2 1/2) has been on GSH (inhaled 200mg 2x daily) since he was 18 months old. His stools improved, his appetite and weight have continued to climb after being in 5-10% for the first year. His...
  19. F

    gsh and valerie hudson

    I will second many of the observations and experiences that Valerie speaks of in her message. Our son (now 2 1/2) has been on GSH (inhaled 200mg 2x daily) since he was 18 months old. His stools improved, his appetite and weight have continued to climb after being in 5-10% for the first year. His...
  20. F

    gsh and valerie hudson

    Thank you Chris. We are watching the NAC trials right now and continuing GSH since it works so well for our son. This may change as time goes on...it is so great to keep an open mind and stay abreast of research. We all really have to I think...until that cure comes down the pike ;-)
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