Cystic Fibrosis Forum (EXP)

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  1. P

    stomach flu

    My daughter, before she was diagnosed, always had white poos that were wierd consistancies. That was my description to his specialist and he always looked at me weird. I have an idea that it had to do with malabsorption since it has been normal colour since starting enzymes.
  2. P

    Getting pregnant again...IVF/PGD

    My husband and I have three beautiful children. Our middle child Ainsley was diagnosed five months ago, just before we were going to start trying for number 4 ( I know we must be crazzy), we actually were planning to go for 5. A couple months after diagnosis, we made a hard decision and my...
  3. P

    Getting pregnant again...IVF/PGD

    My husband and I have three beautiful children. Our middle child Ainsley was diagnosed five months ago, just before we were going to start trying for number 4 ( I know we must be crazzy), we actually were planning to go for 5. A couple months after diagnosis, we made a hard decision and my...
  4. P

    Getting pregnant again...IVF/PGD

    My husband and I have three beautiful children. Our middle child Ainsley was diagnosed five months ago, just before we were going to start trying for number 4 ( I know we must be crazzy), we actually were planning to go for 5. A couple months after diagnosis, we made a hard decision and my...
  5. P

    Share your Stories w/ me

    Hi Meghan, I'm also from ontario and am a new CF mom, I have 3 kids 5, 3, and 1. Our middle child, our only girl was diagnosed with CF in September and I feel your study touches base with alot of my personal concerns. The past year for our family has been difficult. My husband lost his job...
  6. P

    Share your Stories w/ me

    Hi Meghan, I'm also from ontario and am a new CF mom, I have 3 kids 5, 3, and 1. Our middle child, our only girl was diagnosed with CF in September and I feel your study touches base with alot of my personal concerns. The past year for our family has been difficult. My husband lost his job...
  7. P

    Share your Stories w/ me

    Hi Meghan, I'm also from ontario and am a new CF mom, I have 3 kids 5, 3, and 1. Our middle child, our only girl was diagnosed with CF in September and I feel your study touches base with alot of my personal concerns. The past year for our family has been difficult. My husband lost his job...
  8. P

    sweat test tomorrow...concerned mom

    I have been there and know excactly how you're feeling. CF is the last thing we wanted to here, and now when people talk about asthma, I wish we go back to the days when we thought our daughter had asthma. Like I've said before, knowledge is power, and to know means you can put your "game face"...
  9. P

    sweat test tomorrow...concerned mom

    I have been there and know excactly how you're feeling. CF is the last thing we wanted to here, and now when people talk about asthma, I wish we go back to the days when we thought our daughter had asthma. Like I've said before, knowledge is power, and to know means you can put your "game face"...
  10. P

    sweat test tomorrow...concerned mom

    I have been there and know excactly how you're feeling. CF is the last thing we wanted to here, and now when people talk about asthma, I wish we go back to the days when we thought our daughter had asthma. Like I've said before, knowledge is power, and to know means you can put your "game face"...
  11. P

    Feeling Neurotic

    I'm Soooo glad I found this sight! My name is Rebecca, and I am a mother of 3. Payton 5, Ainsley 3 and Calder 17 months. Our daughter Ainsley was diagnosed with Cystic Fibrosis in September and her health has been our main concern on a daily basis. On top of seeing her CF doctor, we have also...
  12. P

    Feeling Neurotic

    I'm Soooo glad I found this sight! My name is Rebecca, and I am a mother of 3. Payton 5, Ainsley 3 and Calder 17 months. Our daughter Ainsley was diagnosed with Cystic Fibrosis in September and her health has been our main concern on a daily basis. On top of seeing her CF doctor, we have also...
  13. P

    Feeling Neurotic

    I'm Soooo glad I found this sight! My name is Rebecca, and I am a mother of 3. Payton 5, Ainsley 3 and Calder 17 months. Our daughter Ainsley was diagnosed with Cystic Fibrosis in September and her health has been our main concern on a daily basis. On top of seeing her CF doctor, we have also...
  14. P

    SCARED

    Our daughter Ainsley is now 3 and was diagnosed 5 months ago. Waiting for the results of her tests was scary and I had almost wished that I could go back in time and not have done them so that life would stay the same. In my situation, I felt like fear wouldn't help my child, so I harnessed...
  15. P

    SCARED

    Our daughter Ainsley is now 3 and was diagnosed 5 months ago. Waiting for the results of her tests was scary and I had almost wished that I could go back in time and not have done them so that life would stay the same. In my situation, I felt like fear wouldn't help my child, so I harnessed...
  16. P

    SCARED

    Our daughter Ainsley is now 3 and was diagnosed 5 months ago. Waiting for the results of her tests was scary and I had almost wished that I could go back in time and not have done them so that life would stay the same. In my situation, I felt like fear wouldn't help my child, so I harnessed...
  17. P

    The Specialist Merry-Go-round

    The thing that I have learned since our daughter's diagnosis five months ago is to trust your instincts and be tenacious. Our daughter is now three and I had been saying since day one that something wasn't right. I was made to feel like an idiot by my doctor as well as family members who thought...
  18. P

    The Specialist Merry-Go-round

    The thing that I have learned since our daughter's diagnosis five months ago is to trust your instincts and be tenacious. Our daughter is now three and I had been saying since day one that something wasn't right. I was made to feel like an idiot by my doctor as well as family members who thought...
  19. P

    The Specialist Merry-Go-round

    The thing that I have learned since our daughter's diagnosis five months ago is to trust your instincts and be tenacious. Our daughter is now three and I had been saying since day one that something wasn't right. I was made to feel like an idiot by my doctor as well as family members who thought...
  20. P

    Daughter aged seven, diagnosed six months ago.

    Hi Cathy, my name is Rebecca Krienselokker, I live in Ontario, Canada. I have three children, Payton 5, Ainsley 3 and Calder 17 months. Ainsley was diagnosed five months ago with Cystic Fibrosis and I can say life has definately changed for us. Your story sounds quite familiar, doctors murmurs...
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