Cystic Fibrosis Forum (EXP)

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  1. K

    I feel like they have given my daughter a death sentence

    You will not be alone here. There are many, many people that have been where you are and we are here to help you, and listen. What you have been through is an incredible shock. It does get easier, I promise. There has been so much progress made in treatments that your daughter has a terrific...
  2. K

    I feel like they have given my daughter a death sentence

    You will not be alone here. There are many, many people that have been where you are and we are here to help you, and listen. What you have been through is an incredible shock. It does get easier, I promise. There has been so much progress made in treatments that your daughter has a terrific...
  3. K

    I feel like they have given my daughter a death sentence

    You will not be alone here. There are many, many people that have been where you are and we are here to help you, and listen. What you have been through is an incredible shock. It does get easier, I promise. There has been so much progress made in treatments that your daughter has a terrific...
  4. K

    I feel like they have given my daughter a death sentence

    You will not be alone here. There are many, many people that have been where you are and we are here to help you, and listen. What you have been through is an incredible shock. It does get easier, I promise. There has been so much progress made in treatments that your daughter has a terrific...
  5. K

    I feel like they have given my daughter a death sentence

    You will not be alone here. There are many, many people that have been where you are and we are here to help you, and listen. What you have been through is an incredible shock. It does get easier, I promise. There has been so much progress made in treatments that your daughter has a terrific...
  6. K

    Initial Transplant evaluation

    Lindsey (coltsfan7153) wrote with incredible detail about her evaluation process. This should be a link to that part of her blog. Best wishes to you. <a target=_blank class=ftalternatingbarlinklarge href="http://blogs.cysticfibrosis.com/categories.cfm?catid=1974&flcache=4129312&entercat=y...
  7. K

    Initial Transplant evaluation

    Lindsey (coltsfan7153) wrote with incredible detail about her evaluation process. This should be a link to that part of her blog. Best wishes to you. <a target=_blank class=ftalternatingbarlinklarge href="http://blogs.cysticfibrosis.com/categories.cfm?catid=1974&flcache=4129312&entercat=y...
  8. K

    Initial Transplant evaluation

    Lindsey (coltsfan7153) wrote with incredible detail about her evaluation process. This should be a link to that part of her blog. Best wishes to you. <a target=_blank class=ftalternatingbarlinklarge href="http://blogs.cysticfibrosis.com/categories.cfm?catid=1974&flcache=4129312&entercat=y...
  9. K

    Initial Transplant evaluation

    Lindsey (coltsfan7153) wrote with incredible detail about her evaluation process. This should be a link to that part of her blog. Best wishes to you. <a target=_blank class=ftalternatingbarlinklarge href="http://blogs.cysticfibrosis.com/categories.cfm?catid=1974&flcache=4129312&entercat=y...
  10. K

    Initial Transplant evaluation

    Lindsey (coltsfan7153) wrote with incredible detail about her evaluation process. This should be a link to that part of her blog. Best wishes to you. <a target=_blank class=ftalternatingbarlinklarge href="http://blogs.cysticfibrosis.com/categories.cfm?catid=1974&flcache=4129312&entercat=y...
  11. K

    Malabsorption? Need some answers?

    Ditto on the Prevacid; it is almost like our daughter isn't taking enzymes at all if we forget her daily Prevacid. Which we NEVER do anymore, now that we've got this million meds a day thing down.
  12. K

    Malabsorption? Need some answers?

    Ditto on the Prevacid; it is almost like our daughter isn't taking enzymes at all if we forget her daily Prevacid. Which we NEVER do anymore, now that we've got this million meds a day thing down.
  13. K

    Malabsorption? Need some answers?

    Ditto on the Prevacid; it is almost like our daughter isn't taking enzymes at all if we forget her daily Prevacid. Which we NEVER do anymore, now that we've got this million meds a day thing down.
  14. K

    Malabsorption? Need some answers?

    Ditto on the Prevacid; it is almost like our daughter isn't taking enzymes at all if we forget her daily Prevacid. Which we NEVER do anymore, now that we've got this million meds a day thing down.
  15. K

    Malabsorption? Need some answers?

    Ditto on the Prevacid; it is almost like our daughter isn't taking enzymes at all if we forget her daily Prevacid. Which we NEVER do anymore, now that we've got this million meds a day thing down.
  16. K

    Does anyone elses child have a big, distended stomach?

    Our daughter's belly has always been distended, MUCH more so before diagnosis, but she still has a little pot belly. I thought it would go down more than it has, but I guess not. Oh well, I think it is just normal for CF'ers.
  17. K

    Does anyone elses child have a big, distended stomach?

    Our daughter's belly has always been distended, MUCH more so before diagnosis, but she still has a little pot belly. I thought it would go down more than it has, but I guess not. Oh well, I think it is just normal for CF'ers.
  18. K

    Does anyone elses child have a big, distended stomach?

    Our daughter's belly has always been distended, MUCH more so before diagnosis, but she still has a little pot belly. I thought it would go down more than it has, but I guess not. Oh well, I think it is just normal for CF'ers.
  19. K

    Does anyone elses child have a big, distended stomach?

    Our daughter's belly has always been distended, MUCH more so before diagnosis, but she still has a little pot belly. I thought it would go down more than it has, but I guess not. Oh well, I think it is just normal for CF'ers.
  20. K

    Does anyone elses child have a big, distended stomach?

    Our daughter's belly has always been distended, MUCH more so before diagnosis, but she still has a little pot belly. I thought it would go down more than it has, but I guess not. Oh well, I think it is just normal for CF'ers.
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