Cystic Fibrosis Forum (EXP)

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  1. J

    my puppy

    Great job! Give that little guy a few treats and lots of pats. <img src="i/expressions/face-icon-small-tongue.gif" border="0">
  2. J

    my puppy

    Great job! Give that little guy a few treats and lots of pats. <img src="i/expressions/face-icon-small-tongue.gif" border="0">
  3. J

    my puppy

    Great job! Give that little guy a few treats and lots of pats. <img src="i/expressions/face-icon-small-tongue.gif" border="0">
  4. J

    my puppy

    Great job! Give that little guy a few treats and lots of pats. <img src="i/expressions/face-icon-small-tongue.gif" border="0">
  5. J

    my puppy

    Great job! Give that little guy a few treats and lots of pats. <img src="i/expressions/face-icon-small-tongue.gif" border="0">
  6. J

    Have a Read

    Actually, they are doing a clinical trial to see if it works on Delta F508, as well. Our clinic is participating. According to the CFF website: "VX-770, the most advanced of the two compounds, is known as a potentiator and is designed to allow CFTR located at the cell surface to function...
  7. J

    Have a Read

    Actually, they are doing a clinical trial to see if it works on Delta F508, as well. Our clinic is participating. According to the CFF website: "VX-770, the most advanced of the two compounds, is known as a potentiator and is designed to allow CFTR located at the cell surface to function...
  8. J

    Have a Read

    Actually, they are doing a clinical trial to see if it works on Delta F508, as well. Our clinic is participating. According to the CFF website: "VX-770, the most advanced of the two compounds, is known as a potentiator and is designed to allow CFTR located at the cell surface to function...
  9. J

    Have a Read

    Actually, they are doing a clinical trial to see if it works on Delta F508, as well. Our clinic is participating. According to the CFF website: "VX-770, the most advanced of the two compounds, is known as a potentiator and is designed to allow CFTR located at the cell surface to function...
  10. J

    Have a Read

    Actually, they are doing a clinical trial to see if it works on Delta F508, as well. Our clinic is participating. <br /> <br />According to the CFF website: <br /> <br />"VX-770, the most advanced of the two compounds, is known as a potentiator and is designed to allow CFTR located at the...
  11. J

    Mild CF - no need for treatment?

    I know I responded to your PM, but I wanted to reiterate what I said here. First of all, did she have testing to decide that she had CF? Sweat test? Genetic test? If not, that would be my first step. Secondly, if the tests proved that she had CF, I disagree about her having a mild case and...
  12. J

    Mild CF - no need for treatment?

    I know I responded to your PM, but I wanted to reiterate what I said here. First of all, did she have testing to decide that she had CF? Sweat test? Genetic test? If not, that would be my first step. Secondly, if the tests proved that she had CF, I disagree about her having a mild case and...
  13. J

    Mild CF - no need for treatment?

    I know I responded to your PM, but I wanted to reiterate what I said here. First of all, did she have testing to decide that she had CF? Sweat test? Genetic test? If not, that would be my first step. Secondly, if the tests proved that she had CF, I disagree about her having a mild case and...
  14. J

    Mild CF - no need for treatment?

    I know I responded to your PM, but I wanted to reiterate what I said here. First of all, did she have testing to decide that she had CF? Sweat test? Genetic test? If not, that would be my first step. Secondly, if the tests proved that she had CF, I disagree about her having a mild case and...
  15. J

    Mild CF - no need for treatment?

    I know I responded to your PM, but I wanted to reiterate what I said here. <br /> <br />First of all, did she have testing to decide that she had CF? Sweat test? Genetic test? If not, that would be my first step. Secondly, if the tests proved that she had CF, I disagree about her having a mild...
  16. J

    scared fo results tomorrow

    Lots of people on here thought they couldn't do normal activities and then it turned out that they could. Many CFers are married, have kids, went to college, have careers and exercise regularly even with lung function tests of 40-60%. Check out Ronnie Sharpe's blog for the exercise one. He is...
  17. J

    scared fo results tomorrow

    Lots of people on here thought they couldn't do normal activities and then it turned out that they could. Many CFers are married, have kids, went to college, have careers and exercise regularly even with lung function tests of 40-60%. Check out Ronnie Sharpe's blog for the exercise one. He is...
  18. J

    scared fo results tomorrow

    Lots of people on here thought they couldn't do normal activities and then it turned out that they could. Many CFers are married, have kids, went to college, have careers and exercise regularly even with lung function tests of 40-60%. Check out Ronnie Sharpe's blog for the exercise one. He is...
  19. J

    scared fo results tomorrow

    Lots of people on here thought they couldn't do normal activities and then it turned out that they could. Many CFers are married, have kids, went to college, have careers and exercise regularly even with lung function tests of 40-60%. Check out Ronnie Sharpe's blog for the exercise one. He is...
  20. J

    scared fo results tomorrow

    Lots of people on here thought they couldn't do normal activities and then it turned out that they could. Many CFers are married, have kids, went to college, have careers and exercise regularly even with lung function tests of 40-60%. Check out Ronnie Sharpe's blog for the exercise one. He is...
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