Cystic Fibrosis Forum (EXP)

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  1. P

    My appointment Thursday

    Im 5 ft tall and I go to clinic every 2 months. They want to stay on top of everything, if I didnt have a say so the doc would have me come back every month, I think all or most of his patients see him every month. I go back to the docs in June. Thank you Lauren for the offer, I will most...
  2. P

    My appointment Thursday

    Im 5 ft tall and I go to clinic every 2 months. They want to stay on top of everything, if I didnt have a say so the doc would have me come back every month, I think all or most of his patients see him every month. I go back to the docs in June. Thank you Lauren for the offer, I will most...
  3. P

    My appointment Thursday

    Im 5 ft tall and I go to clinic every 2 months. They want to stay on top of everything, if I didnt have a say so the doc would have me come back every month, I think all or most of his patients see him every month. I go back to the docs in June. Thank you Lauren for the offer, I will most...
  4. P

    Hypertonic saline

    Hypertonic Saline is natural its made of only salt and steril water mixed a certain way. All the hypertonic saline done to me was make me cough but now it doesnt, it only makes me cough when Im congested or have a cold. The only side effect I can think of is it irritating the lungs but Im not...
  5. P

    Hypertonic saline

    Hypertonic Saline is natural its made of only salt and steril water mixed a certain way. All the hypertonic saline done to me was make me cough but now it doesnt, it only makes me cough when Im congested or have a cold. The only side effect I can think of is it irritating the lungs but Im not...
  6. P

    Hypertonic saline

    Hypertonic Saline is natural its made of only salt and steril water mixed a certain way. All the hypertonic saline done to me was make me cough but now it doesnt, it only makes me cough when Im congested or have a cold. The only side effect I can think of is it irritating the lungs but Im not...
  7. P

    My appointment Thursday

    2 months ago I was at 90% and yesterday I blew an 81%. I really do think it has to do with me getting a cold cause I got really conjested. Im not worried cause they are going back up again, I know it.
  8. P

    My appointment Thursday

    2 months ago I was at 90% and yesterday I blew an 81%. I really do think it has to do with me getting a cold cause I got really conjested. Im not worried cause they are going back up again, I know it.
  9. P

    My appointment Thursday

    2 months ago I was at 90% and yesterday I blew an 81%. I really do think it has to do with me getting a cold cause I got really conjested. Im not worried cause they are going back up again, I know it.
  10. P

    My appointment Thursday

    Yesterday I had an appointment and it went pretty well. My pfts dropped 9% from 90 to 81 and from looking at the history, I was at 82% April 20th of last year, so Im back to where I was but I will get them back up. This time I didnt try like I usually do, I blew as hard as I could but never...
  11. P

    My appointment Thursday

    Yesterday I had an appointment and it went pretty well. My pfts dropped 9% from 90 to 81 and from looking at the history, I was at 82% April 20th of last year, so Im back to where I was but I will get them back up. This time I didnt try like I usually do, I blew as hard as I could but never...
  12. P

    My appointment Thursday

    Yesterday I had an appointment and it went pretty well. My pfts dropped 9% from 90 to 81 and from looking at the history, I was at 82% April 20th of last year, so Im back to where I was but I will get them back up. This time I didnt try like I usually do, I blew as hard as I could but never...
  13. P

    Cf Lung transplant video of surgery

    I enjoyed it thanks for sharing
  14. P

    Cf Lung transplant video of surgery

    I enjoyed it thanks for sharing
  15. P

    Cf Lung transplant video of surgery

    I enjoyed it thanks for sharing
  16. P

    once your fev 1 is down can it be improved

    I agree with Melissa, she is right on. Do you use hypertonic saline? If not ask for it cause that stuff helped me go from 65% to 90% in a year. HS doesnt work for everyone but its worth a shot if you want the number to go up. Just a suggestion.
  17. P

    once your fev 1 is down can it be improved

    I agree with Melissa, she is right on. Do you use hypertonic saline? If not ask for it cause that stuff helped me go from 65% to 90% in a year. HS doesnt work for everyone but its worth a shot if you want the number to go up. Just a suggestion.
  18. P

    once your fev 1 is down can it be improved

    I agree with Melissa, she is right on. Do you use hypertonic saline? If not ask for it cause that stuff helped me go from 65% to 90% in a year. HS doesnt work for everyone but its worth a shot if you want the number to go up. Just a suggestion.
  19. P

    just thought i'd share

    Thats good to hear, i love it when I can laugh without coughing. Keep up the good work, and laugh as much as you can while that cough is gone.
  20. P

    just thought i'd share

    Thats good to hear, i love it when I can laugh without coughing. Keep up the good work, and laugh as much as you can while that cough is gone.
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