Cystic Fibrosis Forum (EXP)

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  1. K

    First signs of CF?

    To answer your second post, I don't think anything that you are describing is normal. Don't let those "I'm a new mommy" doubts cloud your perception that something is wrong! I hope you get your answers soon. Perhaps your doctor can treat the GI symptoms with enzymes NOW. Ask him.
  2. K

    First signs of CF?

    To answer your second post, I don't think anything that you are describing is normal. Don't let those "I'm a new mommy" doubts cloud your perception that something is wrong! I hope you get your answers soon. Perhaps your doctor can treat the GI symptoms with enzymes NOW. Ask him.
  3. K

    My CF-savvy kid

    I was doing my usual evening routine and Katy came and found me. She was beaming and had a piece of paper in her hand. "Look mom! I drew a picture of the mucus in my lungs!" She was so excited, and I collected myself enough to smile, and I put my hands on her back and chest and pretended...
  4. K

    My CF-savvy kid

    I was doing my usual evening routine and Katy came and found me. She was beaming and had a piece of paper in her hand. "Look mom! I drew a picture of the mucus in my lungs!" She was so excited, and I collected myself enough to smile, and I put my hands on her back and chest and pretended...
  5. K

    My CF-savvy kid

    I was doing my usual evening routine and Katy came and found me. She was beaming and had a piece of paper in her hand. "Look mom! I drew a picture of the mucus in my lungs!" She was so excited, and I collected myself enough to smile, and I put my hands on her back and chest and pretended...
  6. K

    Going crazy

    Oh, the waiting. We only had to wait 4 days for a follow-up sweat test to confirm the prior positive one, but that was probably the lowest time of my life. The hope you CAN have is that if it is CF, treatment options will help your child feel better now and have a long, happy life. There IS a...
  7. K

    Going crazy

    Oh, the waiting. We only had to wait 4 days for a follow-up sweat test to confirm the prior positive one, but that was probably the lowest time of my life. The hope you CAN have is that if it is CF, treatment options will help your child feel better now and have a long, happy life. There IS a...
  8. K

    Going crazy

    Oh, the waiting. We only had to wait 4 days for a follow-up sweat test to confirm the prior positive one, but that was probably the lowest time of my life. The hope you CAN have is that if it is CF, treatment options will help your child feel better now and have a long, happy life. There IS a...
  9. K

    Question for Parents

    Katy cultured PA on her first CF doc visit in August 2006. We were on TOBI for 3 months straight, and are now doing the 28 on/28 off. She is cultured every 2 months, and we have had 3 clear cultures since then. With our doc, I don't know that we will ever come off of it. His take on it is...
  10. K

    Question for Parents

    Katy cultured PA on her first CF doc visit in August 2006. We were on TOBI for 3 months straight, and are now doing the 28 on/28 off. She is cultured every 2 months, and we have had 3 clear cultures since then. With our doc, I don't know that we will ever come off of it. His take on it is...
  11. K

    Question for Parents

    Katy cultured PA on her first CF doc visit in August 2006. We were on TOBI for 3 months straight, and are now doing the 28 on/28 off. She is cultured every 2 months, and we have had 3 clear cultures since then. With our doc, I don't know that we will ever come off of it. His take on it is...
  12. K

    First signs of CF?

    Our daughter's GI symptoms really kicked in at age 2 and she didn't get diagnosed until August 2006. Prior, though, she had some milder symptoms but no one connected the dots. I hope the testing provides clear-cut answers. Please come back and post if you have any other questions. Good luck.
  13. K

    First signs of CF?

    Our daughter's GI symptoms really kicked in at age 2 and she didn't get diagnosed until August 2006. Prior, though, she had some milder symptoms but no one connected the dots. I hope the testing provides clear-cut answers. Please come back and post if you have any other questions. Good luck.
  14. K

    First signs of CF?

    Our daughter's GI symptoms really kicked in at age 2 and she didn't get diagnosed until August 2006. Prior, though, she had some milder symptoms but no one connected the dots. I hope the testing provides clear-cut answers. Please come back and post if you have any other questions. Good luck.
  15. K

    trick to sterilizing nebs?

    Ditto on the Bubbles the Fish mask - ours got way discolored when we boiled it for 10 minutes. You'll find conflicting advice about Bubbles on the PARI thread. Our experience is that he can't make it 10 minutes. Dana Mom to Katy (3, cf) and Kyra (7, no cf)
  16. K

    trick to sterilizing nebs?

    Ditto on the Bubbles the Fish mask - ours got way discolored when we boiled it for 10 minutes. You'll find conflicting advice about Bubbles on the PARI thread. Our experience is that he can't make it 10 minutes. Dana Mom to Katy (3, cf) and Kyra (7, no cf)
  17. K

    trick to sterilizing nebs?

    Ditto on the Bubbles the Fish mask - ours got way discolored when we boiled it for 10 minutes. You'll find conflicting advice about Bubbles on the PARI thread. Our experience is that he can't make it 10 minutes. Dana Mom to Katy (3, cf) and Kyra (7, no cf)
  18. K

    Sit with me

    <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>lightNlife</b></i> <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>ktsmom</b></i> I have been known to prop the nebulizer against a pillow when she does her morning breathing treatments, because she is asleep for...
  19. K

    Sit with me

    <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>lightNlife</b></i> <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>ktsmom</b></i> I have been known to prop the nebulizer against a pillow when she does her morning breathing treatments, because she is asleep for...
  20. K

    Sit with me

    <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>lightNlife</b></i> <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>ktsmom</b></i> I have been known to prop the nebulizer against a pillow when she does her morning breathing treatments, because she is asleep for...
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