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where to find hope...?

R

relat

New member
hi everyone.my brother 26 has cf and i feel again scared and desperate with this strange disease as i find out every day it is progressive.(he didnt have cfrd and now he has,he has more often ileus and goes to hospital because of this more often lately,although he was diagnosed at 20-now he is 26.)i dont know where to find hope from...i find a lot from all of you but i am a student and i can not study lately(last 6 months and more)due to my all day thinking of my brother having cf.i pray all day for the cf not to progress.he has medications etc not as much as you all in the u.s(you have more means to fight cf)but there are many issues coming up often that scare you. cf has stopped my life,i cant go out and have a nice time thinking that my brother suffers a lot, and he doesnt go out and have fun due to belly aches or something related to cf for example.there is too much pain inside me....

relat,27
 
R

relat

New member
hi everyone.my brother 26 has cf and i feel again scared and desperate with this strange disease as i find out every day it is progressive.(he didnt have cfrd and now he has,he has more often ileus and goes to hospital because of this more often lately,although he was diagnosed at 20-now he is 26.)i dont know where to find hope from...i find a lot from all of you but i am a student and i can not study lately(last 6 months and more)due to my all day thinking of my brother having cf.i pray all day for the cf not to progress.he has medications etc not as much as you all in the u.s(you have more means to fight cf)but there are many issues coming up often that scare you. cf has stopped my life,i cant go out and have a nice time thinking that my brother suffers a lot, and he doesnt go out and have fun due to belly aches or something related to cf for example.there is too much pain inside me....

relat,27
 
R

relat

New member
hi everyone.my brother 26 has cf and i feel again scared and desperate with this strange disease as i find out every day it is progressive.(he didnt have cfrd and now he has,he has more often ileus and goes to hospital because of this more often lately,although he was diagnosed at 20-now he is 26.)i dont know where to find hope from...i find a lot from all of you but i am a student and i can not study lately(last 6 months and more)due to my all day thinking of my brother having cf.i pray all day for the cf not to progress.he has medications etc not as much as you all in the u.s(you have more means to fight cf)but there are many issues coming up often that scare you. cf has stopped my life,i cant go out and have a nice time thinking that my brother suffers a lot, and he doesnt go out and have fun due to belly aches or something related to cf for example.there is too much pain inside me....

relat,27
 
P

point

New member
relat - - Hello - I understand completely. I have a bro with CF who has had a lot of troubles over the past year and a half. He is 30. Since he started in his 20's he has had steady troubles and is now starting to see a decline in his lung tests (PFT's). This last time he was in the hospital they identified that he has MRSA (meth resistant Staph aureus) so they were able to treat him properly and he has stabilized. It was very hard for me to go into work every day and be motivated with my job knowing that he was having troubles. You just need to keep hope and encourage him to continue doing his treatments and support him because I am sure he feels a heavy burden with this (especially if he was diagnosed later in life so everything is still very overwhelming).

Your feelings are completely normal for anyone who has a loved one with any chronic illness. It can be very challenging at times to remain positive and to work through the tough times, but we get through it. I know I don't have too much advice, but sometimes it is nice to know that we are not alone in an experience. Please know that others are thinking of you and sending strength to you and your brother. Take care -
 
P

point

New member
relat - - Hello - I understand completely. I have a bro with CF who has had a lot of troubles over the past year and a half. He is 30. Since he started in his 20's he has had steady troubles and is now starting to see a decline in his lung tests (PFT's). This last time he was in the hospital they identified that he has MRSA (meth resistant Staph aureus) so they were able to treat him properly and he has stabilized. It was very hard for me to go into work every day and be motivated with my job knowing that he was having troubles. You just need to keep hope and encourage him to continue doing his treatments and support him because I am sure he feels a heavy burden with this (especially if he was diagnosed later in life so everything is still very overwhelming).

Your feelings are completely normal for anyone who has a loved one with any chronic illness. It can be very challenging at times to remain positive and to work through the tough times, but we get through it. I know I don't have too much advice, but sometimes it is nice to know that we are not alone in an experience. Please know that others are thinking of you and sending strength to you and your brother. Take care -
 
P

point

New member
relat - - Hello - I understand completely. I have a bro with CF who has had a lot of troubles over the past year and a half. He is 30. Since he started in his 20's he has had steady troubles and is now starting to see a decline in his lung tests (PFT's). This last time he was in the hospital they identified that he has MRSA (meth resistant Staph aureus) so they were able to treat him properly and he has stabilized. It was very hard for me to go into work every day and be motivated with my job knowing that he was having troubles. You just need to keep hope and encourage him to continue doing his treatments and support him because I am sure he feels a heavy burden with this (especially if he was diagnosed later in life so everything is still very overwhelming).

Your feelings are completely normal for anyone who has a loved one with any chronic illness. It can be very challenging at times to remain positive and to work through the tough times, but we get through it. I know I don't have too much advice, but sometimes it is nice to know that we are not alone in an experience. Please know that others are thinking of you and sending strength to you and your brother. Take care -
 
K

kayleesgrandma

New member
Christina is right, we are all in this fight together, and expecially when it seems like everything is getting darker. Where are you from Relat? I will pray that you and yur brother will find the strength to meet each new day with a renewed sense of fighting this disease. Keep in touch, we are here for you. <img src="i/expressions/rose.gif" border="0">
 
K

kayleesgrandma

New member
Christina is right, we are all in this fight together, and expecially when it seems like everything is getting darker. Where are you from Relat? I will pray that you and yur brother will find the strength to meet each new day with a renewed sense of fighting this disease. Keep in touch, we are here for you. <img src="i/expressions/rose.gif" border="0">
 
K

kayleesgrandma

New member
Christina is right, we are all in this fight together, and expecially when it seems like everything is getting darker. Where are you from Relat? I will pray that you and yur brother will find the strength to meet each new day with a renewed sense of fighting this disease. Keep in touch, we are here for you. <img src="i/expressions/rose.gif" border="0">
 
D

Diane

New member
I'm sorry your brother is having such a hard time. I will keep you both in my prayers. There are times with cf that things just seem to go badly, and then others where they are going well. Thats the nature of the disease. It very easy to get depressed, when things don't seem to be going well. Hang in there , we are here for you both <img src="i/expressions/face-icon-small-smile.gif" border="0">
 
D

Diane

New member
I'm sorry your brother is having such a hard time. I will keep you both in my prayers. There are times with cf that things just seem to go badly, and then others where they are going well. Thats the nature of the disease. It very easy to get depressed, when things don't seem to be going well. Hang in there , we are here for you both <img src="i/expressions/face-icon-small-smile.gif" border="0">
 
D

Diane

New member
I'm sorry your brother is having such a hard time. I will keep you both in my prayers. There are times with cf that things just seem to go badly, and then others where they are going well. Thats the nature of the disease. It very easy to get depressed, when things don't seem to be going well. Hang in there , we are here for you both <img src="i/expressions/face-icon-small-smile.gif" border="0">
 
B

beleache

New member
Hi Relat, I think it is impossible not to have anxiety/depression and everything else associated with a chronic illness. The person that has it goes, through so much, but so does the family and friends of that person.. I am a 55 y/o f w c/f. I was diagnosed about 11 years ago. My family and friends all worry about me, but it's been really hard for my youngest son. It's very scary for him. I try hard to reassure him, but sometimes i'm not so sure of what's going on my self.. I just know that worring about it and letting that get in the way of being happy for everything you do have is not good for either of you... I was in that place for most of the 11 years. It got pretty tough a couple of years ago ( kidney failure due to the antibotics) and a whole lot of other issues, i started praying and have been since then. It's hard for everyone involved, but try to enjoy your brother and all the time you have together, hopefully it will be many, many years... God Bless you both... Joni
 
B

beleache

New member
Hi Relat, I think it is impossible not to have anxiety/depression and everything else associated with a chronic illness. The person that has it goes, through so much, but so does the family and friends of that person.. I am a 55 y/o f w c/f. I was diagnosed about 11 years ago. My family and friends all worry about me, but it's been really hard for my youngest son. It's very scary for him. I try hard to reassure him, but sometimes i'm not so sure of what's going on my self.. I just know that worring about it and letting that get in the way of being happy for everything you do have is not good for either of you... I was in that place for most of the 11 years. It got pretty tough a couple of years ago ( kidney failure due to the antibotics) and a whole lot of other issues, i started praying and have been since then. It's hard for everyone involved, but try to enjoy your brother and all the time you have together, hopefully it will be many, many years... God Bless you both... Joni
 
B

beleache

New member
Hi Relat, I think it is impossible not to have anxiety/depression and everything else associated with a chronic illness. The person that has it goes, through so much, but so does the family and friends of that person.. I am a 55 y/o f w c/f. I was diagnosed about 11 years ago. My family and friends all worry about me, but it's been really hard for my youngest son. It's very scary for him. I try hard to reassure him, but sometimes i'm not so sure of what's going on my self.. I just know that worring about it and letting that get in the way of being happy for everything you do have is not good for either of you... I was in that place for most of the 11 years. It got pretty tough a couple of years ago ( kidney failure due to the antibotics) and a whole lot of other issues, i started praying and have been since then. It's hard for everyone involved, but try to enjoy your brother and all the time you have together, hopefully it will be many, many years... God Bless you both... Joni
 
R

relat

New member
thank you all so much!!you are all very supportive.i wish the best to all...i am from greece.i am here for all of you too.
 
R

relat

New member
thank you all so much!!you are all very supportive.i wish the best to all...i am from greece.i am here for all of you too.
 
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