Cystic Fibrosis Forum (EXP)

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  1. M

    Waiting for Diagnosis

    <img src="i/expressions/hugging.gif" border="0">Dear Brenda,,, there's no easy way with dealing with diagnoising CF...I'v said before it can be cut and dry for some cases,, and others it can take more time....Just make sure if you can, go through Ambry Genetics if you have to, because they test...
  2. M

    Waiting for Diagnosis

    <img src="i/expressions/hugging.gif" border="0">Dear Brenda,,, there's no easy way with dealing with diagnoising CF...I'v said before it can be cut and dry for some cases,, and others it can take more time....Just make sure if you can, go through Ambry Genetics if you have to, because they test...
  3. M

    Waiting for Diagnosis

    <img src="i/expressions/hugging.gif" border="0">Dear Brenda,,, there's no easy way with dealing with diagnoising CF...I'v said before it can be cut and dry for some cases,, and others it can take more time....Just make sure if you can, go through Ambry Genetics if you have to, because they test...
  4. M

    Waiting for Diagnosis

    <img src="i/expressions/hugging.gif" border="0">Dear Brenda,,, there's no easy way with dealing with diagnoising CF...I'v said before it can be cut and dry for some cases,, and others it can take more time....Just make sure if you can, go through Ambry Genetics if you have to, because they test...
  5. M

    Waiting for Diagnosis

    <img src="i/expressions/hugging.gif" border="0">Dear Brenda,,, there's no easy way with dealing with diagnoising CF...I'v said before it can be cut and dry for some cases,, and others it can take more time....Just make sure if you can, go through Ambry Genetics if you have to, because they test...
  6. M

    Sweat test results - Very Frustrated - Vent

    Hi Paige,I just always have heard it's hard to get a good sweat test on kids 3 and younger,,and a person that is in their 20's might show a higher test.I'v heard of other reasons why a test might be to low or even not have enough sweat , one is that if a chid is malnourished,or dehydrated...
  7. M

    Sweat test results - Very Frustrated - Vent

    Hi Paige,I just always have heard it's hard to get a good sweat test on kids 3 and younger,,and a person that is in their 20's might show a higher test.I'v heard of other reasons why a test might be to low or even not have enough sweat , one is that if a chid is malnourished,or dehydrated...
  8. M

    Sweat test results - Very Frustrated - Vent

    Hi Paige,I just always have heard it's hard to get a good sweat test on kids 3 and younger,,and a person that is in their 20's might show a higher test.I'v heard of other reasons why a test might be to low or even not have enough sweat , one is that if a chid is malnourished,or dehydrated...
  9. M

    Sweat test results - Very Frustrated - Vent

    Hi Paige,I just always have heard it's hard to get a good sweat test on kids 3 and younger,,and a person that is in their 20's might show a higher test.I'v heard of other reasons why a test might be to low or even not have enough sweat , one is that if a chid is malnourished,or dehydrated...
  10. M

    Sweat test results - Very Frustrated - Vent

    Hi Paige,I just always have heard it's hard to get a good sweat test on kids 3 and younger,,and a person that is in their 20's might show a higher test.I'v heard of other reasons why a test might be to low or even not have enough sweat , one is that if a chid is malnourished,or dehydrated...
  11. M

    Cultured Staph Aureus for first time

    DEAR MOM TO AVERY,,, I AM THE SAME WAY ABOUT THE CLEANING,,,AND YOUR RIGHT WE ARE NOT SUPERHUMAN...MAKAILYN IS 7 NOW AND SHE KNOWS TO STAY CLEAR OF PEOPLE WHO DON'T KNOW HOW TO COVER THEIR MOUTH WHEN THEY COUGH,,SHE KNEW HOW TO STERILE HAND WASH WHEN SHE WAS ALMOST 3,,,AND SHE ALWAYS HAS A...
  12. M

    Cultured Staph Aureus for first time

    DEAR MOM TO AVERY,,, I AM THE SAME WAY ABOUT THE CLEANING,,,AND YOUR RIGHT WE ARE NOT SUPERHUMAN...MAKAILYN IS 7 NOW AND SHE KNOWS TO STAY CLEAR OF PEOPLE WHO DON'T KNOW HOW TO COVER THEIR MOUTH WHEN THEY COUGH,,SHE KNEW HOW TO STERILE HAND WASH WHEN SHE WAS ALMOST 3,,,AND SHE ALWAYS HAS A...
  13. M

    Cultured Staph Aureus for first time

    DEAR MOM TO AVERY,,, I AM THE SAME WAY ABOUT THE CLEANING,,,AND YOUR RIGHT WE ARE NOT SUPERHUMAN...MAKAILYN IS 7 NOW AND SHE KNOWS TO STAY CLEAR OF PEOPLE WHO DON'T KNOW HOW TO COVER THEIR MOUTH WHEN THEY COUGH,,SHE KNEW HOW TO STERILE HAND WASH WHEN SHE WAS ALMOST 3,,,AND SHE ALWAYS HAS A...
  14. M

    Cultured Staph Aureus for first time

    DEAR MOM TO AVERY,,, I AM THE SAME WAY ABOUT THE CLEANING,,,AND YOUR RIGHT WE ARE NOT SUPERHUMAN...MAKAILYN IS 7 NOW AND SHE KNOWS TO STAY CLEAR OF PEOPLE WHO DON'T KNOW HOW TO COVER THEIR MOUTH WHEN THEY COUGH,,SHE KNEW HOW TO STERILE HAND WASH WHEN SHE WAS ALMOST 3,,,AND SHE ALWAYS HAS A...
  15. M

    Cultured Staph Aureus for first time

    DEAR MOM TO AVERY,,, I AM THE SAME WAY ABOUT THE CLEANING,,,AND YOUR RIGHT WE ARE NOT SUPERHUMAN...MAKAILYN IS 7 NOW AND SHE KNOWS TO STAY CLEAR OF PEOPLE WHO DON'T KNOW HOW TO COVER THEIR MOUTH WHEN THEY COUGH,,SHE KNEW HOW TO STERILE HAND WASH WHEN SHE WAS ALMOST 3,,,AND SHE ALWAYS HAS A...
  16. M

    cleaning out?

    I TOTALY AGREE WITH THE OTHERS,,,, HOPEFULLY YOU ARE SEEING AN ENT,, USEALLY THE CF CLINICS WORK TOGETHER WITH ENT'S, AND GI DOCTORS...MY GRANDBABY HAD SINUS SURGERY 2 YRS AGO. SHE HAD BAD POLYPS, AND HAD ADNOIDS REMOVED AND THE CLEAN OUT....SHE STILL HAS ALOT OF INFECTIONS, BUT THE ENT SAID...
  17. M

    cleaning out?

    I TOTALY AGREE WITH THE OTHERS,,,, HOPEFULLY YOU ARE SEEING AN ENT,, USEALLY THE CF CLINICS WORK TOGETHER WITH ENT'S, AND GI DOCTORS...MY GRANDBABY HAD SINUS SURGERY 2 YRS AGO. SHE HAD BAD POLYPS, AND HAD ADNOIDS REMOVED AND THE CLEAN OUT....SHE STILL HAS ALOT OF INFECTIONS, BUT THE ENT SAID...
  18. M

    cleaning out?

    I TOTALY AGREE WITH THE OTHERS,,,, HOPEFULLY YOU ARE SEEING AN ENT,, USEALLY THE CF CLINICS WORK TOGETHER WITH ENT'S, AND GI DOCTORS...MY GRANDBABY HAD SINUS SURGERY 2 YRS AGO. SHE HAD BAD POLYPS, AND HAD ADNOIDS REMOVED AND THE CLEAN OUT....SHE STILL HAS ALOT OF INFECTIONS, BUT THE ENT SAID...
  19. M

    cleaning out?

    I TOTALY AGREE WITH THE OTHERS,,,, HOPEFULLY YOU ARE SEEING AN ENT,, USEALLY THE CF CLINICS WORK TOGETHER WITH ENT'S, AND GI DOCTORS...MY GRANDBABY HAD SINUS SURGERY 2 YRS AGO. SHE HAD BAD POLYPS, AND HAD ADNOIDS REMOVED AND THE CLEAN OUT....SHE STILL HAS ALOT OF INFECTIONS, BUT THE ENT SAID...
  20. M

    cleaning out?

    I TOTALY AGREE WITH THE OTHERS,,,, HOPEFULLY YOU ARE SEEING AN ENT,, USEALLY THE CF CLINICS WORK TOGETHER WITH ENT'S, AND GI DOCTORS...MY GRANDBABY HAD SINUS SURGERY 2 YRS AGO. SHE HAD BAD POLYPS, AND HAD ADNOIDS REMOVED AND THE CLEAN OUT....SHE STILL HAS ALOT OF INFECTIONS, BUT THE ENT SAID...
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