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Strange, DH asked this very same question last night. This will be our first Great Strides. I guess I was thinking that we could keep Katy close to us (her cousins will all be there and they'll keep her pretty well occupied). I'm living with rose colored glasses, perhaps? I know it is...

Strange, DH asked this very same question last night. This will be our first Great Strides. I guess I was thinking that we could keep Katy close to us (her cousins will all be there and they'll keep her pretty well occupied). I'm living with rose colored glasses, perhaps? I know it is...

Strange, DH asked this very same question last night. This will be our first Great Strides. I guess I was thinking that we could keep Katy close to us (her cousins will all be there and they'll keep her pretty well occupied). I'm living with rose colored glasses, perhaps? I know it is...

Aslo - we started the Vest, TOBI, and Pulmozyme right away because Katy cultured PA on her first cf doc visit. She was 3 years and 3 months old and weighed 30 pounds when she was dx. She doesn't have any other respiratory problems and has had 3 clear cultures since. But we still do these...

Aslo - we started the Vest, TOBI, and Pulmozyme right away because Katy cultured PA on her first cf doc visit. She was 3 years and 3 months old and weighed 30 pounds when she was dx. She doesn't have any other respiratory problems and has had 3 clear cultures since. But we still do these...

Aslo - we started the Vest, TOBI, and Pulmozyme right away because Katy cultured PA on her first cf doc visit. She was 3 years and 3 months old and weighed 30 pounds when she was dx. She doesn't have any other respiratory problems and has had 3 clear cultures since. But we still do these...

Welcome Melissa! <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>chattyfamily</b></i> What are some things that I can realistically expect that maybe the drs. don't want to speculate about with me?</end quote></div> That is an interesting question. I feel like I'm the type of...

Welcome Melissa! <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>chattyfamily</b></i> What are some things that I can realistically expect that maybe the drs. don't want to speculate about with me?</end quote></div> That is an interesting question. I feel like I'm the type of...

Welcome Melissa! <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>chattyfamily</b></i> What are some things that I can realistically expect that maybe the drs. don't want to speculate about with me?</end quote></div> That is an interesting question. I feel like I'm the type of...

I'll expand on Melissa's reply and clarify that any lab can DRAW the blood per your physician's request, then you should send it to Ambry with this form (hope the link works) Your physician would also request the level of testing. <a target=_blank class=ftalternatingbarlinklarge...

I'll expand on Melissa's reply and clarify that any lab can DRAW the blood per your physician's request, then you should send it to Ambry with this form (hope the link works) Your physician would also request the level of testing. <a target=_blank class=ftalternatingbarlinklarge...

I'll expand on Melissa's reply and clarify that any lab can DRAW the blood per your physician's request, then you should send it to Ambry with this form (hope the link works) Your physician would also request the level of testing. <a target=_blank class=ftalternatingbarlinklarge...

Beautiful and well done. I'm so glad you shared. It IS personal and private, and yet I feel that we have to get this window into our worlds out there to advocate for our children. Your girls are gorgeous and obviously full of love and life. I smiled through my tears. My heart goes out to...

Beautiful and well done. I'm so glad you shared. It IS personal and private, and yet I feel that we have to get this window into our worlds out there to advocate for our children. Your girls are gorgeous and obviously full of love and life. I smiled through my tears. My heart goes out to...

Beautiful and well done. I'm so glad you shared. It IS personal and private, and yet I feel that we have to get this window into our worlds out there to advocate for our children. Your girls are gorgeous and obviously full of love and life. I smiled through my tears. My heart goes out to...

Thank you for this information. It's just in time for our cf doc visit this coming Thursday. He has been wanting to put our Katy on HS. The possible improved appetite is especially encouraging! Hooray for Maggie!

Thank you for this information. It's just in time for our cf doc visit this coming Thursday. He has been wanting to put our Katy on HS. The possible improved appetite is especially encouraging! Hooray for Maggie!

Thank you for this information. It's just in time for our cf doc visit this coming Thursday. He has been wanting to put our Katy on HS. The possible improved appetite is especially encouraging! Hooray for Maggie!

Are they re-doing the sweat tests because they fell close to borderline? Are the sweat tests being done at an accredited center and do you feel that the docs are listening to your concerns? Does your son have any GI symptoms? Just thoughts that come to my mind. It sounds like the providers...

Are they re-doing the sweat tests because they fell close to borderline? Are the sweat tests being done at an accredited center and do you feel that the docs are listening to your concerns? Does your son have any GI symptoms? Just thoughts that come to my mind. It sounds like the providers...