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relat - - Hello - I understand completely. I have a bro with CF who has had a lot of troubles over the past year and a half. He is 30. Since he started in his 20's he has had steady troubles and is now starting to see a decline in his lung tests (PFT's). This last time he was in the hospital...
relat - - Hello - I understand completely. I have a bro with CF who has had a lot of troubles over the past year and a half. He is 30. Since he started in his 20's he has had steady troubles and is now starting to see a decline in his lung tests (PFT's). This last time he was in the hospital...
relat - - Hello - I understand completely. I have a bro with CF who has had a lot of troubles over the past year and a half. He is 30. Since he started in his 20's he has had steady troubles and is now starting to see a decline in his lung tests (PFT's). This last time he was in the hospital...
Not too much to add.
Just wanted to write to say that not everyone in America uses the vest. While it is very helpful, I imagine especially for young ones, many of us still use manual treatments and/or exercise to keep bring up mucus. Some people uses the vest and love it. It is very...
Not too much to add.
Just wanted to write to say that not everyone in America uses the vest. While it is very helpful, I imagine especially for young ones, many of us still use manual treatments and/or exercise to keep bring up mucus. Some people uses the vest and love it. It is very...
Not too much to add.
Just wanted to write to say that not everyone in America uses the vest. While it is very helpful, I imagine especially for young ones, many of us still use manual treatments and/or exercise to keep bring up mucus. Some people uses the vest and love it. It is very...
The CFF website just released rating comparisons for different accredited CF centers. This will at least give you a starting point though personal experience from other patients is almost always more helpful than statistics. Good luck!
The CFF website just released rating comparisons for different accredited CF centers. This will at least give you a starting point though personal experience from other patients is almost always more helpful than statistics. Good luck!
The CFF website just released rating comparisons for different accredited CF centers. This will at least give you a starting point though personal experience from other patients is almost always more helpful than statistics. Good luck!
From what I have been told is the sweat test is supposed to be the "gold" standard for CF, but there can be false positives and false negatives.
Just wanted to post a few thoughts about the sweat test as a clarification.
There are false positives and negatives with many tests; sweat test, blood...
From what I have been told is the sweat test is supposed to be the "gold" standard for CF, but there can be false positives and false negatives.
Just wanted to post a few thoughts about the sweat test as a clarification.
There are false positives and negatives with many tests; sweat test, blood...
From what I have been told is the sweat test is supposed to be the "gold" standard for CF, but there can be false positives and false negatives.
Just wanted to post a few thoughts about the sweat test as a clarification.
There are false positives and negatives with many tests; sweat test, blood...
Sorry that was me (point). I am not used to posting without being prompted for my username. See below for my mutations.....
See below within my signature for mutations. My bros' have CF as well.
We were dx young. My oldest bro at age 3, middle bros. 1.5, myself asap after birth. So...
Sorry that was me (point). I am not used to posting without being prompted for my username. See below for my mutations.....
See below within my signature for mutations. My bros' have CF as well.
We were dx young. My oldest bro at age 3, middle bros. 1.5, myself asap after birth. So...
Sorry that was me (point). I am not used to posting without being prompted for my username. See below for my mutations.....
See below within my signature for mutations. My bros' have CF as well.
We were dx young. My oldest bro at age 3, middle bros. 1.5, myself asap after birth. So...
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