Cystic Fibrosis Forum (EXP)

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  1. K

    Going crazy!!!

    <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Mommafirst</b></i> Step away from the computer screen. </end quote></div> LOL! So true! Reading too much at this point will only drive you crazy with worry and second guessing. Are they doing the sweat test somewhere that they...
  2. K

    Going crazy!!!

    <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Mommafirst</b></i> Step away from the computer screen. </end quote></div> LOL! So true! Reading too much at this point will only drive you crazy with worry and second guessing. Are they doing the sweat test somewhere that they...
  3. K

    Going crazy!!!

    <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Mommafirst</b></i> Step away from the computer screen. </end quote></div> LOL! So true! Reading too much at this point will only drive you crazy with worry and second guessing. Are they doing the sweat test somewhere that they...
  4. K

    13 year old Boy-can some one help me?

    I'm sorry that your family is not quite ready to jump on board with you. This is not uncommon and hopefully will change. I wonder if you can call Ambry and ask them which tests they are doing (I'm assuming you sent it to them failry recently?) I've looked at the form and you check which level...
  5. K

    13 year old Boy-can some one help me?

    I'm sorry that your family is not quite ready to jump on board with you. This is not uncommon and hopefully will change. I wonder if you can call Ambry and ask them which tests they are doing (I'm assuming you sent it to them failry recently?) I've looked at the form and you check which level...
  6. K

    13 year old Boy-can some one help me?

    I'm sorry that your family is not quite ready to jump on board with you. This is not uncommon and hopefully will change. I wonder if you can call Ambry and ask them which tests they are doing (I'm assuming you sent it to them failry recently?) I've looked at the form and you check which level...
  7. K

    How much public activity do you limit with your newborn with CF

    Our DD's stools are not constistantly normal but they are SO much different than they were pre-diagnosis (at age 3 years and 3 months). So I would venture to say that YES enzymes can correct to a close semblance of normal. By the way, graduate yourself on up to the Families section <img...
  8. K

    How much public activity do you limit with your newborn with CF

    Our DD's stools are not constistantly normal but they are SO much different than they were pre-diagnosis (at age 3 years and 3 months). So I would venture to say that YES enzymes can correct to a close semblance of normal. By the way, graduate yourself on up to the Families section <img...
  9. K

    How much public activity do you limit with your newborn with CF

    Our DD's stools are not constistantly normal but they are SO much different than they were pre-diagnosis (at age 3 years and 3 months). So I would venture to say that YES enzymes can correct to a close semblance of normal. By the way, graduate yourself on up to the Families section <img...
  10. K

    How much public activity do you limit with your newborn with CF

    We were started on Creon and they seem to work (according to her BM's) so we have not tried any others. I think I read that some are better at helping to digest carbs and some are better at helping to digest fats. Also there was a thread about this where Risa (EnergyGal) posted about vegetable...
  11. K

    How much public activity do you limit with your newborn with CF

    We were started on Creon and they seem to work (according to her BM's) so we have not tried any others. I think I read that some are better at helping to digest carbs and some are better at helping to digest fats. Also there was a thread about this where Risa (EnergyGal) posted about vegetable...
  12. K

    How much public activity do you limit with your newborn with CF

    We were started on Creon and they seem to work (according to her BM's) so we have not tried any others. I think I read that some are better at helping to digest carbs and some are better at helping to digest fats. Also there was a thread about this where Risa (EnergyGal) posted about vegetable...
  13. K

    hypertonic saline

    <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Rebjane</b></i> THe resp therapist also said to use albuterol treatment before the HS to help with the coughing.</end quote></div> Aaargh! I am reminded of why else I was skeptical of HS. We don't currently do Albuterol and I...
  14. K

    hypertonic saline

    <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Rebjane</b></i> THe resp therapist also said to use albuterol treatment before the HS to help with the coughing.</end quote></div> Aaargh! I am reminded of why else I was skeptical of HS. We don't currently do Albuterol and I...
  15. K

    hypertonic saline

    <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Rebjane</b></i> THe resp therapist also said to use albuterol treatment before the HS to help with the coughing.</end quote></div> Aaargh! I am reminded of why else I was skeptical of HS. We don't currently do Albuterol and I...
  16. K

    hypertonic saline

    Our doc keeps saying he "wants to talk about HS" at our next visit but so far he has put if off. But our next visit is the first part of April. I was worried before, but I'm really happy to see these posts. My biggest concern was that DD wouldn't be able to convey her side effects, if any...
  17. K

    hypertonic saline

    Our doc keeps saying he "wants to talk about HS" at our next visit but so far he has put if off. But our next visit is the first part of April. I was worried before, but I'm really happy to see these posts. My biggest concern was that DD wouldn't be able to convey her side effects, if any...
  18. K

    hypertonic saline

    Our doc keeps saying he "wants to talk about HS" at our next visit but so far he has put if off. But our next visit is the first part of April. I was worried before, but I'm really happy to see these posts. My biggest concern was that DD wouldn't be able to convey her side effects, if any...
  19. K

    How much public activity do you limit with your newborn with CF

    I'm going to add that with relatives, you generally KNOW before being with them that they are germy. The person in line next to you at Wal-Mart could have a fungus ball in their lung or maybe just got released from a nursing home but you wouldn't necessarilly know it. We DID know these things...
  20. K

    How much public activity do you limit with your newborn with CF

    I'm going to add that with relatives, you generally KNOW before being with them that they are germy. The person in line next to you at Wal-Mart could have a fungus ball in their lung or maybe just got released from a nursing home but you wouldn't necessarilly know it. We DID know these things...
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