Cystic Fibrosis Forum (EXP)

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  1. D

    Viokase Powder...

    Hi Felicia As Amy's mum said, we used to use Viokase years ago. It's not coated enterically, as Creon etc is. That means that the powder is more likely to not reach the intestines etc., where apparently most of the digestion occurs. Some times viokase starts working (digesting) when still in...
  2. D

    Viokase Powder...

    Hi Felicia As Amy's mum said, we used to use Viokase years ago. It's not coated enterically, as Creon etc is. That means that the powder is more likely to not reach the intestines etc., where apparently most of the digestion occurs. Some times viokase starts working (digesting) when still in...
  3. D

    Viokase Powder...

    Hi Felicia As Amy's mum said, we used to use Viokase years ago. It's not coated enterically, as Creon etc is. That means that the powder is more likely to not reach the intestines etc., where apparently most of the digestion occurs. Some times viokase starts working (digesting) when still in...
  4. D

    Viokase Powder...

    Hi Felicia As Amy's mum said, we used to use Viokase years ago. It's not coated enterically, as Creon etc is. That means that the powder is more likely to not reach the intestines etc., where apparently most of the digestion occurs. Some times viokase starts working (digesting) when still in...
  5. D

    Viokase Powder...

    Hi Felicia <br /> <br />As Amy's mum said, we used to use Viokase years ago. It's not coated enterically, as Creon etc is. That means that the powder is more likely to not reach the intestines etc., where apparently most of the digestion occurs. <br /> <br />Some times viokase starts working...
  6. D

    The future witha VX drug

    My hopes (okay, I know it might not happen)...but we're talking about hope here <img src="i/expressions/face-icon-small-smile.gif" border="0">...is that my S (13) will have normal lung function and a normal life, he will no longer require nebs for pa or catch stuff in his lungs like...
  7. D

    The future witha VX drug

    My hopes (okay, I know it might not happen)...but we're talking about hope here <img src="i/expressions/face-icon-small-smile.gif" border="0">...is that my S (13) will have normal lung function and a normal life, he will no longer require nebs for pa or catch stuff in his lungs like...
  8. D

    The future witha VX drug

    My hopes (okay, I know it might not happen)...but we're talking about hope here <img src="i/expressions/face-icon-small-smile.gif" border="0">...is that my S (13) will have normal lung function and a normal life, he will no longer require nebs for pa or catch stuff in his lungs like...
  9. D

    The future witha VX drug

    My hopes (okay, I know it might not happen)...but we're talking about hope here <img src="i/expressions/face-icon-small-smile.gif" border="0">...is that my S (13) will have normal lung function and a normal life, he will no longer require nebs for pa or catch stuff in his lungs like...
  10. D

    The future witha VX drug

    My hopes (okay, I know it might not happen)...but we're talking about hope here <img src="i/expressions/face-icon-small-smile.gif" border="0">...is that my S (13) will have normal lung function and a normal life, he will no longer require nebs for pa or catch stuff in his lungs like...
  11. D

    More kids?

    I think, at the end of the day, only you know the answer to your question. Not all cf people suffer, many have perfectly full lives, and many do suffer. You dont know what life will bring you, and if my children had different outcomes with their cf my opinion would be different. Knowing that...
  12. D

    More kids?

    I think, at the end of the day, only you know the answer to your question. Not all cf people suffer, many have perfectly full lives, and many do suffer. You dont know what life will bring you, and if my children had different outcomes with their cf my opinion would be different. Knowing that...
  13. D

    More kids?

    I think, at the end of the day, only you know the answer to your question. Not all cf people suffer, many have perfectly full lives, and many do suffer. You dont know what life will bring you, and if my children had different outcomes with their cf my opinion would be different. Knowing that...
  14. D

    More kids?

    I think, at the end of the day, only you know the answer to your question. Not all cf people suffer, many have perfectly full lives, and many do suffer. You dont know what life will bring you, and if my children had different outcomes with their cf my opinion would be different. Knowing that...
  15. D

    More kids?

    I think, at the end of the day, only you know the answer to your question. Not all cf people suffer, many have perfectly full lives, and many do suffer. <br /> <br />You dont know what life will bring you, and if my children had different outcomes with their cf my opinion would be different. <br...
  16. D

    Having more than one child with cf

    Hi Marylou yes, I have three children with cf...we werent going to have more children after the first two had cf. I dont believe in abortion. When our two oldest were in their later teens and neither had been sick or in hospital, and because both were great kids we decided to have another...
  17. D

    Having more than one child with cf

    Hi Marylou yes, I have three children with cf...we werent going to have more children after the first two had cf. I dont believe in abortion. When our two oldest were in their later teens and neither had been sick or in hospital, and because both were great kids we decided to have another...
  18. D

    Having more than one child with cf

    Hi Marylou yes, I have three children with cf...we werent going to have more children after the first two had cf. I dont believe in abortion. When our two oldest were in their later teens and neither had been sick or in hospital, and because both were great kids we decided to have another...
  19. D

    Having more than one child with cf

    Hi Marylou yes, I have three children with cf...we werent going to have more children after the first two had cf. I dont believe in abortion. When our two oldest were in their later teens and neither had been sick or in hospital, and because both were great kids we decided to have another...
  20. D

    Having more than one child with cf

    Hi Marylou <br /> <br />yes, I have three children with cf...we werent going to have more children after the first two had cf. <br /> <br />I dont believe in abortion. When our two oldest were in their later teens and neither had been sick or in hospital, and because both were great kids we...
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