Cystic Fibrosis Forum (EXP)

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  1. K

    Bummed out mom

    I understand how you are feeling. After 7 months of panic and grief since my dd's diagnosis, I've started to feel some stoic calmness just on the edges, trying to assert itself over my uncontrolled emotions. I attended the funeral for a co-worker's son (age 26, Down Syndrome) and handled the...
  2. K

    Bummed out mom

    I understand how you are feeling. After 7 months of panic and grief since my dd's diagnosis, I've started to feel some stoic calmness just on the edges, trying to assert itself over my uncontrolled emotions. I attended the funeral for a co-worker's son (age 26, Down Syndrome) and handled the...
  3. K

    We made a montage, too

    Yikes you guys saw right through me - is there too much information? You need a speed-reading course! Oh well, the damage is done, we've distributed the link. THANKS for your input. I tried to make sure I was clear on the statistic of median age - 36.8 didn't really roll off the tongue, so...
  4. K

    We made a montage, too

    Yikes you guys saw right through me - is there too much information? You need a speed-reading course! Oh well, the damage is done, we've distributed the link. THANKS for your input. I tried to make sure I was clear on the statistic of median age - 36.8 didn't really roll off the tongue, so...
  5. K

    We made a montage, too

    Yikes you guys saw right through me - is there too much information? You need a speed-reading course! Oh well, the damage is done, we've distributed the link. THANKS for your input. I tried to make sure I was clear on the statistic of median age - 36.8 didn't really roll off the tongue, so...
  6. K

    We made a montage, too

    Hi all - we finished our montage. For the others that have done one, was it as emotionally exhausting yet rewarding for you as it was for me? <a target=_blank class=ftalternatingbarlinklarge...
  7. K

    We made a montage, too

    Hi all - we finished our montage. For the others that have done one, was it as emotionally exhausting yet rewarding for you as it was for me? <a target=_blank class=ftalternatingbarlinklarge...
  8. K

    We made a montage, too

    Hi all - we finished our montage. For the others that have done one, was it as emotionally exhausting yet rewarding for you as it was for me? <a target=_blank class=ftalternatingbarlinklarge...
  9. K

    Advice for New Dad w/ 6 Wk. Old w/CF?

    I wanted to add that as a parent whose child went undiagnosed and suffered needlessly, I bring a certain baggage and bias to this discussion. I wish I had trusted my instincts earlier and pushed our docs harder. You have educated yourself and it sounds like you have good medical professionals...
  10. K

    Advice for New Dad w/ 6 Wk. Old w/CF?

    I wanted to add that as a parent whose child went undiagnosed and suffered needlessly, I bring a certain baggage and bias to this discussion. I wish I had trusted my instincts earlier and pushed our docs harder. You have educated yourself and it sounds like you have good medical professionals...
  11. K

    Advice for New Dad w/ 6 Wk. Old w/CF?

    I wanted to add that as a parent whose child went undiagnosed and suffered needlessly, I bring a certain baggage and bias to this discussion. I wish I had trusted my instincts earlier and pushed our docs harder. You have educated yourself and it sounds like you have good medical professionals...
  12. K

    Advice for New Dad w/ 6 Wk. Old w/CF?

    Wow I can't say it any better than Jean's post but I wanted you to know that your story broke my heart - because of the worry that you and your wife have been through. You are already so knowledgeable and that makes you the absolute best advocate for your beautiful Sophia. No, I have not...
  13. K

    Advice for New Dad w/ 6 Wk. Old w/CF?

    Wow I can't say it any better than Jean's post but I wanted you to know that your story broke my heart - because of the worry that you and your wife have been through. You are already so knowledgeable and that makes you the absolute best advocate for your beautiful Sophia. No, I have not...
  14. K

    Advice for New Dad w/ 6 Wk. Old w/CF?

    Wow I can't say it any better than Jean's post but I wanted you to know that your story broke my heart - because of the worry that you and your wife have been through. You are already so knowledgeable and that makes you the absolute best advocate for your beautiful Sophia. No, I have not...
  15. K

    IT'S KAYLEESGRAMMA'S BIRTHDAY TODAY!!!

    Had to pass on the chat last night but I DID indulge a little bit, in your honor <img src="i/expressions/beer.gif" border="0"> <img src="i/expressions/beer.gif" border="0"> <img src="i/expressions/beer.gif" border="0"> and today I'm feeling a little <img...
  16. K

    IT'S KAYLEESGRAMMA'S BIRTHDAY TODAY!!!

    Had to pass on the chat last night but I DID indulge a little bit, in your honor <img src="i/expressions/beer.gif" border="0"> <img src="i/expressions/beer.gif" border="0"> <img src="i/expressions/beer.gif" border="0"> and today I'm feeling a little <img...
  17. K

    IT'S KAYLEESGRAMMA'S BIRTHDAY TODAY!!!

    Had to pass on the chat last night but I DID indulge a little bit, in your honor <img src="i/expressions/beer.gif" border="0"> <img src="i/expressions/beer.gif" border="0"> <img src="i/expressions/beer.gif" border="0"> and today I'm feeling a little <img...
  18. K

    Going crazy!!!

    <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>worriedmom</b></i> They did the sweat test at JSMUC. We live in NJ..it is about 30 min from us. The tech that performed the test said they do about 4-5 per day. I'm new to this so I don't know if that is alot or not and she seemed...
  19. K

    Going crazy!!!

    <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>worriedmom</b></i> They did the sweat test at JSMUC. We live in NJ..it is about 30 min from us. The tech that performed the test said they do about 4-5 per day. I'm new to this so I don't know if that is alot or not and she seemed...
  20. K

    Going crazy!!!

    <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>worriedmom</b></i> They did the sweat test at JSMUC. We live in NJ..it is about 30 min from us. The tech that performed the test said they do about 4-5 per day. I'm new to this so I don't know if that is alot or not and she seemed...
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