Cystic Fibrosis Forum (EXP)

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  1. M

    making eachother sick

    Hello, That's a good question Jessica. There's so much about CF that is so 'COMPLEX'..... They say you can have the same genes and follow different paths...... There are a lot of people here on this site that have more than one child at a time with CF, I'm sure they will be alble to give you...
  2. M

    making eachother sick

    Hello, That's a good question Jessica. There's so much about CF that is so 'COMPLEX'..... They say you can have the same genes and follow different paths...... There are a lot of people here on this site that have more than one child at a time with CF, I'm sure they will be alble to give you...
  3. M

    making eachother sick

    Hello, That's a good question Jessica. There's so much about CF that is so 'COMPLEX'..... They say you can have the same genes and follow different paths...... There are a lot of people here on this site that have more than one child at a time with CF, I'm sure they will be alble to give you...
  4. M

    making eachother sick

    Hello, That's a good question Jessica. There's so much about CF that is so 'COMPLEX'..... They say you can have the same genes and follow different paths...... There are a lot of people here on this site that have more than one child at a time with CF, I'm sure they will be alble to give you...
  5. M

    making eachother sick

    Hello, <br />That's a good question Jessica. There's so much about CF that is so 'COMPLEX'..... They say you can have the same genes and follow different paths...... There are a lot of people here on this site that have more than one child at a time with CF, I'm sure they will be alble to give...
  6. M

    I vented in a letter to the editor.

    Dear Robin, I pray your little one does not have CF. I can not tell you how difficult it was to get Makailyn diagnoised. She had probably 10 sweat test at accredited CF clinics. She had 3 positives, and the rest didn't collect enough sweat. It was nuts........ Then they found one gene...... And...
  7. M

    I vented in a letter to the editor.

    Dear Robin, I pray your little one does not have CF. I can not tell you how difficult it was to get Makailyn diagnoised. She had probably 10 sweat test at accredited CF clinics. She had 3 positives, and the rest didn't collect enough sweat. It was nuts........ Then they found one gene...... And...
  8. M

    I vented in a letter to the editor.

    Dear Robin, I pray your little one does not have CF. I can not tell you how difficult it was to get Makailyn diagnoised. She had probably 10 sweat test at accredited CF clinics. She had 3 positives, and the rest didn't collect enough sweat. It was nuts........ Then they found one gene...... And...
  9. M

    I vented in a letter to the editor.

    Dear Robin, I pray your little one does not have CF. I can not tell you how difficult it was to get Makailyn diagnoised. She had probably 10 sweat test at accredited CF clinics. She had 3 positives, and the rest didn't collect enough sweat. It was nuts........ Then they found one gene...... And...
  10. M

    I vented in a letter to the editor.

    Dear Robin, <br />I pray your little one does not have CF. I can not tell you how difficult it was to get Makailyn diagnoised. She had probably 10 sweat test at accredited CF clinics. She had 3 positives, and the rest didn't collect enough sweat. It was nuts........ Then they found one...
  11. M

    What's an "RT"?

    Just a thought and my experience. The RT's have always been wonderful and very knowledgeable when Makailyn is on the CF Floor. But,,,,, there have been times that there were no rooms on the CF floor and we might of ended up on the Kindney floor or GI floor. I will tell you there was not one...
  12. M

    What's an "RT"?

    Just a thought and my experience. The RT's have always been wonderful and very knowledgeable when Makailyn is on the CF Floor. But,,,,, there have been times that there were no rooms on the CF floor and we might of ended up on the Kindney floor or GI floor. I will tell you there was not one...
  13. M

    What's an "RT"?

    Just a thought and my experience. The RT's have always been wonderful and very knowledgeable when Makailyn is on the CF Floor. But,,,,, there have been times that there were no rooms on the CF floor and we might of ended up on the Kindney floor or GI floor. I will tell you there was not one...
  14. M

    What's an "RT"?

    Just a thought and my experience. The RT's have always been wonderful and very knowledgeable when Makailyn is on the CF Floor. But,,,,, there have been times that there were no rooms on the CF floor and we might of ended up on the Kindney floor or GI floor. I will tell you there was not one...
  15. M

    What's an "RT"?

    Just a thought and my experience. <br />The RT's have always been wonderful and very knowledgeable when Makailyn is on the CF Floor. <br /> <br />But,,,,, there have been times that there were no rooms on the CF floor and we might of ended up on the Kindney floor or GI floor. I will tell you...
  16. M

    Praying for Eva (65_redroses)

    Hello to all, There has been almost 3 thousand views which means people have at least looked about the story of a beautiful family on this site Cysticfibrosis.com. I wish if you have the time to post a little note' here' if you have gone to her site and are keeping up with her. I'm sure most...
  17. M

    Praying for Eva (65_redroses)

    Hello to all, There has been almost 3 thousand views which means people have at least looked about the story of a beautiful family on this site Cysticfibrosis.com. I wish if you have the time to post a little note' here' if you have gone to her site and are keeping up with her. I'm sure most...
  18. M

    Praying for Eva (65_redroses)

    Hello to all, There has been almost 3 thousand views which means people have at least looked about the story of a beautiful family on this site Cysticfibrosis.com. I wish if you have the time to post a little note' here' if you have gone to her site and are keeping up with her. I'm sure most...
  19. M

    Praying for Eva (65_redroses)

    Hello to all, There has been almost 3 thousand views which means people have at least looked about the story of a beautiful family on this site Cysticfibrosis.com. I wish if you have the time to post a little note' here' if you have gone to her site and are keeping up with her. I'm sure most...
  20. M

    Praying for Eva (65_redroses)

    Hello to all, <br />There has been almost 3 thousand views which means people have at least looked about the story of a beautiful family on this site Cysticfibrosis.com. <br /> <br />I wish if you have the time to post a little note' here' if you have gone to her site and are keeping up with...
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