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Alyssa: <br /> <br />The lab did the test correct, but the person keying in the information didn't list DeltaF508! I was told it does happen in other states as well. Some labs even miss both genes! Could you imagine going months without knowing what is going on with your child's health all...

We found out I do not have CF. The state of AZ messed up our results and Avery has G542x AND DeltaF508.

We found out I do not have CF. The state of AZ messed up our results and Avery has G542x AND DeltaF508.

We found out I do not have CF. The state of AZ messed up our results and Avery has G542x AND DeltaF508.

We found out I do not have CF. The state of AZ messed up our results and Avery has G542x AND DeltaF508.

We found out I do not have CF. The state of AZ messed up our results and Avery has G542x AND DeltaF508.

I do want to say for whatever reason the thought of my having CF is not bad at all. It almost is a relief if I do have it. It gives me hope that my daughter will have the same (for the most part) healthy life that I have. Again if I do have CF I have never had any lung issues just all GI...

I do want to say for whatever reason the thought of my having CF is not bad at all. It almost is a relief if I do have it. It gives me hope that my daughter will have the same (for the most part) healthy life that I have. Again if I do have CF I have never had any lung issues just all GI...

I do want to say for whatever reason the thought of my having CF is not bad at all. It almost is a relief if I do have it. It gives me hope that my daughter will have the same (for the most part) healthy life that I have. Again if I do have CF I have never had any lung issues just all GI...

I do want to say for whatever reason the thought of my having CF is not bad at all. It almost is a relief if I do have it. It gives me hope that my daughter will have the same (for the most part) healthy life that I have. Again if I do have CF I have never had any lung issues just all GI...

I do want to say for whatever reason the thought of my having CF is not bad at all. It almost is a relief if I do have it. It gives me hope that my daughter will have the same (for the most part) healthy life that I have. Again if I do have CF I have never had any lung issues just all GI...

I am going to try and map this out as best I can. My daughter was diagnosed with CF a month ago. We know she has G542X gene mutation which was discovered on a small panel. Her full genetics testing is being done right now to find the other gene mutation. I went to go get tested to see if...

I am going to try and map this out as best I can. My daughter was diagnosed with CF a month ago. We know she has G542X gene mutation which was discovered on a small panel. Her full genetics testing is being done right now to find the other gene mutation. I went to go get tested to see if...

I am going to try and map this out as best I can. My daughter was diagnosed with CF a month ago. We know she has G542X gene mutation which was discovered on a small panel. Her full genetics testing is being done right now to find the other gene mutation. I went to go get tested to see if...

I am going to try and map this out as best I can. My daughter was diagnosed with CF a month ago. We know she has G542X gene mutation which was discovered on a small panel. Her full genetics testing is being done right now to find the other gene mutation. I went to go get tested to see if...

I am going to try and map this out as best I can. <br /> <br />My daughter was diagnosed with CF a month ago. We know she has G542X gene mutation which was discovered on a small panel. Her full genetics testing is being done right now to find the other gene mutation. <br /> <br />I went to...

Mertz I am going to reinterate what Kaylasdad suggested don't go on a lot of websites. If you want information go on www.cff.org. I am still new to this, but my suggestion is lean on your friends and family right now. Talking through it has helped me. Also this site helps a lot. Sometimes...

Mertz I am going to reinterate what Kaylasdad suggested don't go on a lot of websites. If you want information go on www.cff.org. I am still new to this, but my suggestion is lean on your friends and family right now. Talking through it has helped me. Also this site helps a lot. Sometimes...

Mertz I am going to reinterate what Kaylasdad suggested don't go on a lot of websites. If you want information go on www.cff.org. I am still new to this, but my suggestion is lean on your friends and family right now. Talking through it has helped me. Also this site helps a lot. Sometimes...

Mertz I am going to reinterate what Kaylasdad suggested don't go on a lot of websites. If you want information go on www.cff.org. I am still new to this, but my suggestion is lean on your friends and family right now. Talking through it has helped me. Also this site helps a lot. Sometimes...