Cystic Fibrosis Forum (EXP)

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  1. K

    CF and childhood bone mineralization

    Thanks for the info. I'm adding this to my list of things to discuss with the doctor at our next visit (the other one is a hearing test to establish a baseline). The hearing test idea was prompted by a recent post on Tobramycin and hearing loss, plus I swear when Katy's on her TOBI cycle she...
  2. K

    CF and childhood bone mineralization

    Thanks for the info. I'm adding this to my list of things to discuss with the doctor at our next visit (the other one is a hearing test to establish a baseline). The hearing test idea was prompted by a recent post on Tobramycin and hearing loss, plus I swear when Katy's on her TOBI cycle she...
  3. K

    CF and childhood bone mineralization

    Thanks for the info. I'm adding this to my list of things to discuss with the doctor at our next visit (the other one is a hearing test to establish a baseline). The hearing test idea was prompted by a recent post on Tobramycin and hearing loss, plus I swear when Katy's on her TOBI cycle she...
  4. K

    CF and childhood bone mineralization

    Thanks for the info. I'm adding this to my list of things to discuss with the doctor at our next visit (the other one is a hearing test to establish a baseline). The hearing test idea was prompted by a recent post on Tobramycin and hearing loss, plus I swear when Katy's on her TOBI cycle she...
  5. K

    i am confused

    Hi raysmama - I got your PM but I'm going to reply here. I am really sorry for the diagnosis but I assure you - you CAN do this! Just give yourself some time. I think there is still some diagnostic value to the sweat test (<b>okok</b> has the reasons for this) It varies by specailist/clinic...
  6. K

    i am confused

    Hi raysmama - I got your PM but I'm going to reply here. I am really sorry for the diagnosis but I assure you - you CAN do this! Just give yourself some time. I think there is still some diagnostic value to the sweat test (<b>okok</b> has the reasons for this) It varies by specailist/clinic...
  7. K

    i am confused

    Hi raysmama - I got your PM but I'm going to reply here. I am really sorry for the diagnosis but I assure you - you CAN do this! Just give yourself some time. I think there is still some diagnostic value to the sweat test (<b>okok</b> has the reasons for this) It varies by specailist/clinic...
  8. K

    i am confused

    Hi raysmama - I got your PM but I'm going to reply here. I am really sorry for the diagnosis but I assure you - you CAN do this! Just give yourself some time. I think there is still some diagnostic value to the sweat test (<b>okok</b> has the reasons for this) It varies by specailist/clinic...
  9. K

    i am confused

    Hi raysmama - I got your PM but I'm going to reply here. I am really sorry for the diagnosis but I assure you - you CAN do this! Just give yourself some time. I think there is still some diagnostic value to the sweat test (<b>okok</b> has the reasons for this) It varies by specailist/clinic...
  10. K

    i am confused

    Hi raysmama - I got your PM but I'm going to reply here. I am really sorry for the diagnosis but I assure you - you CAN do this! Just give yourself some time. I think there is still some diagnostic value to the sweat test (<b>okok</b> has the reasons for this) It varies by specailist/clinic...
  11. K

    PA in Tap Water

    The package insert that comes with the PARI LC PLUS reusable nebulizer says on page 9 <i>For patients with Cystic Fibrosis, the CF Foundation recommends boiling for a full 10 minutes to disinfect.</i> I just recently ordered a set of 7 new nebs for the same reason that you ordered your new...
  12. K

    PA in Tap Water

    The package insert that comes with the PARI LC PLUS reusable nebulizer says on page 9 <i>For patients with Cystic Fibrosis, the CF Foundation recommends boiling for a full 10 minutes to disinfect.</i> I just recently ordered a set of 7 new nebs for the same reason that you ordered your new...
  13. K

    PA in Tap Water

    The package insert that comes with the PARI LC PLUS reusable nebulizer says on page 9 <i>For patients with Cystic Fibrosis, the CF Foundation recommends boiling for a full 10 minutes to disinfect.</i> I just recently ordered a set of 7 new nebs for the same reason that you ordered your new...
  14. K

    PA in Tap Water

    The package insert that comes with the PARI LC PLUS reusable nebulizer says on page 9 <i>For patients with Cystic Fibrosis, the CF Foundation recommends boiling for a full 10 minutes to disinfect.</i> I just recently ordered a set of 7 new nebs for the same reason that you ordered your new...
  15. K

    PA in Tap Water

    The package insert that comes with the PARI LC PLUS reusable nebulizer says on page 9 <i>For patients with Cystic Fibrosis, the CF Foundation recommends boiling for a full 10 minutes to disinfect.</i> I just recently ordered a set of 7 new nebs for the same reason that you ordered your new...
  16. K

    PA in Tap Water

    The package insert that comes with the PARI LC PLUS reusable nebulizer says on page 9 <i>For patients with Cystic Fibrosis, the CF Foundation recommends boiling for a full 10 minutes to disinfect.</i> I just recently ordered a set of 7 new nebs for the same reason that you ordered your new...
  17. K

    June 22 Update on Lo

    Lo and your family, I am sending you hope, comfort, peace, and love.<img src="i/expressions/rose.gif" border="0">
  18. K

    June 22 Update on Lo

    Lo and your family, I am sending you hope, comfort, peace, and love.<img src="i/expressions/rose.gif" border="0">
  19. K

    June 22 Update on Lo

    Lo and your family, I am sending you hope, comfort, peace, and love.<img src="i/expressions/rose.gif" border="0">
  20. K

    June 22 Update on Lo

    Lo and your family, I am sending you hope, comfort, peace, and love.<img src="i/expressions/rose.gif" border="0">
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