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Ditto to everything you have both said! It is the CF element on top of all of the other craziness that "normal" families go through. Even if your CF'er is doing "well" (it is all relative) we spend over two hours a day keeping her that way.
I have just typed and erased a thousand paragraphs...
Ditto to everything you have both said! It is the CF element on top of all of the other craziness that "normal" families go through. Even if your CF'er is doing "well" (it is all relative) we spend over two hours a day keeping her that way.
I have just typed and erased a thousand paragraphs...
Ditto to everything you have both said! It is the CF element on top of all of the other craziness that "normal" families go through. Even if your CF'er is doing "well" (it is all relative) we spend over two hours a day keeping her that way.
I have just typed and erased a thousand paragraphs...
Ditto to everything you have both said! It is the CF element on top of all of the other craziness that "normal" families go through. Even if your CF'er is doing "well" (it is all relative) we spend over two hours a day keeping her that way.
I have just typed and erased a thousand paragraphs...
Ditto to everything you have both said! It is the CF element on top of all of the other craziness that "normal" families go through. Even if your CF'er is doing "well" (it is all relative) we spend over two hours a day keeping her that way.
I have just typed and erased a thousand paragraphs...
Katy cultured PA at diagnosis, when she was 3 years old. We were put on 3 months of TOBI and Cipro, and have been on TOBI 28 on/off since. We have also had CLEAR cultures since! This is a scorched earth policy, to do like other posters have said, which is to nip it in the bud now and keep if...
Katy cultured PA at diagnosis, when she was 3 years old. We were put on 3 months of TOBI and Cipro, and have been on TOBI 28 on/off since. We have also had CLEAR cultures since! This is a scorched earth policy, to do like other posters have said, which is to nip it in the bud now and keep if...
Katy cultured PA at diagnosis, when she was 3 years old. We were put on 3 months of TOBI and Cipro, and have been on TOBI 28 on/off since. We have also had CLEAR cultures since! This is a scorched earth policy, to do like other posters have said, which is to nip it in the bud now and keep if...
Katy cultured PA at diagnosis, when she was 3 years old. We were put on 3 months of TOBI and Cipro, and have been on TOBI 28 on/off since. We have also had CLEAR cultures since! This is a scorched earth policy, to do like other posters have said, which is to nip it in the bud now and keep if...
Katy cultured PA at diagnosis, when she was 3 years old. We were put on 3 months of TOBI and Cipro, and have been on TOBI 28 on/off since. We have also had CLEAR cultures since! This is a scorched earth policy, to do like other posters have said, which is to nip it in the bud now and keep if...
I get the feeling from a recent post in the Adults section that gastric acid blockers of some kind might be a life-long requirement for CF'ers. However, I am concerned about the long term use of Prevacid (or any proton pump inhibitor) based on information I have from a very trusted nutritionist...
I get the feeling from a recent post in the Adults section that gastric acid blockers of some kind might be a life-long requirement for CF'ers. However, I am concerned about the long term use of Prevacid (or any proton pump inhibitor) based on information I have from a very trusted nutritionist...
I get the feeling from a recent post in the Adults section that gastric acid blockers of some kind might be a life-long requirement for CF'ers. However, I am concerned about the long term use of Prevacid (or any proton pump inhibitor) based on information I have from a very trusted nutritionist...
I get the feeling from a recent post in the Adults section that gastric acid blockers of some kind might be a life-long requirement for CF'ers. However, I am concerned about the long term use of Prevacid (or any proton pump inhibitor) based on information I have from a very trusted nutritionist...
I get the feeling from a recent post in the Adults section that gastric acid blockers of some kind might be a life-long requirement for CF'ers. However, I am concerned about the long term use of Prevacid (or any proton pump inhibitor) based on information I have from a very trusted nutritionist...
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