Cystic Fibrosis Forum (EXP)

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  1. I

    I just found out my son's mutation!

    I did have a great conversation with Steve from Ambry..at the CF convention last Friday. He may have some ideas..he is a genetic counselor who is available right here at our site! Jeanne
  2. I

    I just found out my son's mutation!

    I did have a great conversation with Steve from Ambry..at the CF convention last Friday. He may have some ideas..he is a genetic counselor who is available right here at our site! Jeanne
  3. I

    I just found out my son's mutation!

    I did have a great conversation with Steve from Ambry..at the CF convention last Friday. He may have some ideas..he is a genetic counselor who is available right here at our site! Jeanne
  4. I

    RUN SARAH RUN

    Thanks so much Jenn and all...we are using this day to send positive energy in all your directions...especially those who asked for prayers and those who can use them! Love and HUGS Jeanne
  5. I

    RUN SARAH RUN

    Thanks so much Jenn and all...we are using this day to send positive energy in all your directions...especially those who asked for prayers and those who can use them! Love and HUGS Jeanne
  6. I

    RUN SARAH RUN

    Thanks so much Jenn and all...we are using this day to send positive energy in all your directions...especially those who asked for prayers and those who can use them! Love and HUGS Jeanne
  7. I

    Would this be helpful for the site?

    I attended the <a target=_blank class=ftalternatingbarlinklarge href="http://www.dtcperspectives.com/">DTCperspectives conference </a>here in NJ last week...a conference for Pharmas and their marketing agencies. I made contact with extremely creative companies ...working with Pharmas to bring...
  8. I

    Would this be helpful for the site?

    I attended the <a target=_blank class=ftalternatingbarlinklarge href="http://www.dtcperspectives.com/">DTCperspectives conference </a>here in NJ last week...a conference for Pharmas and their marketing agencies. I made contact with extremely creative companies ...working with Pharmas to bring...
  9. I

    Would this be helpful for the site?

    I attended the <a target=_blank class=ftalternatingbarlinklarge href="http://www.dtcperspectives.com/">DTCperspectives conference </a>here in NJ last week...a conference for Pharmas and their marketing agencies. I made contact with extremely creative companies ...working with Pharmas to bring...
  10. I

    Would this be helpful for the site?

    I will bring your concerns to the the conference in Denver this week. I will be meeting with representatives from the different Pharmas concerning education here at the site. I'll let you know how it goes. Candice, we did install the Wiki programming..how are you suggesting we get people...
  11. I

    Would this be helpful for the site?

    I will bring your concerns to the the conference in Denver this week. I will be meeting with representatives from the different Pharmas concerning education here at the site. I'll let you know how it goes. Candice, we did install the Wiki programming..how are you suggesting we get people...
  12. I

    Would this be helpful for the site?

    I will bring your concerns to the the conference in Denver this week. I will be meeting with representatives from the different Pharmas concerning education here at the site. I'll let you know how it goes. Candice, we did install the Wiki programming..how are you suggesting we get people...
  13. I

    Soliciting our community

    Thanks Lou Lou. I spend time looking for good sponsors, ones that would have meaning to our community. I have many in the works. I think this will add to the value for the community. One of my goals is to have relational sponsors. PARI is an example of a company who will answer our...
  14. I

    Soliciting our community

    We agree! We didn't know this company. When we told them our policy, they ignored us! Jeanne
  15. I

    Soliciting our community

    We do our best to protect everyone's privacy. We are presently wary of a recent solicitation for "participating in a study" (this morning and last night). We have banned their known IP address. We have reported them. We cannot verify the validity or veracity of the solicitor. We suggest...
  16. I

    New Forums. . .

    I asked Bill to run a poll. What should the title be? spouses? significant others? ?? :>j
  17. I

    Oh No!

    The great thing about these forums is that we can turn the anonymous postings on or off. The advantage of the anonymous postings is we get many people responding to messages who wouldn't if they had to sign in. Also, we get many more messages. I think we all know the disadvantages...they...
  18. I

    when did the anons come back?

    Chipper I'll have to show this to Bill... for now The great thing about these forums is that we can turn the anonymous postings on or off. The advantage of the anonymous postings is we get many people responding to messages who wouldn't if they had to sign in. Also, we get many more...
  19. I

    Casey

    compliance Katie: Our thoughts and prayers are with you! Casey was indeed lucky to have you. Jeanne
  20. I

    Cafe Press

    This is the family...clockwise....daughter Annie 12:00 son Andrew (adopted from Korea)and his girlfriend, Jeanne, Sarah's husband, Alex(Sarah's son), daughter Sarah and crying baby Stephen, (6:00) daughter Mary Helen and baby Jack, Evan (Sarah's second son), granddaughter Julia with her dad...
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