Cystic Fibrosis Forum (EXP)

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  1. M

    Diagnosed @ 40yrs

    I was diagnosed at 21 and while my pain was nothing like your wife I can tell you that I was diagnosed with fibromyalgia due to pain before being correctly diagnosed much later with CF. Getting my lungs in proper order finally helped alleveiate alot of my pain. I currently see a masseus and...
  2. M

    Diagnosed @ 40yrs

    I was diagnosed at 21 and while my pain was nothing like your wife I can tell you that I was diagnosed with fibromyalgia due to pain before being correctly diagnosed much later with CF. Getting my lungs in proper order finally helped alleveiate alot of my pain. I currently see a masseus and...
  3. M

    Diagnosed @ 40yrs

    I was diagnosed at 21 and while my pain was nothing like your wife I can tell you that I was diagnosed with fibromyalgia due to pain before being correctly diagnosed much later with CF. Getting my lungs in proper order finally helped alleveiate alot of my pain. I currently see a masseus and...
  4. M

    Diagnosed @ 40yrs

    I was diagnosed at 21 and while my pain was nothing like your wife I can tell you that I was diagnosed with fibromyalgia due to pain before being correctly diagnosed much later with CF. Getting my lungs in proper order finally helped alleveiate alot of my pain. I currently see a masseus and...
  5. M

    Diagnosed @ 40yrs

    I was diagnosed at 21 and while my pain was nothing like your wife I can tell you that I was diagnosed with fibromyalgia due to pain before being correctly diagnosed much later with CF. Getting my lungs in proper order finally helped alleveiate alot of my pain. I currently see a masseus and...
  6. M

    New with questions

    After having a borderline sweat test another one in a month is not going to do anything for a definitiave diagnosis one way or another. I had multiple repeated borderline sweat tests, anything 40-60 is considered borderline but there are some pushign to have a negative defined as anything under...
  7. M

    New with questions

    After having a borderline sweat test another one in a month is not going to do anything for a definitiave diagnosis one way or another. I had multiple repeated borderline sweat tests, anything 40-60 is considered borderline but there are some pushign to have a negative defined as anything under...
  8. M

    New with questions

    After having a borderline sweat test another one in a month is not going to do anything for a definitiave diagnosis one way or another. I had multiple repeated borderline sweat tests, anything 40-60 is considered borderline but there are some pushign to have a negative defined as anything under...
  9. M

    New with questions

    After having a borderline sweat test another one in a month is not going to do anything for a definitiave diagnosis one way or another. I had multiple repeated borderline sweat tests, anything 40-60 is considered borderline but there are some pushign to have a negative defined as anything under...
  10. M

    New with questions

    After having a borderline sweat test another one in a month is not going to do anything for a definitiave diagnosis one way or another. I had multiple repeated borderline sweat tests, anything 40-60 is considered borderline but there are some pushign to have a negative defined as anything under...
  11. M

    Aquagenic Wrinkling of the Palms

    I don't get the wrinkling much but I DO get horrible peeling of my hands. I drink about 12-16 cups of water a day on a normal basis so its not dehydration for me. however if I dip even into the 'normal' range of water consumption the peeling increases, it also increases when I am on antibiotics...
  12. M

    Aquagenic Wrinkling of the Palms

    I don't get the wrinkling much but I DO get horrible peeling of my hands. I drink about 12-16 cups of water a day on a normal basis so its not dehydration for me. however if I dip even into the 'normal' range of water consumption the peeling increases, it also increases when I am on antibiotics...
  13. M

    Aquagenic Wrinkling of the Palms

    I don't get the wrinkling much but I DO get horrible peeling of my hands. I drink about 12-16 cups of water a day on a normal basis so its not dehydration for me. however if I dip even into the 'normal' range of water consumption the peeling increases, it also increases when I am on antibiotics...
  14. M

    Aquagenic Wrinkling of the Palms

    I don't get the wrinkling much but I DO get horrible peeling of my hands. I drink about 12-16 cups of water a day on a normal basis so its not dehydration for me. however if I dip even into the 'normal' range of water consumption the peeling increases, it also increases when I am on antibiotics...
  15. M

    Aquagenic Wrinkling of the Palms

    I don't get the wrinkling much but I DO get horrible peeling of my hands. I drink about 12-16 cups of water a day on a normal basis so its not dehydration for me. however if I dip even into the 'normal' range of water consumption the peeling increases, it also increases when I am on antibiotics...
  16. M

    Sweat Test

    I had 4 inconclusive sweat tests and only years later after increasing syptoms found myself back at the same doctor that had checked me out as a teen, diagnosed syptomatically and a few years later they discovered a second gene. Please my plea to any parent is dont let that nag in the back of...
  17. M

    Sweat Test

    I had 4 inconclusive sweat tests and only years later after increasing syptoms found myself back at the same doctor that had checked me out as a teen, diagnosed syptomatically and a few years later they discovered a second gene. Please my plea to any parent is dont let that nag in the back of...
  18. M

    Sweat Test

    I had 4 inconclusive sweat tests and only years later after increasing syptoms found myself back at the same doctor that had checked me out as a teen, diagnosed syptomatically and a few years later they discovered a second gene. Please my plea to any parent is dont let that nag in the back of...
  19. M

    Sweat Test

    I had 4 inconclusive sweat tests and only years later after increasing syptoms found myself back at the same doctor that had checked me out as a teen, diagnosed syptomatically and a few years later they discovered a second gene. Please my plea to any parent is dont let that nag in the back of...
  20. M

    Sweat Test

    I had 4 inconclusive sweat tests and only years later after increasing syptoms found myself back at the same doctor that had checked me out as a teen, diagnosed syptomatically and a few years later they discovered a second gene. <br /> <br />Please my plea to any parent is dont let that nag in...
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