Cystic Fibrosis Forum (EXP)

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  1. A

    supplimental security for baby

    try asking Julie on this site - she helps a lot of people, but it might be with SSDI instead of SSI. Send her a private message - I believe her user name is just <b>Julie</b> You could also try contacting Beth - she is an attorney in Texas who also has CF. She can help you for free because of...
  2. A

    supplimental security for baby

    try asking Julie on this site - she helps a lot of people, but it might be with SSDI instead of SSI. Send her a private message - I believe her user name is just <b>Julie</b> You could also try contacting Beth - she is an attorney in Texas who also has CF. She can help you for free because of...
  3. A

    supplimental security for baby

    try asking Julie on this site - she helps a lot of people, but it might be with SSDI instead of SSI. Send her a private message - I believe her user name is just <b>Julie</b> You could also try contacting Beth - she is an attorney in Texas who also has CF. She can help you for free because of...
  4. A

    supplimental security for baby

    try asking Julie on this site - she helps a lot of people, but it might be with SSDI instead of SSI. Send her a private message - I believe her user name is just <b>Julie</b> You could also try contacting Beth - she is an attorney in Texas who also has CF. She can help you for free because of...
  5. A

    supplimental security for baby

    try asking Julie on this site - she helps a lot of people, but it might be with SSDI instead of SSI. Send her a private message - I believe her user name is just <b>Julie</b> <br /> <br />You could also try contacting Beth - she is an attorney in Texas who also has CF. She can help you for free...
  6. A

    IS IT CF?

    I just want to say ditto on a few things - full genetic sequencing is the very best option...yes there are over 1500 genes and as Stacy said testing you for only 25 is inadequate. Sweat tests can definately be misleading, many people with normal sweat test numbers have genetically confirmed...
  7. A

    IS IT CF?

    I just want to say ditto on a few things - full genetic sequencing is the very best option...yes there are over 1500 genes and as Stacy said testing you for only 25 is inadequate. Sweat tests can definately be misleading, many people with normal sweat test numbers have genetically confirmed...
  8. A

    IS IT CF?

    I just want to say ditto on a few things - full genetic sequencing is the very best option...yes there are over 1500 genes and as Stacy said testing you for only 25 is inadequate. Sweat tests can definately be misleading, many people with normal sweat test numbers have genetically confirmed...
  9. A

    IS IT CF?

    I just want to say ditto on a few things - full genetic sequencing is the very best option...yes there are over 1500 genes and as Stacy said testing you for only 25 is inadequate. Sweat tests can definately be misleading, many people with normal sweat test numbers have genetically confirmed...
  10. A

    IS IT CF?

    I just want to say ditto on a few things - full genetic sequencing is the very best option...yes there are over 1500 genes and as Stacy said testing you for only 25 is inadequate. Sweat tests can definately be misleading, many people with normal sweat test numbers have genetically confirmed...
  11. A

    CF and brain abcesses

    Wow! Thanks for bringing this to our attention...I think ? Crap, what are you supposed to be able to do about it though? We all try to do what we can against PA already....this sounds really awful.
  12. A

    CF and brain abcesses

    Wow! Thanks for bringing this to our attention...I think ? Crap, what are you supposed to be able to do about it though? We all try to do what we can against PA already....this sounds really awful.
  13. A

    CF and brain abcesses

    Wow! Thanks for bringing this to our attention...I think ? Crap, what are you supposed to be able to do about it though? We all try to do what we can against PA already....this sounds really awful.
  14. A

    CF and brain abcesses

    Wow! Thanks for bringing this to our attention...I think ? Crap, what are you supposed to be able to do about it though? We all try to do what we can against PA already....this sounds really awful.
  15. A

    CF and brain abcesses

    Wow! Thanks for bringing this to our attention...I think ? Crap, what are you supposed to be able to do about it though? We all try to do what we can against PA already....this sounds really awful.
  16. A

    Insurance issues

    What? How the hell can they say they cannot talk to you about it? That's the craziest thing I've ever heard...is there something more to your coverage than just the usual policy? I have done medical billing and have quite a bit of insurance related experience and have never had a insurance...
  17. A

    Insurance issues

    What? How the hell can they say they cannot talk to you about it? That's the craziest thing I've ever heard...is there something more to your coverage than just the usual policy? I have done medical billing and have quite a bit of insurance related experience and have never had a insurance...
  18. A

    Insurance issues

    What? How the hell can they say they cannot talk to you about it? That's the craziest thing I've ever heard...is there something more to your coverage than just the usual policy? I have done medical billing and have quite a bit of insurance related experience and have never had a insurance...
  19. A

    Insurance issues

    What? How the hell can they say they cannot talk to you about it? That's the craziest thing I've ever heard...is there something more to your coverage than just the usual policy? I have done medical billing and have quite a bit of insurance related experience and have never had a insurance...
  20. A

    Insurance issues

    What? How the hell can they say they cannot talk to you about it? That's the craziest thing I've ever heard...is there something more to your coverage than just the usual policy? I have done medical billing and have quite a bit of insurance related experience and have never had a insurance...
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