Cystic Fibrosis Forum (EXP)

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  1. M

    compliance

    to add to this (assumign Skye doesnt matter) if you are really awesome at something, give us some ideas! I was dx at 21 and went full bore compliant for oh, about a month! After that I would say I was a 5. Since having my daughter I would say I am 9. The only thing I have besides a (very)...
  2. M

    compliance

    to add to this (assumign Skye doesnt matter) if you are really awesome at something, give us some ideas! I was dx at 21 and went full bore compliant for oh, about a month! After that I would say I was a 5. Since having my daughter I would say I am 9. The only thing I have besides a (very)...
  3. M

    compliance

    to add to this (assumign Skye doesnt matter) if you are really awesome at something, give us some ideas! I was dx at 21 and went full bore compliant for oh, about a month! After that I would say I was a 5. Since having my daughter I would say I am 9. The only thing I have besides a (very)...
  4. M

    compliance

    to add to this (assumign Skye doesnt matter) if you are really awesome at something, give us some ideas! I was dx at 21 and went full bore compliant for oh, about a month! After that I would say I was a 5. Since having my daughter I would say I am 9. The only thing I have besides a (very)...
  5. M

    compliance

    to add to this (assumign Skye doesnt matter) if you are really awesome at something, give us some ideas! <br /> <br />I was dx at 21 and went full bore compliant for oh, about a month! After that I would say I was a 5. <br /> <br />Since having my daughter I would say I am 9. The only thing I...
  6. M

    ? about Neil Med SInus Rinse

    if you did this I would definately take out the dispenser and put saran wrap over the bottle top and at least rinse out the dispenser with alcohol and hang to dry. My concern would be the bacteria traveling down tube into the solution between administrations. One other idea would be to get a...
  7. M

    ? about Neil Med SInus Rinse

    if you did this I would definately take out the dispenser and put saran wrap over the bottle top and at least rinse out the dispenser with alcohol and hang to dry. My concern would be the bacteria traveling down tube into the solution between administrations. One other idea would be to get a...
  8. M

    ? about Neil Med SInus Rinse

    if you did this I would definately take out the dispenser and put saran wrap over the bottle top and at least rinse out the dispenser with alcohol and hang to dry. My concern would be the bacteria traveling down tube into the solution between administrations. One other idea would be to get a...
  9. M

    ? about Neil Med SInus Rinse

    if you did this I would definately take out the dispenser and put saran wrap over the bottle top and at least rinse out the dispenser with alcohol and hang to dry. My concern would be the bacteria traveling down tube into the solution between administrations. One other idea would be to get a...
  10. M

    ? about Neil Med SInus Rinse

    if you did this I would definately take out the dispenser and put saran wrap over the bottle top and at least rinse out the dispenser with alcohol and hang to dry. My concern would be the bacteria traveling down tube into the solution between administrations. <br /> <br />One other idea would be...
  11. M

    Have you had this?

    thanks to both of you I do have xopenex and do that or puffs of albuterol each time and I forgot to mention that. I dont have much problems with the 7%HTS at all. I was doing xopenex pulmozyme once a day and then the xopenex and HTS the other 2-3 times but now that I am on TOBI I can only get...
  12. M

    Have you had this?

    thanks to both of you I do have xopenex and do that or puffs of albuterol each time and I forgot to mention that. I dont have much problems with the 7%HTS at all. I was doing xopenex pulmozyme once a day and then the xopenex and HTS the other 2-3 times but now that I am on TOBI I can only get...
  13. M

    Have you had this?

    thanks to both of you I do have xopenex and do that or puffs of albuterol each time and I forgot to mention that. I dont have much problems with the 7%HTS at all. I was doing xopenex pulmozyme once a day and then the xopenex and HTS the other 2-3 times but now that I am on TOBI I can only get...
  14. M

    Have you had this?

    thanks to both of you I do have xopenex and do that or puffs of albuterol each time and I forgot to mention that. I dont have much problems with the 7%HTS at all. I was doing xopenex pulmozyme once a day and then the xopenex and HTS the other 2-3 times but now that I am on TOBI I can only get...
  15. M

    Have you had this?

    thanks to both of you <br /> <br />I do have xopenex and do that or puffs of albuterol each time and I forgot to mention that. <br /> <br />I dont have much problems with the 7%HTS at all. I was doing xopenex pulmozyme once a day and then the xopenex and HTS the other 2-3 times but now that I...
  16. M

    Have you had this?

    Hey all I am on day 11 of IV's (tobra ceftaz) and I actually caught a head cold 4 days into them which slowed my progress. At 7 days in my PFT's had increased 5% but I have about another 10% to go to get back to what I was in feb. My 'snottiness' is startingt to decrease but my cough/mucous in...
  17. M

    Have you had this?

    Hey all I am on day 11 of IV's (tobra ceftaz) and I actually caught a head cold 4 days into them which slowed my progress. At 7 days in my PFT's had increased 5% but I have about another 10% to go to get back to what I was in feb. My 'snottiness' is startingt to decrease but my cough/mucous in...
  18. M

    Have you had this?

    Hey all I am on day 11 of IV's (tobra ceftaz) and I actually caught a head cold 4 days into them which slowed my progress. At 7 days in my PFT's had increased 5% but I have about another 10% to go to get back to what I was in feb. My 'snottiness' is startingt to decrease but my cough/mucous in...
  19. M

    Have you had this?

    Hey all I am on day 11 of IV's (tobra ceftaz) and I actually caught a head cold 4 days into them which slowed my progress. At 7 days in my PFT's had increased 5% but I have about another 10% to go to get back to what I was in feb. My 'snottiness' is startingt to decrease but my cough/mucous in...
  20. M

    Have you had this?

    Hey all <br /> <br />I am on day 11 of IV's (tobra ceftaz) and I actually caught a head cold 4 days into them which slowed my progress. At 7 days in my PFT's had increased 5% but I have about another 10% to go to get back to what I was in feb. My 'snottiness' is startingt to decrease but my...
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