Cystic Fibrosis Forum (EXP)

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  1. H

    Question about CF'ers and alcohol

    I had a very similar reaction whilst on an antibiotic, but I can't recall which one I was on at the time. I didn't get hives, but I became very flushed. My friends asked me if I was ok and I replied that I was fine. Back at the hotel room I saw what I looked like and was shocked. My face...
  2. H

    Question about CF'ers and alcohol

    I had a very similar reaction whilst on an antibiotic, but I can't recall which one I was on at the time. I didn't get hives, but I became very flushed. My friends asked me if I was ok and I replied that I was fine. Back at the hotel room I saw what I looked like and was shocked. My face...
  3. H

    Concerned about negative effects of meds

    Yes, I don't know that ototoxicity is a huge issue with inhaled TOBI, but it is a concern with IV Tobramycin. I will see what I can find.
  4. H

    Concerned about negative effects of meds

    Yes, I don't know that ototoxicity is a huge issue with inhaled TOBI, but it is a concern with IV Tobramycin. I will see what I can find.
  5. H

    Concerned about negative effects of meds

    Yes, I don't know that ototoxicity is a huge issue with inhaled TOBI, but it is a concern with IV Tobramycin. I will see what I can find.
  6. H

    13 year old boy in hospital with chest pain possible SVT

    Murgie, Personally, I am actually very healthy for a CFer. I spent 10 years in pre-hospital emergency medicine and have a BS in pre-hospital emergency med. So, I've seen and treated a bunch of SVTs and have a decent understanding of a wide variety of conditions. One of the perks of emergency...
  7. H

    13 year old boy in hospital with chest pain possible SVT

    Murgie, Personally, I am actually very healthy for a CFer. I spent 10 years in pre-hospital emergency medicine and have a BS in pre-hospital emergency med. So, I've seen and treated a bunch of SVTs and have a decent understanding of a wide variety of conditions. One of the perks of emergency...
  8. H

    13 year old boy in hospital with chest pain possible SVT

    Murgie, <br /> <br />Personally, I am actually very healthy for a CFer. I spent 10 years in pre-hospital emergency medicine and have a BS in pre-hospital emergency med. So, I've seen and treated a bunch of SVTs and have a decent understanding of a wide variety of conditions. One of the perks...
  9. H

    Concerned about negative effects of meds

    The most concerning effect of frequent or long term antibiotic treatment is resistance. Unfortunately with CF we are still in a prevention mode of treatment. We treat infections aggressively with antibiotics to minimize lung damage. It's a double edged sword. If you don't treat with...
  10. H

    Concerned about negative effects of meds

    The most concerning effect of frequent or long term antibiotic treatment is resistance. Unfortunately with CF we are still in a prevention mode of treatment. We treat infections aggressively with antibiotics to minimize lung damage. It's a double edged sword. If you don't treat with...
  11. H

    Concerned about negative effects of meds

    The most concerning effect of frequent or long term antibiotic treatment is resistance. Unfortunately with CF we are still in a prevention mode of treatment. We treat infections aggressively with antibiotics to minimize lung damage. It's a double edged sword. If you don't treat with...
  12. H

    13 year old boy in hospital with chest pain possible SVT

    Murgie, thank you for your kind words. WPW is Wolff Parkinson White Syndrome. I'm not sure if i can adequately explain it with out drawing stuff. Here goes: In the heart there are pacemaker sites that control heartbeat. The main one is the sino-atrial node (SA node) and it is located in the...
  13. H

    13 year old boy in hospital with chest pain possible SVT

    Murgie, thank you for your kind words. WPW is Wolff Parkinson White Syndrome. I'm not sure if i can adequately explain it with out drawing stuff. Here goes: In the heart there are pacemaker sites that control heartbeat. The main one is the sino-atrial node (SA node) and it is located in the...
  14. H

    13 year old boy in hospital with chest pain possible SVT

    Murgie, thank you for your kind words. <br /> <br />WPW is Wolff Parkinson White Syndrome. I'm not sure if i can adequately explain it with out drawing stuff. Here goes: <br /> <br />In the heart there are pacemaker sites that control heartbeat. The main one is the sino-atrial node (SA node)...
  15. H

    13 year old boy in hospital with chest pain possible SVT

    I was going to reply on this earlier, but I was extremely busy. Regarding the possibility of SVT, it's not all that uncommon for young people to develop re-entrant pathways like WPW. I have never seen any evidence that it's CF related. As Miss T mentioned, the treatment (if it is WPW or...
  16. H

    13 year old boy in hospital with chest pain possible SVT

    I was going to reply on this earlier, but I was extremely busy. Regarding the possibility of SVT, it's not all that uncommon for young people to develop re-entrant pathways like WPW. I have never seen any evidence that it's CF related. As Miss T mentioned, the treatment (if it is WPW or...
  17. H

    13 year old boy in hospital with chest pain possible SVT

    I was going to reply on this earlier, but I was extremely busy. Regarding the possibility of SVT, it's not all that uncommon for young people to develop re-entrant pathways like WPW. I have never seen any evidence that it's CF related. As Miss T mentioned, the treatment (if it is WPW or...
  18. H

    Amount of Sleep per day

    5-7 normally.
  19. H

    Amount of Sleep per day

    5-7 normally.
  20. H

    Amount of Sleep per day

    5-7 normally.
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