Cystic Fibrosis Forum (EXP)

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  1. K

    How much public activity do you limit with your newborn with CF

    I'm going to add that with relatives, you generally KNOW before being with them that they are germy. The person in line next to you at Wal-Mart could have a fungus ball in their lung or maybe just got released from a nursing home but you wouldn't necessarilly know it. We DID know these things...
  2. K

    How much public activity do you limit with your newborn with CF

    Our DD wasn't diagnosed until she was three so when she was a newborn we were (blissfully?) unaware! But you have a few things going for you - your newborn has almost a whole year before the next cold and flu season comes around, and you are an experienced mom. So when you set some germ rules...
  3. K

    How much public activity do you limit with your newborn with CF

    Our DD wasn't diagnosed until she was three so when she was a newborn we were (blissfully?) unaware! But you have a few things going for you - your newborn has almost a whole year before the next cold and flu season comes around, and you are an experienced mom. So when you set some germ rules...
  4. K

    How much public activity do you limit with your newborn with CF

    Our DD wasn't diagnosed until she was three so when she was a newborn we were (blissfully?) unaware! But you have a few things going for you - your newborn has almost a whole year before the next cold and flu season comes around, and you are an experienced mom. So when you set some germ rules...
  5. K

    suspicion of cf

    I'm going to interrupt this thread for a moment to say - Oh my goodness, Liza, what a story. I'm saying a prayer for that girl and her family. How completely senseless. <img src="i/expressions/brokenheart.gif" border="0">
  6. K

    suspicion of cf

    I'm going to interrupt this thread for a moment to say - Oh my goodness, Liza, what a story. I'm saying a prayer for that girl and her family. How completely senseless. <img src="i/expressions/brokenheart.gif" border="0">
  7. K

    suspicion of cf

    I'm going to interrupt this thread for a moment to say - Oh my goodness, Liza, what a story. I'm saying a prayer for that girl and her family. How completely senseless. <img src="i/expressions/brokenheart.gif" border="0">
  8. K

    BLOG PROBLEMS

    Didn't work for me either and I also must know what the school nurse said.... EDITED TO ADD: Okay now it works for me at 5:48 a.m. CST - on to the reading!
  9. K

    BLOG PROBLEMS

    Didn't work for me either and I also must know what the school nurse said.... EDITED TO ADD: Okay now it works for me at 5:48 a.m. CST - on to the reading!
  10. K

    BLOG PROBLEMS

    Didn't work for me either and I also must know what the school nurse said.... EDITED TO ADD: Okay now it works for me at 5:48 a.m. CST - on to the reading!
  11. K

    suspicion of cf

    You don't want to become a regular? But we're such a fun group! <img src="i/expressions/face-icon-small-wink.gif" border="0"> Okay, seriously, I would push for testing like Alyssa describes (CFF accredited center, etc.) At this point what would be the harm of ruling CF out? I would also...
  12. K

    suspicion of cf

    You don't want to become a regular? But we're such a fun group! <img src="i/expressions/face-icon-small-wink.gif" border="0"> Okay, seriously, I would push for testing like Alyssa describes (CFF accredited center, etc.) At this point what would be the harm of ruling CF out? I would also...
  13. K

    suspicion of cf

    You don't want to become a regular? But we're such a fun group! <img src="i/expressions/face-icon-small-wink.gif" border="0"> Okay, seriously, I would push for testing like Alyssa describes (CFF accredited center, etc.) At this point what would be the harm of ruling CF out? I would also...
  14. K

    Emily's montage

    That is beautiful, Tami. My favorite might be Isabelle feeding her baby along with you feeding Emily. Big sisters - so, so sweet. Your girls are absolutely adorable. I like the way you wrote it all out. Very good. I've started the day off with tears!
  15. K

    Emily's montage

    That is beautiful, Tami. My favorite might be Isabelle feeding her baby along with you feeding Emily. Big sisters - so, so sweet. Your girls are absolutely adorable. I like the way you wrote it all out. Very good. I've started the day off with tears!
  16. K

    Emily's montage

    That is beautiful, Tami. My favorite might be Isabelle feeding her baby along with you feeding Emily. Big sisters - so, so sweet. Your girls are absolutely adorable. I like the way you wrote it all out. Very good. I've started the day off with tears!
  17. K

    Aidan's CF Check-UP

    Katy is on Azithromycin 3 days a week, and our doc explained it the same way Amy did. Yay for Aidan's good checkup, and way to go on his weight! Katy is only 35 pounds now. The weight gain is not something I've focused very hard on yet. Her VEST prescribed time is 40 minutes a day.
  18. K

    Aidan's CF Check-UP

    Katy is on Azithromycin 3 days a week, and our doc explained it the same way Amy did. Yay for Aidan's good checkup, and way to go on his weight! Katy is only 35 pounds now. The weight gain is not something I've focused very hard on yet. Her VEST prescribed time is 40 minutes a day.
  19. K

    Aidan's CF Check-UP

    Katy is on Azithromycin 3 days a week, and our doc explained it the same way Amy did. Yay for Aidan's good checkup, and way to go on his weight! Katy is only 35 pounds now. The weight gain is not something I've focused very hard on yet. Her VEST prescribed time is 40 minutes a day.
  20. K

    First signs of CF?

    To answer your second post, I don't think anything that you are describing is normal. Don't let those "I'm a new mommy" doubts cloud your perception that something is wrong! I hope you get your answers soon. Perhaps your doctor can treat the GI symptoms with enzymes NOW. Ask him.
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