Cystic Fibrosis Forum (EXP)

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  1. H

    Amnio test said my baby is positive for CF

    Wow, what doc tells people that D5F08= pain and suffering and having to watch your child die? I'm all about the right to choose, but I think it should be a reasonably well informed decision. I'm DF508 and R560T, 26 (and a half) and I just got my first course of Tobi, I don't do CPT, I don't do...
  2. H

    Amnio test said my baby is positive for CF

    Wow, what doc tells people that D5F08= pain and suffering and having to watch your child die? I'm all about the right to choose, but I think it should be a reasonably well informed decision. I'm DF508 and R560T, 26 (and a half) and I just got my first course of Tobi, I don't do CPT, I don't do...
  3. H

    Amnio test said my baby is positive for CF

    Wow, what doc tells people that D5F08= pain and suffering and having to watch your child die? I'm all about the right to choose, but I think it should be a reasonably well informed decision. I'm DF508 and R560T, 26 (and a half) and I just got my first course of Tobi, I don't do CPT, I don't do...
  4. H

    Amnio test said my baby is positive for CF

    Wow, what doc tells people that D5F08= pain and suffering and having to watch your child die? I'm all about the right to choose, but I think it should be a reasonably well informed decision. I'm DF508 and R560T, 26 (and a half) and I just got my first course of Tobi, I don't do CPT, I don't do...
  5. H

    Amnio test said my baby is positive for CF

    Wow, what doc tells people that D5F08= pain and suffering and having to watch your child die? I'm all about the right to choose, but I think it should be a reasonably well informed decision. I'm DF508 and R560T, 26 (and a half) and I just got my first course of Tobi, I don't do CPT, I don't do...
  6. H

    possible cure for cf on the horizon?

    When I think of a cure, the idea that comes to mind is not having any symptoms while, at the same time, not doing any treatments. Gene therapy is expensive and so far, pretty ineffective. For most of us the closest thing we will get to a cure will be better maintenance treatments. That would...
  7. H

    possible cure for cf on the horizon?

    When I think of a cure, the idea that comes to mind is not having any symptoms while, at the same time, not doing any treatments. Gene therapy is expensive and so far, pretty ineffective. For most of us the closest thing we will get to a cure will be better maintenance treatments. That would...
  8. H

    possible cure for cf on the horizon?

    When I think of a cure, the idea that comes to mind is not having any symptoms while, at the same time, not doing any treatments. Gene therapy is expensive and so far, pretty ineffective. For most of us the closest thing we will get to a cure will be better maintenance treatments. That would...
  9. H

    possible cure for cf on the horizon?

    When I think of a cure, the idea that comes to mind is not having any symptoms while, at the same time, not doing any treatments. Gene therapy is expensive and so far, pretty ineffective. For most of us the closest thing we will get to a cure will be better maintenance treatments. That would...
  10. H

    possible cure for cf on the horizon?

    When I think of a cure, the idea that comes to mind is not having any symptoms while, at the same time, not doing any treatments. Gene therapy is expensive and so far, pretty ineffective. For most of us the closest thing we will get to a cure will be better maintenance treatments. That would...
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