Cystic Fibrosis Forum (EXP)

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  1. K

    Working CF into your Day at Work

    Hello, I work part time so my situation is a little bit different. I am faithful about doing my nebs & vest before work so I don't go in till 10. That way I can clear my lungs a little (I'm always congested more in the a.m.). Other than that, I just make sure I do my nebs & vest again before bed...
  2. K

    Working CF into your Day at Work

    Hello, I work part time so my situation is a little bit different. I am faithful about doing my nebs & vest before work so I don't go in till 10. That way I can clear my lungs a little (I'm always congested more in the a.m.). Other than that, I just make sure I do my nebs & vest again before bed...
  3. K

    Not Satisfied

    ~Original Poster~ Is there any website to find what exactly the CFF demands a hospital (CF center)to do for infection control. I tried 'googling' it but didn't come up with anything helpful and LouLou's link didn't go anywhere for me. Thanks, KELLI
  4. K

    Not Satisfied

    ~Original Poster~ Is there any website to find what exactly the CFF demands a hospital (CF center)to do for infection control. I tried 'googling' it but didn't come up with anything helpful and LouLou's link didn't go anywhere for me. Thanks, KELLI
  5. K

    Not Satisfied

    ~Original Poster~ Is there any website to find what exactly the CFF demands a hospital (CF center)to do for infection control. I tried 'googling' it but didn't come up with anything helpful and LouLou's link didn't go anywhere for me. Thanks, KELLI
  6. K

    What do you take?

    OK, My sister called the local CF Center and there IS a Tobi inhailer but it's not out yet. Only people who are in the study have it but they are working on one. Cross your fingers that it will be available soon. <img src="i/expressions/face-icon-small-smile.gif" border="0"> KELLI
  7. K

    What do you take?

    OK, My sister called the local CF Center and there IS a Tobi inhailer but it's not out yet. Only people who are in the study have it but they are working on one. Cross your fingers that it will be available soon. <img src="i/expressions/face-icon-small-smile.gif" border="0"> KELLI
  8. K

    What do you take?

    OK, My sister called the local CF Center and there IS a Tobi inhailer but it's not out yet. Only people who are in the study have it but they are working on one. Cross your fingers that it will be available soon. <img src="i/expressions/face-icon-small-smile.gif" border="0"> KELLI
  9. K

    What do you take?

    Darn, I was all excited about a Tobi inhailer. I wish there was one. Maybe they will come up with one. Stay healthy! Kelli
  10. K

    What do you take?

    Darn, I was all excited about a Tobi inhailer. I wish there was one. Maybe they will come up with one. Stay healthy! Kelli
  11. K

    What do you take?

    Darn, I was all excited about a Tobi inhailer. I wish there was one. Maybe they will come up with one. Stay healthy! Kelli
  12. K

    Not Satisfied

    Hello everyone, There may be posts on this already but I wanted to know how you guys feel and how how handle things when you are not satisfied with your clinic protocals,etc. Last time I went to clinic, I was less than trilled! I don't have cepacia but I was put on the cepacia hallway due to a...
  13. K

    Not Satisfied

    Hello everyone, There may be posts on this already but I wanted to know how you guys feel and how how handle things when you are not satisfied with your clinic protocals,etc. Last time I went to clinic, I was less than trilled! I don't have cepacia but I was put on the cepacia hallway due to a...
  14. K

    Not Satisfied

    Hello everyone, There may be posts on this already but I wanted to know how you guys feel and how how handle things when you are not satisfied with your clinic protocals,etc. Last time I went to clinic, I was less than trilled! I don't have cepacia but I was put on the cepacia hallway due to a...
  15. K

    What do you take?

    Lance2020x, Are you saying there is a Tobi inhailer? I have never even heard of this. I did the Tobi aerosols but couldn't handle them (made my chest too tight and I'd choke/cough, etc). Is the inhailer as effective as the aerosol? Let me know what you think of it...... or anyone else who takes...
  16. K

    What do you take?

    Lance2020x, Are you saying there is a Tobi inhailer? I have never even heard of this. I did the Tobi aerosols but couldn't handle them (made my chest too tight and I'd choke/cough, etc). Is the inhailer as effective as the aerosol? Let me know what you think of it...... or anyone else who takes...
  17. K

    What do you take?

    Lance2020x, Are you saying there is a Tobi inhailer? I have never even heard of this. I did the Tobi aerosols but couldn't handle them (made my chest too tight and I'd choke/cough, etc). Is the inhailer as effective as the aerosol? Let me know what you think of it...... or anyone else who takes...
  18. K

    Exercise & Pulmonary Rehab Question

    ~ORIGINAL POSTER~ When you work out at Curves you do a circuit (which means, they have all the machines set up and you go in a circle until you're done.) You only work out 30 minutes 3 or 4 times per week. Like I said, all of the machines are already set up so you don't have to think about what...
  19. K

    Exercise & Pulmonary Rehab Question

    ~ORIGINAL POSTER~ When you work out at Curves you do a circuit (which means, they have all the machines set up and you go in a circle until you're done.) You only work out 30 minutes 3 or 4 times per week. Like I said, all of the machines are already set up so you don't have to think about what...
  20. K

    Exercise & Pulmonary Rehab Question

    ~ORIGINAL POSTER~ When you work out at Curves you do a circuit (which means, they have all the machines set up and you go in a circle until you're done.) You only work out 30 minutes 3 or 4 times per week. Like I said, all of the machines are already set up so you don't have to think about what...
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