Cystic Fibrosis Forum (EXP)

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  1. L

    Still Waiting...

    Lindsay, I am sorry to hear that you are still waiting. Keep your chin up!!!! I am sure that Erin is being taken good care of. Hope that she poops soon too the poor thing. Good luck! Emilee with 2 E's
  2. L

    Be positive!

    I have to say that I have many great accomplishments that I am very proud of. Top though are my daughter and my husband. They are such amazing people and I am proud to be a part of their lives. Second, is my bachelors in psychology where I spoke at my graduation. That was an awesome...
  3. L

    Surgery Today...

    That is awesome. I am so glad to hear that the surgery went well. I really pray that you get to take her home soon and get some normallacy in your life. Good luck and really if you would like to e-mail me feel free. I would love to hear from you. Emilee with 2 E's
  4. L

    Surgery Today...

    That is awesome. I am so glad to hear that the surgery went well. I really pray that you get to take her home soon and get some normallacy in your life. Good luck and really if you would like to e-mail me feel free. I would love to hear from you. Emilee with 2 E's
  5. L

    Divorce rate with parents of CF'ers

    My parents too divorced when I was 5. It definitely leaves scars but it was the best for all involved. There were things that I wish my parents didn't do after the divorce, such as manipulate and all of that type of stuff. As for getting a divorce, I don't mean to be harsh, divorce is always...
  6. L

    Barbara Bush...

    Hi Lindsay, I think that your last message was for me so her is my e-mail, tigger_babe32@hotmail.com. I definitely would love to hear from you. Emilee with 2 E's
  7. L

    Barbara Bush...

    Good luck with that and I really hope that you will be able to take her home soon. Then you can get into a routine and get some normalacy in your lives. I was wondering do you have a lot of family support to help you emotionally and stuff? Really if you ever just need to chat with someone...
  8. L

    Barbara Bush...

    Lindsay, that is an awesome experience. One thing I did when my daughter was born was I started to keep a journal of just little things that she did and the feelings that I was having. I thought it would be really special for her to have when she was older. Just an idea. Has Erin had her...
  9. L

    Do you ever get jealous?

    intheIMAGEofHim I guess what always bothered me the most is that my friends never had to worry about things like insurance. It just didn't register with them because it wasn't that big of a deal. Other than that I tried to never let CF get in the way of my future. I knew that I could still...
  10. L

    EXTREMELY more sad than I've ever been!

    Lindsay, I am sure you have already heard everything that I have to offer, but I just wanted to let you know that I am thinking of you. I know that even though you thought you were prepared you still clung to that hope of 2%. We all do it. It is always good to have a great support system...
  11. L

    CF and Employment

    I am 25 years old and am currently on SSDI. I have worked since I was 14 years old. 2 years ago I was working at a great job helping people with disabililties find homes and then help to maintain those homes and keep everybody happy. Anyway, during my 1 1/2 years working there I went in the...
  12. L

    Hemoptysis & Humidity

    Melissa I can totally relate with your frustration. As for the humidity, I am not sure that is a key factor. I live in a very dry area and I have had some severe bleeds. I have come to realize that I don't always know when an infection is getting worse. For me being more tired is a big...
  13. L

    How and when to tell a child that he has cf

    I don't remember my parents ever actually sitting me down and saying that you have CF. My older brother has it too. We just both knew. However my older brother apparently didn't know that it was a disease that you could die from. He found that out when he was 13 by reading a newspaper...
  14. L

    TPN

    Lindsay congrats on your little girl getting her bottle back.. Man she must be a fighter if she already one that battle<img src="i/expressions/face-icon-small-smile.gif" border="0">. Where are they putting her IV. When I was a baby I had a blockage in my intestine so they had to remove part of...
  15. L

    Putting on my Happy Face

    sorry I didn't mean to pu that on their twice.<img src="i/expressions/face-icon-small-blush.gif" border="0"> Emilee with 2 e's
  16. L

    Putting on my Happy Face

    I think we all have bad days. It is a part of life and a part of feeling. If you didn't have bad days and just let everything roll off your back then I think you would have a problem. I am a lot like you. Always with a smile even when I am hurting or sick. But that doesn't mean that it's...
  17. L

    Putting on my Happy Face

    I think we all have bad days. It is a part of life and a part of feeling. If you didn't have bad days and just let everything roll off your back then I think you would have a problem. I am a lot like you. Always with a smile even when I am hurting or sick. But that doesn't mean that it's...
  18. L

    Little bit of fun

    I don't know that this was really dumb question, but it ended up I think being rather hilarious. Anyway, a guy that had seen me a few times at school asked me how long I had been sick. I was then 21. I said my whole life. Then I told him I had CF. He asked what the prognosis was and I said...
  19. L

    Port Placement Options

    Well it is certainly not that I try to hide my CF. I am not ashamed. My close mindedness to it is mostly due to the fact that I don't want something sticking out of me all of the time. And I have had blood clots with picks and had to go on blood thinners, this is scary since I have had severe...
  20. L

    I want to gain weight and also getting married and need help!

    Dear Michelle, I too have had some problem gaining weight. I have boost plus drinks that I do everyday. I don't know if you will like them or not. I get them through a hospital at their cost so it isn't as expensive as buying them at the grocery store. AS for insurance problems, well...
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